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Extreme chills waking me up

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Posted 8/10/2017 1:37 AM (GMT 0)
Before lyme treatment I used to get extreme chills. When I started treatment the chills went away. I took a month break from antibiotics after five months on them. Now two weeks into antibiotic treatment again I am waking up with extreme severe chills. My body is so cold. Like ice veins. Is this relapse, is this herx? I'm only on azitromycin and minocycline and I started very slowly half pills for week.

Can't sleep which is going to make things worse!
Posted 8/10/2017 2:59 AM (GMT 0)
If you are having a reaction while on treatment, my very best guess is it is a herx. At least, that is how it worked with me, treatment - uptick in symptoms, 3-4 months down the line, some improvement.

Up the detoxing!

Epsom salt bath is my favorite - can also do a foot bath.

H20 with lemon or apple cider vinegar

charcoal - 2 hours after you've eaten something, then don't eat anything for 2 hours after that.

Hang in there! It will get better.
Posted 8/10/2017 3:23 AM (GMT 0)
You're herxing.

So you are taking 100 mg mino and 500 mg zithro daily?

Do you also shiver when you have the chills?

Maybe take a day off the meds...see how you feel. and focus on detoxing.
Posted 8/10/2017 7:36 AM (GMT 0)
I'm taking 600mg azitromycin Monday Wednesday and Friday. I take 200mg minocycline every day. I have so many detox supplements, sauna baths etc I've really been focusing on detox well as I herx very easy..

I have been on this antibiotics for two weeks now. Was on this protocol months ago too and didn't get chills

My body shivers slightly but the chills are extreme. Slept maybe an hour in total last night. Had so many layers. I'm seriously doubting if I can do antibiotics as I clearly can't handle them
Posted 8/10/2017 2:14 PM (GMT 0)
Have you been tested for babesia? I get chills that are so deep, it's like it's in my bones. I was told that is a very common symptom of babesia, which I've recently started treating and find symptoms seem to get worse with treatment supposedly before they get better, there are so many days where I feel like stopping all treatment since I think it's almost worse!! I know what you mean about the detoxing, I feel like it's a full time job just trying to space out supplements and detox!
Posted 8/10/2017 2:24 PM (GMT 0)
I tested negative for babesia but doctor thought I had it so put me in malerone. The herx was unreal so they swapped malerone with artimisia 400 a day. I've never really recovered from the herx so I stopped antibiotics for a month then started again with azitromycin and minocycline.

Started again with azitromycin and minocycline. Been on it for 16 days and now severe chills. Haven't had chills in months. It's so deep the chills like you say inside bones it's horrible. Coukd this be babesia herx with artimisia or lyme herx

Did you stop treatment?
Posted 8/10/2017 2:31 PM (GMT 0)
I was off treatment for awhile and still had chills. Have you tried using a heating pad? Just don't put it on a high setting.

Patty
Posted 8/10/2017 2:46 PM (GMT 0)
Just realised I get chills more so when lying down?
Posted 8/10/2017 4:00 PM (GMT 0)
I use my sauna mat at 60 degrees to sweat but as son as I lie down in bed the chills come on full force. Think it's maybe babesia rather than a herx
Posted 8/10/2017 4:12 PM (GMT 0)
For me personally, I never had any chills until I started treating babesia 6 months ago and I've been sick for years. Now I have a heating pad on the couch.

It could still be a lyme herx but I would consider babesia too. My doctor thinks that artemisia is mainly for babesia but that it also hits lyme.
Posted 8/10/2017 4:17 PM (GMT 0)
I keep starting and stop antibiotics as I can't handle herx reactions so I'm never going to get better unless I power through it I imagine. I'm such a wimp I'm only on small doses 200 Mino a day and 600 azitromycin three days week
Posted 8/10/2017 4:36 PM (GMT 0)
davidgraham5, don't beat yourself up. Lots of people especially like me take forever to increase dosages and many times slow and steady is better. If you go to fast you may crash and have to stop treatment to detox and start all over again.

Mino at 200 is a very good dose. It is not taken in the higher doses like doxy. Azithromycin has a long half life and lots of doctors pulse 500mg 3 days a week.

I would just add in other things when you feel you can handle the herx through detox.

Hopefully, you have a doctor who can guide you and work with your body instead of pushing you. My doctor knows to start me low on everything and see how I react.

You can also consider herbals if you and your doctor are open to them. Many people mix herbals and pharmaceuticals or choose one over the other.
Posted 8/10/2017 4:41 PM (GMT 0)
Thanks ks loutucky appreciate the support. Th clinic I get treatment is so busy that it's difficult to get dedicated support constantly. They have me in many supplements and a few herbs to try reduce herx but I herx so easy. I completely crashed last time and then had to start from scratch. Will stop antibiotics for couple days and start again I think. It's so annoying I just want to know if its lyme herx or babesia
Posted 8/10/2017 5:13 PM (GMT 0)
I so know what you mean! It would be so nice if we had a magic ball that told us exactly what we need to treat! I too have symptoms that I don't know if they are Lyme or babesia or completely unrelated!! I am beyond sensitive with meds, when I started malarone I stayed at 1/4 pill for a week then went to 1/4 2x, I'm only up to 1 in the am and 1/2 pm and it's been over 2 months!! When I started a-bab with just one drop I had chills so bad and so fatigued! I'm not doing a-bab but I am doing crypto plus and have only made it to 14 drops 2x a day after being on it for months!! As far as your chills, I got a mat on amazon, it was $100 but well worth it, I forget what iits called, some type of infrared mat, might be worth it!!
Posted 8/10/2017 5:25 PM (GMT 0)
David -

Just thought I'd let you know that Mino at 200mg is pretty standard for Lyme. I also took Azith at 300mg/day, so our protocols are very similar. Like you, I reached a point two months in where we had to regroup because I felt awful, so I understand your frustration with having to stop.

i agree with the advice to go low and slow, but I find my patience tried because I just want to get to maximum doses to kill these suckers!

Hoping you and your practitioner can get things back on track soon!
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