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Treating Co-infections before lyme?

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Posted 8/25/2017 12:52 AM (GMT 0)
Hi all,

I could just about cry right now. I feel like I've taken 5 steps backward in my treatment. Recently my hormones have been out of whack (I haven't felt like this in 2 years) and am suddenly getting hot flashes and headaches, etc.

I went to a new LLND today in Florida who seems very knowledgable (I can't even remember how to spell that because my brain fog is so bad). Anyway, he said we need to go back to treating the coinfection before the lyme disease. So, we are going back to trying to hit my bartonella again first before the lyme.

Is this right???? I'm so confused...I was already on antibiotics for 1.5 years before this and have been trying to go the "natural" route. It seems like things are just getting worse.
Posted 8/25/2017 1:27 AM (GMT 0)
You can simultaneously treat Lyme and Co-infections with herbals. Many do it.
Posted 8/25/2017 1:55 AM (GMT 0)
I know we are all different and have different reactions to meds, etc. I was positive for Bartonella and Ehrlichia and was put on Doxycycline 100mg twice daily for about 5 months. Most recent testing shows negative for both. Realizing tests often give false results, I am slightly hesitant to believe it, but, hey, I'm not going to argue.

Lyme unfortunately has strengthened a bit. Now on 2 different antibiotics to try to nail the Lyme.

Please don't be too discouraged. The waxing and waning of symptoms and test results is frustrating, but at least you have been at a better place which will likely return.
Posted 8/25/2017 2:11 AM (GMT 0)
I think treatment needs to be variable. Multiple methods, cycling, etc.

Of course, be sure to eat right, care for your GI health, and detox to prepare yourself to use multiple modalities to treat.

Thankfully, at least with most herbal medicines, they're broad-spectrum in their action against pathogens. Some antibiotics are too, I believe.

Some say you should treat whichever infection is most present at the time, which might be the best route, IF you have the option to use infection-specific medicines, and you are confident you're dealing with a particular infection more so than the rest.

Personally, I've jumped back and forth. For better or worse? I don't know. I think my approach can prove successful, eventually.

Also, if you keep at it, support your health while treating, it will be cumulative - some improvements will stay. Ultimately, all (most) will leave, though.

Shrugs

Hope I helped some.

edit: Use different tinctures. There are a lot, but some you need a doctor. See a doctor, if you can. Use essential oils. Consider biofilms? Is your GI function okay? Detox your bum off. Get in a sauna, somehow. Make a homemade one, like I did. Haha. Look into Vitamin C flushing. Be positive. Attitude helps. Staying busy does too. At the risk of neglecting my health, I work and go to school, because I HAVE to, but being busy helps, honestly. Try little hobbies or something. Be persistent.

Post Edited (NotQuiteAntonio) : 8/24/2017 8:15:21 PM (GMT-6)

Posted 8/25/2017 2:21 AM (GMT 0)
When you treat the co's pharmaceutically, you are simultaneously treating lyme.

For Bartonella - if you do Rifampin , you will be adding another antibiotic (or even two) to it...so maybe biaxin or Minocycline.


For Babesia, if you do Mepron, you will add another antibiotic (or two) to it - so maybe azithromycin or minocycline.


I don't know why the LLMD's do many months of lyme only abx...maybe they're thinking they may not need to do the bar or babs drugs?

My LLND didn't start treating the Bart co until a year after lyme treatment started....
Posted 8/25/2017 2:52 AM (GMT 0)
Thanks for all the responses, I've been to multiple doctors and it is all so confusing- everyone says a different thing and everyone thinks they are right...this disease has swallowed me whole.
Posted 8/25/2017 3:29 AM (GMT 0)
gabybee, if you polled everyone on this forum you will find so many different thoughts on how to treat.

That is what stinks about lyme treatment. There is no perfect treatment for lyme.

We are all guinea pigs. You try this and then you try that. It is frustrating beyond belief and I so totally get this.

My advice is go with a protocol and stick with it. When YOU decide you have had enough, switch to another protocol or LLMD.

You are in charge. It is your body and your choice.
Posted 8/25/2017 3:31 AM (GMT 0)

Purrrsiankitty said...
You can simultaneously treat Lyme and Co-infections with herbals. Many do it.

This is what I'm doing. Bartonella is my main problem and the only one I've tested positive for so that's my principal target but im also treating lyme herbally just to cover my bases, even though i never tested positive for it
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