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Trying to gauge improvements

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Posted 9/30/2017 1:16 AM (GMT 0)
So I'm a little confused right now as far as progress.

Has anyone experienced noticeably recovering with one symptom but another symptom is getting worse?

Or maybe it's even the same symptom but it greatly improved in one area of the body but at the same time got worse elsewhere?

It's hard to get a gauge if things are getting better.

Or should I not even pay close attention to this and just let enough time go by with treatment and assess everything as a whole later?
Posted 9/30/2017 2:15 AM (GMT 0)
Yes! It is confusing. It has me wondering how I will know when things are better or when to stop treatment. Or if they ever all will be. Or if maybe some of my issues are unrelated to Lyme and company.
Posted 9/30/2017 2:42 AM (GMT 0)

dacarte3 said...
So I'm a little confused right now as far as progress.

Has anyone experienced noticeably recovering with one symptom but another symptom is getting worse?

Or maybe it's even the same symptom but it greatly improved in one area of the body but at the same time got worse elsewhere?

It's hard to get a gauge if things are getting better.

Or should I not even pay close attention to this and just let enough time go by with treatment and assess everything as a whole later?

Yes! So frustrating...a little easier to track now that I'm down to under 10 symptoms...instead of Thirtysomething.

I stopped charting my symptoms for over a year now...but am thinking of doing it again.
i do have them listed on paper but I was 'rating' them three times a day everyday.....I found I was too focused on my symptoms...which wasn't good.
Posted 9/30/2017 2:26 PM (GMT 0)
I agree Girlie. When my life was consumed with lyme I noticed my symptoms a lot more. I was constantly writing in my lyme journal everything.

I cut back the focus on lyme and started doing some of my "old" fun hobbies. I paint, crochet, started back being a gourmet chef.

The pains were still there, but if I was busy doing something fun, I didn't dwell on them.

I made the plan to go to my journal once a week and gauge symptoms. Then I went to every 2 weeks. You notice a lot of changes more than doing it 5-6 times a day. Staying busy really kept my mind occupied.

I also would have a symptom drop off and a totally new and bizarre symptom appear. My ears being full dropped off and all of a sudden I had what felt like bugs crawling on my calves. I was constantly swatting my legs. I felt like I had cornered and killed the bugs in my ears and they were retreating to a new hiding place. I just continued the hunt!

There is no rhyme or reason to lyme and I am sure that healing and symptoms stopping is just the same. It will be different for each person.
Posted 10/2/2017 3:10 PM (GMT 0)

PeteZa said...


I also would have a symptom drop off and a totally new and bizarre symptom appear. My ears being full dropped off and all of a sudden I had what felt like bugs crawling on my calves. I was constantly swatting my legs. I felt like I had cornered and killed the bugs in my ears and they were retreating to a new hiding place. I just continued the hunt!

Yes. There's definitely a tug of war going on inside. The body wins and reclaims one aspect of the body or bodily system(s) and the it's like the lyme retreats, moves and hunkers down somewhere else.
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