(No Subject)

I dealt with this a lot when my lyme was at it's worse before I started treatment. I think the biggest thing I did that helped was getting really absorbed in other things. I started writing a novel, read a lot (when my vision wasn't blurry), and I listened a ton of lectures online. All these things I got very invested in and they took me away from the fact that I was on the sofa for months. Some people work on art or do puzzles or watch documentaries.
Also if at all possible, I had some good luck with skyping with friends after they got off work. It didn't require the physical energy, so I got some social time in.
Make sure your also getting outside a little, even now that it's getting colder. It helps more than you'd think.

Hang in there. Sending my love and prayers.

Facey - I cried pretty much daily for many months - maybe even a year.

I still am on the verge of tears many days... although I have a good support system, I still feel 'alone' if that makes sense.

I haven't worked for over 4 years now...the financial strain is weighing on me as well. And the thoughts of this disease being with me for another year....is devastating.

But, we gotta get out of bed each day...and continue to fight this. We'll get there...


Hang in there. I hope the IV abx help with your neurolyme.

Facey said...
I'm so sorry girlie. It's too bad we didn't live n ear one another and could hang out. Most of my friends work and the others think, "oh Lyme, you take the antibiotics for three weeks and done. What's the big deal?" They don't get it and think I'm just being a baby. I get so discouraged and lonely sometimes.

Yes- it's hard to describe what we're going through. I don't even bother anymore - unless someone asks. But then I usually give them the "short version".
I am fortunate that I have a couple friends that understand and have empathy but no one can really "get" what we're going through. It's indescribable really.

Thanks Mer girl I'm so sorry. Are you still in treatment? I hope you have something to give you hope. Sending big healing hugs right back to you. ❤️X

Facey, I just wanted to add to the chorus of voices who have recommended various distractions. I try to get out when I can. I find even engaging with the clerk at CVS connects me to another human being and that's a good thing.

I used to be a prolific reader, but my eyes have been bothering me and sometimes I can't concentrate. If I can't read, I'll indulge in a Netflix series. I've watched more TV this year than in my entire life. There's other things I wish I could be doing, but at times that helps.

And, if you're capable of a brief walk, the fresh air can provide a boost.

I understand how depression and anxiety can further isolate you beyond the physical symptoms. I am trying to hold onto my job and work from home on the days I cannot make it into the office. Yesterday, I left my desk and sat in my car for a bit and cried. My depression and anxiety came on after I treated Babesia. Losing symptoms and gaining others just doesn't feel like progress.

But, I'm trying to stay hopeful. I hope you will, too! Hang in there! Sending you lots of positive energy and healing thoughts.