Success with mycotoxins?

Sorry Mister Mike, I was never tested for mycotoxins. I'm assuming you mean some type of mold?

Bump for more responses....

Denise

Thanks Denise! Great to see you and hope you're doing awesome. Yeah, I make the distinction between mold species like Aspergillus and the mycotoxins they produce such as Ochratoxin A, but they're definitely in the same neighborhood.

Thanks WalkingByFaith! Not sure if you're aware of it, but Great Plains Labs now has a mycotoxins test which at $299 is much cheaper than Real Time Labs. I know any cost now is too much seeing you are not working, but just something for you to tuck away for later.

I'm on Quench (activated charcoal, bentonite clay, chlorella and slippery elm) as a binder and will be starting Bryon White FNG and AV, Detox 1 for mycotoxins. I have cholestyramine but it is with the additives which doesn't do me any favors. I did modified citrus pectin for a while and your comment is a good reminder to add that back in too.

Post Edited (Mister Mike) : 1/5/2018 8:26:51 PM (GMT-7)

Thanks K07! Have you been confirmed to have mycotoxin illness or is that why you're having the neuroquant?

My adh is the only one of shoemaker's tests that my doc hasn't tested for yet, but I assume it is very low due to very frequent urination.

I don't know what my doc's opinion is of VIP. I'll have to ask at the next appointment.

Have you read Dr Neal Nathan's mold and mycotoxins ebook? Brilliant stuff. Only $7.99 on amazon.

Good to know WalkingbyFaith! If you ever need to commiserate or just share info as a fellow "moldie" feel free to shoot me an email anytime!

I definitely have biotoxin illness - either lyme or mycotoxin - hopefully neuroquant will shed some light. I only had high gliotoxin on realtime labs. Have lyme hla gene only.

When i take the desmopressin my urination returns to normal (no going at night) till about noon the next day (take before bed). Then my frequency picks up and I go even more than before. Like every 30 min... So it’s not fixing anything. I think that is what VIP can hopefully accomplish.

I really liked Neil Nathan’s book. I read it when it first came out - I probably should re-read.

Fucoidan as well as Brown Seaweed are known to be helpful for detoxing mycotoxins. I continue to supplement with these daily.

Modified Citrus Pectin was another helpful supplement I did twice in two month intervals at high doses.

Chitosan is also one that I am testing currently

WalkingbyFaith said...

ChickenArise said...
Fucoidan as well as Brown Seaweed are known to be helpful for detoxing mycotoxins. I continue to supplement with these daily.

Modified Citrus Pectin was another helpful supplement I did twice in two month intervals at high doses.

Chitosan is also one that I am testing currently

ChickenArise,

How high a dose of modified citrus pectin did you take? Did you get tested for mycotoxins? If so, did you have followup testing that showed your levels came down after detox?

4g daily, no, and no. So I guess I am disqualified.

WalkingbyFaith said...

ChickenArise said...

WalkingbyFaith said...

ChickenArise said...
Fucoidan as well as Brown Seaweed are known to be helpful for detoxing mycotoxins. I continue to supplement with these daily.

Modified Citrus Pectin was another helpful supplement I did twice in two month intervals at high doses.

Chitosan is also one that I am testing currently

ChickenArise,

How high a dose of modified citrus pectin did you take? Did you get tested for mycotoxins? If so, did you have followup testing that showed your levels came down after detox?

4g daily, no, and no. So I guess I am disqualified.

Oh, 4g is not high dose to me. I've been taking Pectasol-C. Full dose is 15-20g per day. I've taken 5g for the most part, sometimes 10g. I was taking 10g for a while, but lately I've only been getting in two daily doses of binders - 3 charcoal capsules and 1 scoop of pectin.

Sometimes I doubled up, but wow.

I used the Vitacost brand.

I made so much progress with this dose in 2 months. How long have you been taking? The caveat is that I took 4g of monolauren with every dose at the same time. I dont know if this factored in. I have never read that monolauren has any effect on mycotoxins but I was taking it for Borellia/Oral Spirochete.

Although I never tested, my remaining teeth rotted hollow with a cavity at the base. This type of decay is a huge tip off to my version of this disease as many others infected have reported this same pattern of decay.

Most people get cavities at top or side of tooth but if any of your teeth are decaying at the base this is a big red flag.

These are relatively painless cavities because the nerve has already been eaten away by the invader before the tooth ever shows decay. They would be hollow by the time you see decay.

I cannot stress this enough. I wish I could shout it from the rooftops as I dont think it is common knowledge.

I hope you are dividing the doses over the course of the day.

I did a second follow up 2 month course after running out in between. I didnt make as much progress on the second course so it was time to change things up.

Chitosan has been compared to Welchol by some. Fucoidan has the pubmed literature to back it up.

Thanks all for your comments. I'll have to try Fucoidan and Brown Seaweed. Used MCP for a little while before I got the definitive diagnosis of mycotoxin illness, but my doc has put me on a product called Quench which is a combo of activated charcoal, chlorella, bentonite clay and slippery elm, so I quit the MCP. May have to alternate that with the Quench though seeing folks have good results with it.

Just thought I'd update my response on this thread. My mother and I both finally got retested with Realtime labs for mycotoxins. I took cholestyramine for 11 days and have been on modified citrus pectin (usually 5 grams per day) since last May. My mother took Welchol for one month and recently got back on it (maybe 2-3 weeks).

My total results are now negative. Mom is still positive. We lived in the same moldy house and have been in the same alternate house for the past year and a half.

Interestingly, comparing my results with hers and comparing our retest results with our initial tests, it is evident we are simply being exposed to a different group of mycotoxins in our current living environment compared to our house. I had an ERMI done on the house we have been staying in. Total ERMI was 3.43 and HERTSMI-2 was 4. (HERTSMI-2 in our moldy house was 10.)

I recently had my TGFB-1 tested again. Three months after moving to the house we're in now, it was normal ar 1,481. This was a couple weeks after taking some cholestyramine. Two months after that it was up to over 4,000. I had been in a moldy dentist office right before thise labs were drawn, so I assumed the elevation then was from that exposure. When I tested again this February it was over 17,000. I was shocked. I don't really know what happened.

Possible explanations:

- mold in ducts is worse and HVAC wasn't running much at the time labs tested normal
- cross contamination mycotoxins on a bunch of furniture and personal belongings brought into the house late last year
- mold/mycotoxin exposure from my car
- is TGFB-1 affected by non-mold toxins???

Getting a Neuroquant MRI tomorrow. Hopefully, it will shed some light.