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If pulsing, Does anyone feel better when ON antibiotics

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Posted 2/15/2018 11:13 PM (GMT 0)
I tend to feel somewhat better when on, even though I have slight nausea and more exhaustion. But it seems like as soon as my break comes, things go berserk. Pain, crushing headaches, etc. I see a lot of posts about people feeling bad when taking abx, or herxing, but it seems like I am the opposite.
Posted 2/15/2018 11:19 PM (GMT 0)
I have read that Dr. J's patients often feel better on the abx than off them.. and when they're on their weeks off...they can't wait to get back on them again.

I have no distinct pattern...which sucks.

I think what it means is when you're 'ON' them, the antibiotics are taking care of the bugs...then when you're off them, your immune system is supposed to kick in and take over.

Sounds like your immune system isn't up to the task yet.

How long after you stop abx do the symptoms come on? Are you getting a few good days?
Posted 2/15/2018 11:42 PM (GMT 0)
Girlie I think I am similar to you...I still havent developed a distinct pattern, except for with the headaches. I tend to write everything down, which is very difficult to go back and analyze, but I do notice that I write less, and tend to say "Not a bad day overall" more so during the weeks that I'm on. When I look at the weeks off, the papers are filled with writing of symptoms ranging from psychological to severe cognitive dysfunction, and pain.

For the most part, my weeks on mostly say "exhaustion, less pain overall, clear headed, etc."

My most recent cycle, I notice that my second of 3 weeks ON, I had one decent day (afternoon mostly) and another so-so day, which means not terrible overall, and several days where I note "less pain overall".

Post Edited (njfillet) : 2/15/2018 4:47:26 PM (GMT-7)

Posted 2/15/2018 11:44 PM (GMT 0)

njfillet said...
Girlie I think I am similar to you...I still havent developed a distinct pattern, except for with the headaches. I tend to write everything down, which is very difficult to go back and analyze, but I do notice that I write less, and tend to say "Not a bad day overall" more so during the weeks that I'm on. When I look at the weeks off, the papers are filled with writing of symptoms ranging from psychological to severe cognitive dysfunction, and pain.

For the most part, my weeks on mostly say "exhaustion, less pain overall, clear headed, etc."

Well it does sound like you have a pattern - somewhat better when you're 'on' the abx.

I try to go back and decipher my notes..and I can't make anything useful out of them...no trends at all.
Posted 2/15/2018 11:51 PM (GMT 0)

Girlie said...

Well it does sound like you have a pattern - somewhat better when you're 'on' the abx.

I try to go back and decipher my notes..and I can't make anything useful out of them...no trends at all.

Hah, I agree, most of my days I have arrows pointing to "Wed cont'" and just every ailment. At the end of my most recent cycle (3rd week ON) Thurs Feb/8 - today are all over the place, literally filled with extra papers taped in because I ran out of room.
Posted 2/16/2018 1:57 AM (GMT 0)
I was feeling better while on abx until I added Mepron, which can make me feel pretty crummy. Threw off my pattern and now it's all mixed up.
Posted 2/16/2018 12:05 PM (GMT 0)
same here, I have no distinct patterns through my two weeks ON and three weeks OFF schedule. Only issue I have observed is 3 or 4 days into my ON ABX protocol I have some minor sx flare or herx.
Posted 2/20/2018 3:14 PM (GMT 0)
I'm about finished with my Dr J protocol. I'm about at the 13 month mark and while I feel a little better it's not much. My big issue is brain fog, if I could get rid of that I could handle any other symptoms.

My experience is actually the opposite of most of you. I usually feel horrible when I'm on them. a few hours after taking them I don't feel as bad but iv'e always hated being on them and always look forward to my off weeks. Not to say I feel tons better on my off weeks but I never looked forward to getting back on them.
I'm actually meeting with my dr in a few weeks to look at other things that may be wrong with me. We have started focusing on mold. I've been taking cholestyramine the last week or so. I think it may be working some? who knows it's hard to tell at this point.
Posted 2/20/2018 6:36 PM (GMT 0)
Joe - are you seeing Dr. J in DC?

You mentioned the mold focus...and that doesn't sound like that Dr. J.
Posted 2/20/2018 6:47 PM (GMT 0)
No I'm not seeing Dr J. There is an LLMD that went to learn Dr J protocol and she follows it to a T. One of the NP there has really started focusing on mold so I'm going to revisit that.
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