The maybe not ALS journey

Yes!
Actually ever since I was diagnosed with "ALS" I have been doing a lot to detox myself. The neurologist had said that detoxing and anti-oxidants are important with ALS as well...hmm go figure. Hopefully since I got a somewhat early start on it my Herx will be minimal...wishful thinking, we will see.

Thanks, but I can't take full credit. My wife and friends have been a huge support and have done a ton of research.

jonny5,

There's multiple reason why lyme can cause nerve damage thus ALS like symptoms.

For me I researched Acethycholine and how that is related to nerve health and muscle/nerve communication and signaling. A neuro toxin that lyme creates is known to excessively breakdown or inhibit ACE.

For me at least this was the major reason for the ALS like symptoms and I know this because when I treated this process it halted and I gained back muscle mass and strength.

Feel free to do your own research on it.

I can't gurantee that is what is going on with you specifically but we do know that this problem occurs with people with lyme. So it can't hurt to give it a try and see if that is in fact going on with you.

Protocol:

1. Alpha GPC choline - which is simply supplementing more choline to make more Acethylcholine
2. Huperzine A (Chinese club moss) - it inhibits ACE breakdown by the lyme neuro toxin
3. EGCG - helps huperzine A work better
4. Fish oil - helps huperzine A work better plus all the other health benefits.

God Speed.

Thanks again for the info guys! I will check it out and consult my LLMD.

I'm 4 treatments in and the biggest thing I notice is the increased pep every morning. I was actually outside working on one of my cars for about 6hrs yesterday. I was exhausted that night, woke up this morning with the same increase of energy. I am sore, but that's because I haven't used those muscle like that in a while.
Today my arm twitching is also milder than it has been.
I haven't really had any herxing, basically a headache and from time to time I get some hot flashes.

Are you still only taking the one IV antibiotic? Or has something been added?


If you're not taking anything for Bartonella, it could be that the atrophy/finger issues are related to that.

Jonny5 said...
Yes just the one antibiotic.

You need to discuss adding an oral antibiotic to your IV.

get houttynia asap fort the bart myco !!!! and royal bee jelly (get fresh )is the highest source of acetlycholine on the planet!