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Posted 5/6/2018 6:04 AM (GMT 0)
Hi, I'm looking for help, have late stage symptoms... parasthesia left leg, feet feel like walking on glass shards. can barely walk, lower back pain, hips, pain...knees pain, ankles pain, inflamed joints, you get what I'm saying.. is doxy 100x2 per day and flagyl x2 per week enough? what are the natural products I should be trying? Thanks in advance.
Posted 5/6/2018 6:35 AM (GMT 0)
Hi LovestheLord - Welcome!

Sounds like you may have the coinfection - bartonella as well. (feet feel like walking on glass) - as well as the paresthesia - could be bart (or lyme)


No, the doxy dosage is low - it really should be 200 mg twice daily.
And what is the flagyl dose on the two days you take it?


Is this a Lyme literate Dr. you're seeing for treatment?
Maybe he is planning on increasing your dose of doxy and adding in another antibiotic in a few weeks?

Some herbs that are good : Japanese Knotweed.
I also like Hawthorne - to protect the heart and blood vessels.

We do encourage our new members to look through the information contained in the thread: "New to Lyme?..Start Here!" It's packed full of useful information.

BTW - are you detoxing? The detoxing helps flush out the toxins that accumulate from the die-off of bacteria. This causes inflammation and can result in an increase in your current symptoms plus new ones appearing.

Some ideas:
- Drink lots of water
- Take warm epsom salt baths
- Dry brush your skin prior to baths and showers
- light exercise
- Take something for the brain: Nutramedix Pinella nerve/Brain cleanse or Jernigan's Neuro-AntitoxII CNS/PNS
- lymph massages
- take a binder (a couple hours away from your herbs, vitamins, antibiotics...food)
Posted 5/6/2018 6:42 AM (GMT 0)
No the Dr. is not very good, he said He does not even think I have lyme but he'll give me the pills anyway. well, after the 2nd and 3rd day of doxy I had to skip a day because I had the flu, sweating, aching...symptoms came on stronger than ever, legs felt like the muscles are tight and getting pulled apart...not very fun...the flagyl I was going to do 250, It seems like I'm loaded with this stuff, I just want to get rid of it asap
how does one take these herbs? I am completely ignorant about what to do! thanks for your help so far though!
Posted 5/6/2018 6:44 AM (GMT 0)
I'm going to try to find that post you recommend smile
Posted 5/6/2018 7:05 AM (GMT 0)

LovestheLord said...
I'm going to try to find that post you recommend smile

It's a thread that sits on the top of Page 1 of this lyme forum.


I recommend you find a Lyme literate Dr. to continue to treat.

You can start a new thread: "Looking for LLMD in/near_______" and fill in the blank with your location.

You can also contact me via email and I'll check my list of LL Dr.'s and send you names.

To email me - click on the envelope under my screen name on the left hand side of my post.

You can purchase the herbs online - I buy mine from either Woodland Essence or Sage Woman herbs.
They are in tincture form. Then you just put some drops in a 1/4 glass of water and drink it.

Japanese knotweed is a very good herb - it has a lot of properties: anti-inflammatory, anti bacterial, anti-viral, immunomodulant, vasodilator, etc

You will want to start the JK with just a couple of drops per day...and slowly build up ....you can increase every few days and work up to taking it 3X day.

Woodland Essence:

/woodlandessence.com

You can also get the herbs from Green Dragon Botanicals.
But, I think the Japanese knotweed is only available in capsule form there.

greendragonbotanicals.com/products/lyme-related-herbs/
Posted 5/6/2018 7:14 AM (GMT 0)
The Dr. I went to said there were a bunch of people just obsessing about lyme on the internet...going overboard, thinking everything is lyme, etc. I was shocked he gave me the doxy... he gave 100 mg 2x per day for 3 mos. so if I start doubling it, I will basically have a month and a half of it... He is going to feel quite stupid when he finds out the truth about lyme.
Posted 5/6/2018 7:25 AM (GMT 0)

LovestheLord said...
The Dr. I went to said there were a bunch of people just obsessing about lyme on the internet...going overboard, thinking everything is lyme, etc. I was shocked he gave me the doxy... he gave 100 mg 2x per day for 3 mos. so if I start doubling it, I will basically have a month and a half of it... He is going to feel quite stupid when he finds out the truth about lyme.

I doubt that he and all the other Drs who are in denial will ever admit it.
It is criminal - the suffering Lyme patients have endured.

I was diagnosed in 2014 and sadly not much has changed.

I am fortunate to have a Dr who accepts my diagnosis and supports the treatment that my LLMD prescribes.
But, I wonder if/when her attitude will change.
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