naltrexone

Kirky98 said...
Anyone try this?

I just put ( "naltrexone" AND "lyme" ) in the search box (without the parenthesis) and there are over 100 matching results.

I tried it - before I knew I had lyme. I was grasping at straws...and had so many symptoms, and I stumbled upon it when I was up late googling.


It didn't work for me. In fact when I took it...I ended up with pain at night - waking me up...which I never had prior.
Many people have good results though.

You know that you should start at a very low dose - like 1.0 mg or 1.5 mg...and slowly titrate up until you feel better.
(can't remember if the top dose is 4.5 or 6.0 mg)

Apparently if you have trouble taking it at night, it can be taken in the morning instead.

I never did try that.

I just started it this week. I think I started it too high. I did 2mg. I did not feel great for two days. I could not sleep either. I am going to lower the dose to 1mg. But until I get them I'm going to take the 2mg every other day and see what happens.

My nephew is a pharmacist in a compounding pharmacy and all the pharmacists there swear by this. They have some lyme patients and they told me that their lyme patients feel really good on ldn.

I'm on a FB lyme page too and there are some people who say this was a game changer for them and other people said it did nothing. Any complaints were just the insomnia issues. You can take it in the morning if it causes sleep issues for you.

Like anything else, what works for one might not work for another.

If possible, I suggest starting with 0.5 mg and increasing slowly.

(I have 1.0 mg bisected tablets from a compounding pharmacy.)

Currently, I take 2-3 mg at bedtime. But, I started with 0.5 mg and increased by 0.5 every seven days. Initially, I went to 4.0 mg, but felt better around 3.0 mg.

Whatever you choose, I wish you good luck.

aphysicalwreck said...
Dude:
Do you feel ldn has helped you? Also did it upset your stomach at all?

Hi, aphysicalwreck:

The only benefit that I've been able to confirm is that it helps my sleep. While it's not a sleep medication, per se, I stay asleep longer when taking it. It has not caused me any stomach upset.

Each time I've stopped taking the Low-Dose Naltrexone (LDN), within a night or two, my sleep gets worse. Within a night or two of resuming it, my sleep seems to improve.

My sleep is far from perfect, but the LDN helps.

Initially, just the 0.5 mg dose helped me sleep. But, rather than staying at that dose (which I wish I had done), I kept increasing each week, aiming for the 4.5 mg dose that my LLPA suggested. She stated that, at the upper end of that range (up to 4.5 mg), the LDN can actually cause inability to sleep. So, people can either: (a) try lowering the dose before bed, or, (b) take the higher dose (not to exceed 4.5 mg) in the morning. She seemed to think that taking it at bedtime was preferable.

(It would likely help me more, if I didn't stay awake so darn late.)

Currently, the things I use to help me with sleep are:

* 2-3 mg of Naltrexone
* Low-Dose, Extended-Release Melatonin (/www.amzn.com/B00CDABRUW)
* "Deep Sleep" herbal supplement (/www.amzn.com/B000Q3DORC)
* (Sometimes) 1-2 tsp. of "Natural Calm" magnesium powder (/www.amzn.com/B000OQ2DJQ)

I realize you didn't specifically ask about sleep, but, maybe the information will be helpful to you or others.

Best wishes,
The Dude

I just started it. I feel really irritable and easily aggravated. Yikes!!!!

I started with 1 mg compounded capsule this morning at 7 A. M., by 1 P.M. started to get very moody and irritable. The agitation really peaked at 2:30 P.M.

I'm feeling back to normal now at Eastern time 7:45 P.M.

I will take it tomorrow at bedtime instead and see what happens.