HealingWell
Search Close Search
☰

Symptoms coming back...

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 6/19/2018 9:45 AM (GMT 0)
As of now I have been on treatment for Lyme and Bartonella for 4 and a half months, about a week ago i genuinely felt a little better both physically and mentally. The tingling/ pins & needles sensations in my body calmed down a lot, and my joints stopped cracking as much. My depression was also getting better I feel, and I was sleeping better.

But now this week I feel worse again, tingling/pins & needles in my body is back.. my joints are cracking again and my depression is worse again and now I have sleep issues.

So I really have to wonder if this is a herx/flare up? Or did my treatment stop working? Did anyone else here experience this during their first months of treatment?

Post Edited (TheJay) : 6/19/2018 6:00:31 AM (GMT-6)

Posted 6/19/2018 11:07 AM (GMT 0)
yes, its a long struggle of slow improvements and frequent set backs. Symptoms overlap greatly so it very difficult to say if its one disease flaring up and becoming dominant or a herx from beating down another.

I had thought that I had beat down lyme years ago and was just struggling with Bart, BLO or Proto, but increasing my pulsing schedule from two week ON and two weeks OFF up to 4 weeks OFF, I would get increase return of symptoms that had to be Lyme related due to its longer replication time than Bart.

It took a real long time to figure this out. If it were easy there would be a cure by now.

Post Edited (tickbite666) : 6/19/2018 5:26:15 AM (GMT-6)

Posted 6/19/2018 3:55 PM (GMT 0)
Hang in there Jay. The ups and downs are normal but really suck. Just when you think "hey I'm finally getting better" you relapse. It's an extremely frustrating and cruel roller coaster ride. Take advantage of the good times and take comfort in knowing the bad times will eventually pass. This has been happening to me during the entire 13 months of treatment I've had so far.

Good luck
Posted 6/19/2018 4:32 PM (GMT 0)
Hi Jay,

This is entirely normal. Everybody's experiences will differ. My last few years of researching and being apart of Lyme communities has taught me some people only treated for a year until they went into remission and some people have been dealing with what you described for decades. Personally, I have been dealing with what you described for three years. I had to learn to change my mindset. I used to get very excited when I started feeling well thinking I was turning the corner and then I would get very depressed when I would inevitably go through a rough stretch.

I had to change my mindset to remaining as optimistic as I can day to day while also staying realistic that a rough patch is coming. I love Dr. Bill Rawl's passage on this in his book Unlocking Lyme. He says "Every day isn't going to be great, and some days are going to be awful. There will be setbacks and relapses. Every time it happen, you must gather resources and start moving forward again. Strive to make every day better than the last"

For me, that has been key. When I start feeling bad it is real easy to sulk and stop doing the things you need to do to feel functional such as taking correct meds/supplements/herbs. diet, detox etc. You have to remain present and do the right things.
Posted 6/21/2018 2:01 PM (GMT 0)
My llmd described it to me as a climb up a mountain - as you make progress you will fall a little bit back down each time but as long as you don't fall all the way back to the bottom, you are making progress.

Its a long slow journey. I have found over the years that watching your diet and never exhausting yourself really makes a difference.

Best of luck.
Posted 6/21/2018 4:38 PM (GMT 0)

springsjean said...
My llmd described it to me as a climb up a mountain - as you make progress you will fall a little bit back down each time but as long as you don't fall all the way back to the bottom, you are making progress.

Its a long slow journey. I have found over the years that watching your diet and never exhausting yourself really makes a difference.

Best of luck.

that's a good way to describe it.
✚ New Topic ✚ Reply