CPET test for exercise intolerance

Aerose91 said...
I have really severe exercise intolerance, it's one of the hallmarks of this disease for me. One of the reasons i have the brain damage that i do is because i overexerted in the beginning, not knowing exercise intolerance was a thing. I never had that test, i suppose because it was so obvious that exercise intolerance was an issue for me. I always thought that was a symptom specific to M.E. but since seeing Dr M, he diagnosed my intolerance as a symptom of mast cell activation. I think he's correct because my tolerance for energy expenditure goes up in good environments.
CIRS can also cause this due to lack of oxygen and i believe babesia does as well.

Aerose91 said...
SPECT scan. Yes, from walking up a flight of stairs in the NYC subway to see a doctor 4.5 years ago.
Overexertion always hits me at night and 2-3 days after the exertion. It will hit me instantly like i got struck by lightning; burning, searing pain body-wide, shaking, psychosis, panic attacks, hallucinations, et all. It really is a serious acute episode. My parents, who i lived with at the time said they would wake up because i was talking nonsensically to friends of mine who are dead while drenched in sweat, flailing all over my bed.
Once the sun comes up, these symptoms fade but im left with whatever increased dissociation, memory loss and decreased ability to feel that my brain now has. I didn't know initially that these episodes were caused by energy expenditure but since i learned that, I've been more aware of my limits- no stairs, no standing for more than a couple minutes, no heat, no loud noises, no getting excited (cognitive energy expenditure counts, too) no arguments, no long conversations etc..
Unfortunately, the results of the first few major overexertion episodes have been permanent. For 4.5 years anyway