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Bartonella and muscle rigidity

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Posted 7/17/2018 5:59 PM (GMT 0)
Last November i was diagnosed with Bartonella and Epstein Barr. One of my presenting symptoms were muscle stiffness and pain, especially upon waking. As a 31 year old at the time (now 34), I thought this was odd. As I've been treating, my muscles seem a little better, but to me the most odd thing is that stretching always makes it worse. I found this out doing a yoga video and going to PT about a year before being diagnosed. The PT told me I was stretching too much and to try and stop stretching for awhile. It immediately helped. I was probably excessively stretching because I was so tight all the time and it relieved pain while I was doing it, but the next day or two days later it was back to throbbing tightness and pain (back, neck, hips). I pretty much avoided most forms of stretching ever since then but lately I've been trying it again to see if anything has changed. Unfortunately I still respond later with feeling even more tight and sore than before I stretched. Has anyone else had this problem and did it ever resolve? I work with a Chinese medicine doctor, and have been treating that way also along with Buhner protocol sometimes. I drink bone broth for collagen but I don't always do it regularly. When I do take collagen or drink bone broth i don't notice a difference in this problem, but maybe if I was more diligent i would notice more difference over a longer period of time?
Posted 7/17/2018 7:16 PM (GMT 0)
I had that which then got worse over several decades. ABX seemed to halt the progression, but it did not go back to normal on its own since muscle has memory and can be tricked into a new normal.

Many methods of myofacial release and trigger point release of muscles and deep tendon pressure work is what helped this condition for me.
Posted 7/18/2018 8:06 PM (GMT 0)
Hi Noelrebecca, welcome to our community.

Sorry you're first post wasn't seen by the Mods yesterday.

Are you currently in treatment for bartonella?
Posted 7/18/2018 9:47 PM (GMT 0)
Noelrebecca,

Hi! I have bartonella, too, and have had some muscle symptoms

I have muscle and joint/tendon stiffness, especially when getting up in the morning or after sitting or riding in a car. I walk all stiff-legged and move like a 90 year old until it eases off some. This is pretty much daily.

When stretching, I have had some strange symptoms that are intermittent and don't happen all the time. When I have it, I feel like I need to move and stretch, but when I raise my arms out to the side, it feels like my muscles and tendons are tearing off the bone, even without doing much stretching.

Now, I get immediate muscle fatigue when flexing my ankles or wrists. Feels like all the cellular energy drains out of my body and I feel suddenly weak for a minute. It also happens if I squat down. I can hardly get back up. I have very weak leg muscles now.

Only once for a 2 week period in 2012, I had MS-like episodes. When I would stand up and start to walk, both my thigh muscles would simultaneously seize up and tighten, and I would nearly fall. After a few seconds, I was fine.

Post Edited (WalkingbyFaith) : 7/18/2018 3:50:18 PM (GMT-6)

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