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New Here! Son may have Lyme. Needing guidance asap

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Posted 7/19/2018 3:39 PM (GMT 0)
Good Morning!

My 23 yos went to urgent care yesterday with chills, neck/back pain, horrible headache. A few days ago, he had uncontrollable chills.

The UC surmised it was tick related because my son had no fever and was hiking in WVA within the time frame where a tick-borne illness would show up. {A few weeks ago.} They gave him Doxicycline 100mg 2x a day for 14 days, ondansetron for vomiting as well as promethazine for vomiting.

I have sent in a request for a LLMD in NC with ILADS; haven't heard back yet. I did get some dr referrals from Lymedisease.org.

Where do I go from here? I read that he should probably have at least 2 months of antibiotics now. Do you think a regular dr would agree to prescribe that?

Thank you for any/all help.
My email option is available if you want to email me.

Blessings,
Beth
Posted 7/19/2018 5:42 PM (GMT 0)
Hi hismama - welcome!


It is better for your son to be taking 200 mg twice daily of doxy.
But good luck getting a NON - lyme literate Dr. to prescribe that.

You have done the right thing - by seeking out a LLMD.

The best chance of knocking this out is treating it a.s.a.p. and with sufficient abx dosages and length of time.

You can start a new thread: "Looking for LLMD in/near____" and fill in the blank.
Members can send you names - as we don't post the names on the forum...for privacy/protection of our LLMD's.



When you call the LLMD office...make sure you say this is a recent infection/symptoms so they can try to get you in a.s.a.p. Put him on a cancellation list if necessary. (sometimes an appt will come up that way)
Posted 7/19/2018 8:10 PM (GMT 0)
Thank you, Girlie!
I also reached out to my dr in hopes that she would prescribe the recommended amount/length of time to buy us some time and to ensure the best possible outcome.
Posted 7/20/2018 2:53 AM (GMT 0)
Hismama,
Well longer antibiotics is needed because you said a few weeks ago, you treat until symptoms reside and then 2 months past that to be successful so my llmd says
Posted 7/20/2018 10:01 AM (GMT 0)
HI and welcome to our forum,

We do encourage you to read our "New to Lyme" start here thread at the top of the page.

It has helpful information on Lyme, symptoms, testing and more.

It would be wise to eliminate sugar, gluten, get plenty of rest, and build the immune system.

Its good that you are catching this reasonably early and make sure to keep treating like Girlie said for 2 months past no symptoms occurring.

Feel free to reach out with any questions you or your son may have.

Take care.
Posted 7/20/2018 8:29 PM (GMT 0)
Hi hismama,

I agree with goshawk about cutting the sugar, gluten, rest, build the immune system. When you can, do light exercises and walk.

It seems most of the natural and mainstream doctors are on the same page with what Donjr said, continue to treat 2 months past any symptoms.

After getting tested and confirmed positive for chronic lyme, bartonella, and babesia, I have chosen to go with natural medicine. I follow Dr. Jernigan's book "Beating Lyme Disease", 2nd edition. It's working well for me. Dr. Jernigan had lyme.

Mainstream medicine was not helpful for me. I understand that this is not true for everyone. My body does not do well with unnatural substances like prescription meds. They do more harm than good for me. I use Dr. Jernigan's remedies that I order from his clinic and they are mailed UPS to me. I've just finished my 2nd month on his remedies, and I'm doing much better already.

Another good point is that this doctor, unlike many I've read about on this forum, does not believe you should experience pain to show you are recovering. He doesn't believe you should be herxing. I completely agree with this.
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