CIRS

Hey everyone so I’ve been diagnosed with Lyme for a short time now and I’m starting to doubt my diagnosis.

When I got sick I had just moved into a new home and it took a couple of days but I’ve been dealing with Lyme like symptoms since. But I notice Lyme & CIRS symptoms overlap but I do have frequent urination which I believe is a mold problem.

I’m the amounts of blood work I’ve recently had the things i have are low cd57, here go DHEA Sulfate; low VEGF, & high C4a & a low msh which is 11 & it’s normal in my ref range but dr shoemakers range I would be considered low.

The other tools used to diagnose CIRS i was not tested for just those things I listed above.

Doing the research I’ve done I’ve read that most of those are due to Biotoxin from mold.

The only thing that I have saying I may have Lyme are the symptoms & band 23 igg. I know that is a Lyme specific band but do any of you think there’s a chance I don’t actually have Lyme & maybe I have a mold problem?

Also, I do not really herx from antibiotics, although I feel worse and better at time during treatment. I do have days where I feel a little better and days I feel more tired.

Also, yesterday I done a tonnnn or research on CIRS & I also took the vision test, I’m not sure exactly what it’s called but I took it and tested positive. I also took a quick for the symptoms & it came back saying it’s almost guaranteed I have a Biotoxin Illness.

I called my insurance to see if they cover the hla gene test & fortuantly they do so when I go back to my Lyme doctor I’m gonna get tested for that gene, & although I should just be patient and wait to take the test I can’t keep my thoughts to myself so I wanted to come to this site & see what you all think about this.

Is there a chance I don’t actually have Lyme? What do you guys think

Post Edited (LLLLX) : 7/25/2018 1:54:39 PM (GMT-6)

I sure hope I don’t actually have Lyme. My symptoms are
Fatigue
Daytime sleepiness
Frequent urination
Depression
Anxiety
Poor nighttime vision
Brain fog
Cognitive decline
Memory loss

Mold toxicity symptoms and lyme symptoms overlap.

Was your lyme diagnosis clinical or did you have a positive test?

From what you said, it is certainly possible that CIRS from mold could be the issue.

Band 23 is Lyme specific, like you said, but it doesn't differentiate past from present infection. It is possible it could be from past infection and that mold exposure triggered symptoms. It is also possible you can have both CIRS from mold and Lyme.

If you can get evaluated by a CIRS doctor who can help sort it out, that should be helpful.

Keep us posted.