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Lyme Disease
Has anyone been diagnosed with lyme with negative blood work according to CDC?
Yes - 100.0% - 1 votes
No - 0.0% - 0 votes
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Posted 8/15/2018 2:56 PM (GMT 0)
So in July I found a bullseye rash on my leg and immediately went to an ID MD that said I was definitely but by a tick despite me never seeing the tick or recall getting bit... I have three large dogs and live in Long Island so it is not that far fetched that I was bit... needless to say, I was treated with Ceftin for 21 days... my most recent blood work All cane back negative except for the IGG 41 which was positive... however acco ding to the CDC guidelines this does not make me lostive for Lyme... since I have been treated I have have developed nausea, neck and upper back muscle pain, and severe headaches... I have a GC of migraines and this is different from my typical headaches... according to the ID MD this is unrelated to the tick bite because my blood work is negative and to follow up with my PCP... I was able to get in to see my neurologist NO yesterday and I am going for an MRI/MRA today... I am pretty convinced this is all related and I am NOT convinced I do not have Lyme disease... my question is has anyone had their blood work been considered negative but actually diagnosed with Lyme? Or has anyone had any similar situations? I can’t seem to find a LLD in Long Island and yes I have registered with ILADS to find an MD in my area with an area of expertise... any experiences shared are greatly appreciated l!
Posted 8/15/2018 3:15 PM (GMT 0)
Hi Dannie, welcome to our community.

The bullseye rash equals lyme disease. Doesn't matter what the tests show...they are highly inaccurate/unreliable.
PLUS - it takes several weeks before your body can build up the antibiodies after a borrelia exposure. You may have tested too soon.

21 days for a bullseye rash is undertreating. 6 weeks minimum according to LLMD Dr. Burrascano guidelines:

www.lymenet.org/BurrGuide200810.pdf

I tested here in Canada and was negative on the IFA (similar to the Elisa) so the WB wasn't even done.

I tested with Igenex in California...and was positive but not CDC positive.

I certainly have lyme disease (plus coinfections)

There are some good options in NYC area - you can send me an email if you like...and i'll send you some names/contact information.

Many of us have had negative tests but DO have lyme disease.
Good for you being proactive and seeking out a LLMD.
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