Help me people that have been floxed.

OriolCarol said...
I still having problems with my tendons, i feel it like cords, painfull etc... Insomnia, cartillage damage of tmj etc...

Is it going to progress to worse and worse and worse and worse¿ it has been one month and a week since i was floxed...

My theory is that if it has damaged my dna and my body cant heal it... Does it mean that if i herx from abx my body couldnt recovery this little damage ¿ dies it mean that i couldn't tolerate abx anymore ¿ all this because two avelox pills..... I think i'm going to die in some months.

It’s not getting worse right?

I think it’s rare that the damage continues after you’ve stopped it.
It’s been over a month now -

I don’t think taking other abx would make the floxing worse - is that what you’re asking?

Thank you Sandy

Yes, Girlie i know this page but if normal people have problems with recovery people like me with two infecciones and genétic conective tissue disorder....

Ive read that all this people have relapses when they take other non flq abx like doxy, bactrim etc.... Do i have to belive them ¿ i'm scared so scared.

OriolCarol said...
Thank you Sandy

Yes, Girlie i know this page but if normal people have problems with recovery people like me with two infecciones and genétic conective tissue disorder....

Ive read that all this people have relapses when they take other non flq abx like doxy, bactrim etc.... Do i have to belive them ¿ i'm scared so scared.

These people - meaning the people in the floxiehope.com site?

sandyfeet said...
I had not picked up on that theme when I read the Floxie Hope site OriolCarol - yes, these people are definitely one time antibiotic users.

So they don’t take any antibiotics of any class ever again?

I have read a few stories on that site but missed that

Bump ... I don't know if its in your finacial capabilities to find iv therapies . But u may not be able to change your dna but you can alter your chemistry quick. "Your genes load the gun ,nutrition pulls the trigger" i saw in a store ....u took 2 doses of essentially chemotherapy. ...even hospitals use iv vitamin c after chemo .
Are you rubbing shea butter on ligaments , lots of omega 3s ,krill oil and glucosamine ...daily epsom salts baths ,coffee enemas. ..just ideas ...
I know what it is like to suffer as much as you are now. ...ur not alone

I have not been floxed. I just wanted to chime in that you do not have to take abx for your infections. I would try sll the things bluelyme talks of and really just focus on detox and repair. I test positive for lyme & bart and I’m really only drinking cistus tea for infections (trying to follow Klinghardt protocol).

You could eventually try some herbs or even liposomal biocidin (essential oils).

OriolCarol said...
Hi k07, i need abx, because i have severe ALS symptoms and respiratory issues that only can be controled with high dose bbb abx. The last time i tried herbs, buhnerr, orégano oil etc.... I deteriorated in only two week that i thought i was going to die.... And nearly collapsed in ER with respiratory failluree.

Is there anywhere you can get IV abx?

I know Dr. J talks about IV abx when someone has an ALS diagnosis.

regarding abx usage as you progress over time and knock down the bug load you can take less qty/frequency of abx hopefully eventually getting to none.

everyone's timeline is different and i mean different for some a few months and they're done forever for others after years of abx they still need to take maintenance doses. we're all so different including what bugs we're carrying around so what works for one doesn't necessarily work for another.

a true unique journey for each of us the key is to never give up and keep plodding along looking for at least small gains along the way.

k07 said...

OriolCarol said...
Hi k07, i need abx, because i have severe ALS symptoms and respiratory issues that only can be controled with high dose bbb abx. The last time i tried herbs, buhnerr, orégano oil etc.... I deteriorated in only two week that i thought i was going to die.... And nearly collapsed in ER with respiratory failluree.

Since it’s that serious I think you need to try iv abx.

i did and had extreme ptsd from my sulfa sjs so it wasnt easy nor cheap but i feel rife and bvt helped me equally if not more . i too had a bs ALS diagnosis ! they said 2-5years to live that was 3yr ago; friggin ducs friggin pharma

iv vitamin c 50 grams would be a good start ..then some iv glutithione will help!...even kill in high doses as it turns to h202 in bloodstream i was told ...

OriolCarol, just wanted to let you know I'm thinking of you. Sending thoughts and prayers your way.

Keep doing everything you can like others suggested, lots of magnesium and vitamin c (iv seems most promising as you can get large doses that absorb better than oral). I'd look into trying different types of magnesium, threonate is supposed to specifically be good for CNS.

If it helps, read through floxie recovery stories for inspiration. People do get better from these setbacks, when we are in the storm it's hard to maintain hope, but in my case reading recovery stories in regards to lyme is what helped me keep the flame of hope alive through the darkest periods.

bump