Update, 2 years treating, 1 year PICC

Disclaimer: I was sick for nearly 20 years before I got diagnosed. I have multiple different coinfections and a busted immune system so if you are new to Lyme, do NOT get worried, we are all different and my journey has been a long time developing so it will take a long time to heal!

I’m still here! I haven’t popped on in ages because over the summer I was feeling really good, like close to remission good, but have since dropped back down and I’ve been in kind of a funk about it.
But I’m still fighting and I know many people come on here with questions about IV antibiotics so here I am!

What really set me back is quite clear. I had been on IV Septra, azithromycin, and oral anti malarial sand was feeling great! Then my dr. Switched me into IV Flagyl to go after persisters and that just opened the flood gates. I was pulled off it and put back on Septra only I was reacting horribly to that now too, plus my white blood cells kept dropping and my neutrophils kept dropping lower and lower. So I’ve been off all treatment for nearly a month now. My white blood cells have been very slow to rise.

I saw Dr. H in the Bay Area for the first time since I’ve been in that practice. He is very kind and compassionate and gave me a lot to consider and focus on. Basically repairing my immune system is top priority. I am on colostrum, shark liver oil, Transfer Factor immune, SBI immune support (bovine immunoglobulin), a mushroom immune blend, an herb for babesia and parasites, a few different homeopathic drops for liver, lymph and gallbladder, lymphomyosot injections for my congested lymph nodes, and a perscription anti fungal... whew! And he had me start the Keto Diet. Whew.

I have a follow up phone appointment with him next week and we will talk about starting up a more focused antibiotic protocol. I think he said Zhang but I could be wrong. Basically it’s shorter courses of very specific combos of three IV antibiotics. My body is not tolerating the longer courses anymore although we are hoping with the diet and supplements that my immune system will wake up a bit.

I will be honest, it’s been very discouraging to slide back so much. I always feel like I’m letting people down. I know that irrational but there we are. I’ve started vaping straight up thc for pain management and to be honest it helps with the dark moods too. It works great for the body pain I get actually, muscle and joint! But it can’t really touch my migraines unfortunately.

My PICC is still serving me well. I developed allergies to chlorahexadine and rubbing alcohol so we just use iodine to clean my skin. But other than the nuisance of weekly home visits from nurses, this PICC is a blessing.

If anyone has any questions about what I’ve been on, PICC lines and IV antibiotics, home health care, PFM clinic, Dr. H or YS, cannabis, Keto Diet, whatever, ask away!

Chick - thanks for posting.


That's great that you were feeling so well....
sorry that you relapsed...but now you KNOW it's attainable...right?

You'll get there again..

ChickNorris said...

Girlie said...
Chick - thanks for posting.


That's great that you were feeling so well....
sorry that you relapsed...but now you KNOW it's attainable...right?

You'll get there again..

That’s exactly what Dr H reassured me with. That I will feel better again someday! So we keep on grinding! you know how that goes!

Dr. H? Are you seeing THE Dr. H.?

ChickNorris said...

Girlie said...

ChickNorris said...

Girlie said...
Chick - thanks for posting.


That's great that you were feeling so well....
sorry that you relapsed...but now you KNOW it's attainable...right?

You'll get there again..

That’s exactly what Dr H reassured me with. That I will feel better again someday! So we keep on grinding! you know how that goes!

Dr. H? Are you seeing THE Dr. H.?

Well, the Dr. H of the west coast! The one with ties to Igenex.

Are you happy with him?

ChickNorris said...

Girlie said...

ChickNorris said...

Girlie said...

ChickNorris said...

Girlie said...
Chick - thanks for posting.


That's great that you were feeling so well....
sorry that you relapsed...but now you KNOW it's attainable...right?

You'll get there again..

That’s exactly what Dr H reassured me with. That I will feel better again someday! So we keep on grinding! you know how that goes!

Dr. H? Are you seeing THE Dr. H.?

Well, the Dr. H of the west coast! The one with ties to Igenex.

Are you happy with him?

Absolutely! And YS at the clinic!

Is that Dr. S H ?
YS is at the same clinic as Dr. H?

(I'm wanting to put a note on my file - that a forum member gave him a good review...)

ChickNorris said...

Girlie said...


Is that Dr. S H ?
YS is at the same clinic as Dr. H?

(I'm wanting to put a note on my file - that a forum member gave him a good review...)

Yes, one and the same. Definitely happy with this clinic.

Thank you - it helps to have some reviews on the LLMD list.