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Why did I feel better missing a day of treatment?

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Posted 11/11/2018 3:52 PM (GMT 0)
While out of town for a couple of days, I missed some of the treatment I have been doing for Lyme and co-infections. A day later, I felt near "normal," - not emotional, no dizziness, back not itching, laughing, etc...

Back to full treatment and all symptoms are worse - very emotional today, anxiety, and other symptoms.

Anyone experience that?
Posted 11/11/2018 4:00 PM (GMT 0)
What therapeutics are you currently on if you don't mind my asking?

Seems like you could be herxing with the meds no?... but it sounds like you are improving your baseline with treatment right?! that would be great news. My baseline is much better now when I'm not treating, but when treating effectively draws out a lot of my core symptoms.
Posted 11/11/2018 4:03 PM (GMT 0)

running wild said...
While out of town for a couple of days

This may be your answer right here. You felt better when you left your home and workplace and went to another environment for a few days. Sounds like you may have mold exposure in your home or workplace. Don't guess. Test. Do the ERMI. Mycometrics is the lab Shoemaker docs use. That's the one I've used. Search the forum under ERMI and read my other posts.
Posted 11/11/2018 4:09 PM (GMT 0)

WalkingbyFaith said...

running wild said...
While out of town for a couple of days

This may be your answer right here. You felt better when you left your home and workplace and went to another environment for a few days. Sounds like you may have mold exposure in your home or workplace. Don't guess. Test. Do the ERMI. Mycometrics is the lab Shoemaker docs use. That's the one I've used. Search the forum under ERMI and read my other posts.

That's a good point. It'd be interesting to see if runningwild stopped meds while home if they'd still get the same relief as they did while they were out of town... maybe a little experiment worth trying, if they don't get the same response it could be a strong indicator that home/workplace may be a factor in symptoms.
Posted 11/11/2018 4:17 PM (GMT 0)
Will test to be safe. i have gone out of town several times (on trips with cross country team) and not felt better. The difference was, this time, I backed off treatment for a day. By mid-day I felt like a different person.

Not saying stopping treatment is the answer or mold is not involved. Just doesn't seem to be a coincidence as it was the best I have felt in months.

Treating with Cryptoplus, another supplement called BLT, cordyceps, sida acuta. When I started back on a low dose of zithromax, felt worse. Have not taken it for a couple days. Did start back with 1.2 mu of Bicillin yesterday.

Maybe not enough detox also? It felt so good to not be so emotional and worried for most of a day and evening.
Posted 11/11/2018 4:32 PM (GMT 0)
Ah interesting! yeah I'd keep trying to find the most effective detox methods for yourself and implementing those. What are you doing for detox?

I find that when I'm burning out on treatment (too much herxing for too long), the breaks are helpful just to help my confidence because it lets me see that my baseline is pretty solid, plus feeling stable is mentally helpful. The break is like coming up for air, giving me the wherewithal to dive back down into treatment. Imo a large part of getting better is figuring the right pacing of treatment for one's personal situation. I've always had to go slower due to major herx sensitivity, others can blast away to kingdom come.
Posted 11/11/2018 5:09 PM (GMT 0)
Same as you, seberg. Treatment for anything has always been a struggle. It can be frustrating because it delays treatment and can cause problems. I've struggled to find a blood pressure medicine that does not cause crazy things to happen. Have had side effects that had me at ER twice, and I only go to an ER when, literally, forced.

Guess it's just how we are built. Thinking about taking another day backing off tomorrow to see if the symptoms back off again.
Posted 11/11/2018 6:21 PM (GMT 0)

running wild said...
While out of town for a couple of days, I missed some of the treatment I have been doing for Lyme and co-infections. A day later, I felt near "normal," - not emotional, no dizziness, back not itching, laughing, etc...

Back to full treatment and all symptoms are worse - very emotional today, anxiety, and other symptoms.

Anyone experience that?

A pattern of feeling lousy on the abx and feeling better off is a 'normal' pattern. I wish I had a pattern...

What would most likely happen...is after awhile being 'off' the abx...your feeling 'normal' would stop...as the bacteria starts to flourish again.
Posted 11/11/2018 10:02 PM (GMT 0)
Agreed. It's a double-edged sword. Feel better, temporarily, then things starting getting worse again over time. Then there's doing the right balance of detox to consider.
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