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Elevated enzyme - Been off ABX for 2 weeks. A bit desesperate...could I have your thoughts on this?

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Posted 11/14/2018 11:22 PM (GMT 0)
Hello all,
I finished 3 months of protocol 1 a while ago. (doxy, clary, malarone, plaquenil, bactrim)
During that time, my enzyme were constantly slightly elevated (in the 60-80 range,normal is between 5-40)

4 weeks ago, I started protocol 2. (mino, clary, alinia, rifampin, plaquenil).
BEFORE adding rifampin, I had to do my bloodwork which came back skyrocket high, so I stopped all meds as instructed by my LLMD.
Here's how things went:
Labs, 2 weeks after starting mino,clary, alinia: ALT 144
-STOP ABX-
Labs, 1 week after stopping ABX: ALT: 206
Labs, 2 weeks after stopping ABX: ALT: 186

After seeing my latest bloodwork (186), LLMD told me to stay off med and ON detox for 2 more weeks.
So basically, I've been off ABX for 2 weeks, and it seems to be taking a LOT of time for my liver to recover. If this recovery is linear, I'll be a friggin 6 months with no ABX... which makes me very nervous.

I've been detoxing like crazy, some stuff I've added from recommendation from members here:
- Detox Powder containing milk thistle at dinner
- Pekana Big 3 (30 drops, sip during day)
- Charcoal and Clay before bed
- Beyond Balance TOX-EASE GL (20 drops 2x day)
- Keto diet, 0 sugar, alcool, carbs, dairy
- Lots of water
- 1 organic green a day
- 1 Alpha-Lipoic Acid before bed
- NAC 1 time a day at lunch
- Vitamin C 3x a day

Is there anything I could do better?
What do you guys think of my situation... I feel trapped.
Posted 11/15/2018 12:07 AM (GMT 0)
I understand feeling trapped. But I wouldn't extrapolate the recovery time based on those 2 data points. You are doing a lot of good things to help the process. Don't think I saw these mentioned, but have you looked at higher dose milk thistle and dandelion tea? supposed to help with liver detox. And as icky as it sounds coffee enemas are also supposed to help in this arena. No matter what, one potentially helpful thought is that you are doing everything within your control to help the situation. I always found that thought helpful when I've felt trapped (and that did happen with a blood test with high liver enzymes, made me feel trapped as well so I certainly relate!).
Posted 11/15/2018 12:46 AM (GMT 0)
What are the ranges of those liver function tests?

Are you taking the Apo- Hepat for your liver ? Is that one of them?

That one worked for me
Posted 11/15/2018 1:00 AM (GMT 0)
I have high liver enzymes as well. I am doing coffee enemas usually daily, castor oil packs, and taking Pure Encapsulations Liver GI Detox. All things my doctor recommended though she said easy on the enemas. So maybe consider any of those. I don't know if/when I'll retest them. Liver problems are common with Lyme especially when you treat with a lot of medicines. (processed thru liver)
Posted 11/15/2018 1:50 AM (GMT 0)
As Sebreg was saying...don't automatically think it will take that long to get the liver enzymes back into range.


I did break for 2 1/2 months. But interestingly....they didn't rise again...even though I was on rifampin and minocycline afterwards.

I think sometimes it's partly due to the infections...and certain antibiotics perhaps. I thought for sure mine would rise on the Rifampin....

I was feeling like you recently with the Persister protocol I’m now on but this time mine were kidney tests...and they don't recover as well as the liver...
I thought I was going to have to permanently stop the persister protocol.
But, they're back in range again...and I'm doing one more shot at it...

So...try not to worry (I know - easier said than done) - and let your liver recover...and then you can go back on treatment....whatever you and your Dr. decide.
Posted 11/15/2018 3:23 PM (GMT 0)
Thank you for helping out.
I will keep my finger crossed that the recovery won't be linear as you guys mentionned the possibilities. smile

Girlie- yes APO -HEPAT is what I'm taking. I'm actually taking Pekana Big 3 (which include 2 other product).

I guess the best tool for liver that most talk about is Milk Thistle, and maybe I would be better to have a specific product purchased for that matter instead of having a unknown dose in my detox powder, taken a dinner.

My question regarding that:
- Can you take too much Milk Thistle? What is the recommended dosage for us?
- When is the best time to take it?
Posted 11/15/2018 3:37 PM (GMT 0)
In regards to milk thistle, I seem to remember hearing an llmd mention you can take up to 1000mg a couple times a day. I'd talk to your doc and see what they say, I certainly wouldn't just take that higher dose right off the bat. Talk to doc, research, and then maybe gently increase milk thistle dose...
Posted 11/15/2018 4:23 PM (GMT 0)
Know how you feel. I've been having slightly elevated ALT levels recently and my Dr. has been ordering me to go do bloodwork every week. Although mine has always stayed in the 50-60s range...I do get concerned too.
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