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3-year old child treatment input please!

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Posted 12/18/2018 2:02 AM (GMT 0)
Hi there,
So my 3 1/2 year old was diagnosed with babs and bartx2, eurlichia about 4 months ago, presumably contracted in utero.

My LLMD has her ONLY on A-Bart, A-Babs and A-L.
I occasionally have her taking 1/2 spoon full of monolaurin (anyone take this?) because I read somewhere on this site that its safe for her. Is it used for biofilm or as an antimicrobial?

My question is that it doesn't seem to be aggressive enough.....Obviously I don't want to bombard her innocent little body with antibiotics, but it just doesn't seem like we're treating aggressively enough.

Should she be on a biofilm dissolver??
(Been giving her 1 spray of Biocidin under tongue (ITS SUPER PRICY to give more than 1 or 2x/day, but if it works, we'll keep doing it). What else is safe for this little age?

Her sleep seems to have improved since the summer (she sleeps with us) and just thrashed around all night pre-diagnosis. She has a pretty mean temper (its hard to tell if its the infections or because I'm really really sick and her home life is totally off....). She's SUPER difficult, not at all how she was a year ago.......

And she still twitches like crazy while at rest (sleeping). Its so hard to sleep next to her because its a constant reminder of what we're both facing. She also has a CRAZY heat intolerance (looses it at the slightest rise in temperature (in the car etc.) and is really constipated most of the time.

What are SAFE and effective things (herbs?) to give her? I know I need to be more consistent about giving her a daily probiotic. I want my baby to grow up as much as possible without these horrible infections.

Is it safe to give her Stevia, Sida Acuda and/or Houtineya tinctures in small quantities? My LLMD seems to think she's doing well enough with the Byron White formulas....and I''m frustrated and worried we're under treating, currently looking for a 2nd opinion.

Please share your thoughts, moms, or anyone else educated in treating children this age (please keep in mind i'm super volatile, worried and hyper sensitive due to my own infections - thank you),

Warmly & may we all be healed in a timely manner,
Sarah

Post Edited (Y o g i) : 12/17/2018 9:15:05 PM (GMT-7)

Posted 12/18/2018 9:48 AM (GMT 0)
Hi so sorry you and your little one have infections, be sure to ask llmd about helping her with the constipation. You want to make sure she is moving the toxins out of her system.

Others will be along with more help. Take care and I wish you both the best of healing.
Posted 12/18/2018 10:35 AM (GMT 0)
I’m so sorry your little girl has lyme and you have these difficult decisions to make.

I’m thinking starting on something that isn’t too aggressive is a good idea.

The probiotics are very important - so keep that on a daily schedule.
Posted 12/18/2018 2:31 PM (GMT 0)
I take monolaurin and I found it to be gentle on my body yet very potent as an antibiotic. Some research would suggest it's stronger than synthetic abx, which is my experience. I would stick with it. It took me 2.5 months of serious herxing to feel like I was on the right path. I started it about 10 or 11 months ago and haven't been disappointed in it. She might be herxing when she has those episodes. It was super emotional for me to go through it.

Also, I started a thread about papaya pills a few days ago. You might look into that as well. They are sweet and chewable and I believe the have pushed me into a new level of healing.

Also, diatomaceous earth has helped me and you can look up the the benefits but I believe it kills the bacteria as well. Plus it might help with constipation but don't over do it. You can sneak it into food or mix with juice/water. You can take up to 2tbls a day as an adult but I only take 1/2-1tsp per day. Best of luck!
Posted 12/18/2018 2:38 PM (GMT 0)
I don’t know about giving tinctures to a 3 year old. Personally, if it were me, I would find an LLMD who has a good record of effectively treating children.
Posted 12/18/2018 2:52 PM (GMT 0)
Is your llmd used to working with young children? if not, if you can, may want to consider finding an llmd who has a lot of experience with that demographic.

The byron white tinctures can be pretty strong and effective. I understand your concerns about wanting to have more aggressive treatment, but she hasn't been on the tinctures too long correct? it can take quite a bit of persistent treatment to keep knocking back the infections. It'd be great if you could avoid pharma abx if possible especially for a young child. But maybe an llmd with a lot of experience would be able to maneuver carefully with more aggressive treatments.
Posted 12/20/2018 3:22 AM (GMT 0)
Thank you all for chiming in...1000Daisies, I eat my words. I didn't realize how strong the Byron White formulas were. I'm totally all for herbs, for some reason when I went on his site the description seemed to be that they simply boost the immune system, so I started to worry that we weren't doing enough.

Out of default I have been tapering down (or eliminating because I'm almost out of them), and my daughter's stormy fits seemed to have mellowed; either that or she's just having some easier days. I'm now thinking I was giving her too much of A-Bart (10 to 15 drops), the same for A-Babs and A-L complex.

Another note, anyone with manolaurin experience? Would these be safe to give to her? I've been giving her about 15 every once in a while.
Elvin, could you please tell me more about the papaya pills - what exactly are they called? Sounds like they worked for biofilm??


1000Daisies - do you mind me asking when your kids became sick, how you knew and how long they've been on treatment?

I'm a 1st time mom and I'm trying to calm myself that we can knock this out soon since she is so young.

~Sarah
Posted 12/20/2018 1:43 PM (GMT 0)
The papaya apparently has enzymes which digest protein. Some say the reason lyme sufferers have thick blood is because fibrin (protein) builds up in the blood. Some people think that the infection can hide in fibrin.

Also, papaya itself has antibacterial properties and the seeds are anti parasitic. I'm not sure what the action of it is but it has dramatically decreased my twitching and other symptoms. I'm taking about 4 per day right now. The brand is the Whole Food "365" store brand.

Monolaurin is very gentle in my experience. It is present in mothers milk. It's a medium chain fatty acid that dissolves the certain parts of the bacteria to kill it. It's also antiviral and anti parasitic . I've had nothing but good effects from it, aside from wicked herxes. Some people get loose bowel movements from it which I haven't experienced, but I was constipated anyway.

I'm pretty much at 98% these days and i'm hopeful it will continue. I would think you could give your child 1/2-1 teaspoon per day. Adult dose is 3 teaspoons. I use Inspired Nutrition brand from amazon but a lot of people use Lauriciden brand, not sure if there is a difference.

You might also check out MSM and some of the sulphur containing supplements. Also, diatomaceous earth.
Posted 12/20/2018 3:22 PM (GMT 0)
Monolaurin was not gentle on me. It can cause a herx.
Posted 12/20/2018 3:38 PM (GMT 0)

Y o g i said...
I didn't realize how strong the Byron White formulas were. . . . . Out of default I have been tapering down (or eliminating because I'm almost out of them), and my daughter's stormy fits seemed to have mellowed; either that or she's just having some easier days. I'm now thinking I was giving her too much of A-Bart (10 to 15 drops), the same for A-Babs and A-L complex. . . . .

I'm a 1st time mom and trying to calm myself that we can knock this out soon since she is so young.

What I’m about to say may sound harsh and blunt, but I’m going to say it anyway. Suffering children are a sore point for me because I was one.

1. Herbs are POTENT and POTENTIALLY DANGEROUS medicines that should be respected every bit as much as pharmaceutical drugs. Don’t think that just because something is “natural” that it’s harmless and can be used carelessly.

2. “Her stormy fits mellowed” - Your poor child has probably been having a heck of a Herxheimer from the BW formulas.

3. “Trying to calm myself” - I know you think you are being aggressive in order to “help” your child, but it’s not about you or calming your anxiety. It’s about the poor kid. I don’t care how young she is, treating Lyme/co is never a race against time. Please do not hurt your child worse than she already hurts trying to hurry this treatment job up.

4. Please consider getting a professional to guide you in treating her - LLMD, qualified herbalist, whatever. A child that young can’t communicate what they feel and experience. I don’t think it’s a good idea for parents to try and wing it with a child that age. You could do more harm than good.

That’s my strong opinion. Do whatever you want with it.
Posted 12/20/2018 10:36 PM (GMT 0)
WBF,

Please don't comment on my posts anymore. You're extremely rude and have no idea what my family is going through. Your rude comment doesn't illicit a response.

1000Daisies, thank you for being kind.....I am working with an LLMD, who put my daughter on the BW formulas, up to 10 drops each 2x day. What I was trying to communicate is that its very difficult to tell if the infections themselves are causing the turmoil in our daughter or if its the age.....like I said I'm a first time mom seeking help for my child while extremely ill myself.
Posted 12/21/2018 2:29 AM (GMT 0)
Yogi,

I apologize for the harshness of my post and for misinterpreting the situation. The specific post I responded to gave me the impression that you were treating her with herbs solely on your own and were being aggressive in trying to treat her fast and hard. I had forgotten all the details of the initial post, as I did not re-read it before responding to the comments further down. I am sorry for hurting you and hope all of you will find an effective treatment protocol that minimizes symptoms while whittling down the infections.
Posted 12/21/2018 6:06 AM (GMT 0)

Y o g i said...
WBF,

Please don't comment on my posts anymore. You're extremely rude and have no idea what my family is going through. Your rude comment doesn't illicit a response.

1000Daisies, thank you for being kind.....I am working with an LLMD, who put my daughter on the BW formulas, up to 10 drops each 2x day. What I was trying to communicate is that its very difficult to tell if the infections themselves are causing the turmoil in our daughter or if its the age.....like I said I'm a first time mom seeking help for my child while extremely ill myself.

It must be very difficult trying to decipher what is a herx..with a young child. It's difficult for me to decipher what is a herx at MY age!

I think, when in doubt....consider it a herx...especially if its long-lasting.....and back down the dosage of the herbals.
Of course talk to your LLMD about this.

Hope things start to settle down soon for your daughter. (((hugs)))
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