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Myoclonus--body and limbs

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Lyme Disease
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Posted 2/12/2019 6:28 AM (GMT 0)
I know to an extent, falling asleep, this is normal. I was in bed listening to calming noises, getting tired, the a whole body spasm. Which I've had before.
During the day sometimes I'll have limb spasms.
Is this normal? Is this lyme and cos?
I'm freaking myself out... I'm afraid to fall asleep.
Posted 2/12/2019 2:43 PM (GMT 0)
I used to get them a lot before I started treatment. I haven't had one for over a year now (since about my second month of abx). My myoclonic jerks were often my arms randomly jumping off whatever they were on desk/ bed/ lap. Sometimes my legs would jump a little too.

They always seemed to be around more when my twitching and other symptoms were flaring.

In my case I believe they were caused by TBI's.
Posted 2/14/2019 2:35 AM (GMT 0)
Someone else told me it may be bartonella. I've been treating for 2.7 years and nothing. I had them b4 treating, off and on. But I thought they were normal. I know the one when falling asleep is normal usually.

And forgive me...what is TBI? Brain injury?
Posted 2/14/2019 3:17 AM (GMT 0)
TBI = Tick Borne infections
Posted 2/14/2019 3:06 PM (GMT 0)
As my health was falling apart mysteriously and symptoms were getting worse and worse, that is when i started having the jumping limbs.

Luckily, I responded well and quickly to antibiotics. After about 8 days on antibiotics I did not have another myoclonic jerk since. So I am going on about a year with not a single myoclonic jerk. Prior to treatment I had them daily for 3-6 months.

Pretty conclusive to me that they were related to infections in my case.
Posted 2/15/2019 3:11 AM (GMT 0)
I get those jerks quite often as well. Especially while trying to fall asleep. I also believe that it's caused by Lyme and co- infections. Definitely considering I didn't have any jerks prior to Lyme. In my case I've noticed that while taking Sida Acuta and other herbal my jerks are lessened. So could be Bart.
Posted 2/18/2019 4:45 AM (GMT 0)
Interesting. I'll bring this up to my doc. I'm suspected of having bart and babesia.Also have heavy mold illness.
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