Always French and always in the dark side

Hello.
So I am in treatment for bart and lyme with bicillin shot (2,4 mui /week), tetralysal and rifampin. I tried to take 600 mg of rif but I went totaly crazy after two weeks so I am stuck with 300mg once a day. All this for nearly 2 months.

I am sick since nearly 3 years and tried a lot of various treatments but couldn t follow them long time ( it is hard to find a good llmd in France).

So I found my llmd in december and I trust him. He is the first which found tgat I have a CIVD ( low igg). I began the SubQIg last week and had my second infusion yesterday.

But after 3 years of various treatments, I am far worse than before to do anything, the neuro symptoms are a lot bigger, i am extremely weak and my back is a total crap, all the muscles are spasmed, every days, and nothing seems to help, massages, trigger point therapy, yoga ( very light), stretching, all make it worse.

I deal with a lot of anxiety ( I take 0,8 mg of klonopin a day for then neuro pain, and lyrica) and depression.

I have read the book "toxic" and began to adress a possible mcas with claritin.

My doc told me about dapsone, I wanted to know if someone had good results with it. And if my 300mg of rif can hit a little the bart. I had an urinary infection last sunday, I took one bactrim DS, and a few hours later I had a wonderful scratch mark on my abdomen...

So, to do it shorter, I need some help and support because I always doubt to be on the right track with all these horrible symptoms that are always worse with or without treatment, detox etc...

And Bluelyme, do you know how we can find bees if I would try bvt ? It doesn t seem to be simple in France...

Thanks !!!

i will check the aas to see if there is any european practioners . i may need some time to see

Bullekideambule said...
Hello.
So I am in treatment for bart and lyme with bicillin shot (2,4 mui /week), tetralysal and rifampin. I tried to take 600 mg of rif but I went totaly crazy after two weeks so I am stuck with 300mg once a day. All this for nearly 2 months.

I am sick since nearly 3 years and tried a lot of various treatments but couldn t follow them long time ( it is hard to find a good llmd in France).

So I found my llmd in december and I trust him. He is the first which found tgat I have a CIVD ( low igg). I began the SubQIg last week and had my second infusion yesterday.

But after 3 years of various treatments, I am far worse than before to do anything, the neuro symptoms are a lot bigger, i am extremely weak and my back is a total crap, all the muscles are spasmed, every days, and nothing seems to help, massages, trigger point therapy, yoga ( very light), stretching, all make it worse.

I deal with a lot of anxiety ( I take 0,8 mg of klonopin a day for then neuro pain, and lyrica) and depression.

I have read the book "toxic" and began to adress a possible mcas with claritin.

My doc told me about dapsone, I wanted to know if someone had good results with it. And if my 300mg of rif can hit a little the bart. I had an urinary infection last sunday, I took one bactrim DS, and a few hours later I had a wonderful scratch mark on my abdomen...

So, to do it shorter, I need some help and support because I always doubt to be on the right track with all these horrible symptoms that are always worse with or without treatment, detox etc...

And Bluelyme, do you know how we can find bees if I would try bvt ? It doesn t seem to be simple in France...

Thanks !!!

Re: MCAS - I am currently taking Quercetin and it seems to be helping my inflammation (or whatever it is causing my burning nerve pain)

I have just recently completed 6 months of Dapsone treatment. (pulsed schedule) I took it with Daraprim, Rifabutin, Ceftin and minocycline.