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thinking of starting herbs and now found a new tick

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Posted 6/15/2019 1:21 PM (GMT 0)
I've been pulsing abx for about 9 months but after the last round my gfr went to 55 and creatinine hit 1.5. Back pain in my kidney area became my worst symptom and is still lingering after being off abx for 1 1/2 weeks. So I'm looking at switching to buhner herbs.

Then yesterday I found a tick on me, I don't see a bite and the tick appears to be dead. I did keep it and thinking of sending it out to be tested. So I'm wondering if I should take astragulus 3000mg/1000mg a day or do a month round of doxy 200mg twice a day. Or just start up the buhner protocol. I don't think I will have an issue taking the doxy I've done it before and was fine. Just the amount of abx on my last pulsing protocol was to much or the rifabutin,daraprim,septra everyday caused the issues.
Posted 6/15/2019 1:26 PM (GMT 0)
That sounds so stressful! I think with this ridiculous illness it makes sense to be cautious. Personally, if you don't see a bite anywhere after a very thorough check, then I would jam astragalus and ledum palustre (homeopathic) and bolster your immune system in general. But I would avoid the doxy unless you think you have been bitten. That's just me. Good luck!
Posted 6/15/2019 2:47 PM (GMT 0)
Difficult decision - I’m 50/50 - if u knew u were bit - I’d say doxy all the way... but you don’t know.

Then - again - a bite from a tick may not be easily seen

Just an FYI - either dapsone or daraprim caused me gfr to drop and creatinine to go up.
But it normalized each time after a week or two off them each time.
(I did. 6 cycles)
Posted 6/15/2019 7:57 PM (GMT 0)
Trekkar,

Running Wild just posted that his new protocol, which includes a Bucco supplement has normalized his kidney labs after 5 years of being abnormal. Might want to look into this.

https://www.healingwell.com/community/default.aspx?f=30&m=4132840
Posted 6/15/2019 8:23 PM (GMT 0)
What is your daraprim dose, Trekker?

I bet that is the culprit
Posted 6/15/2019 10:38 PM (GMT 0)
Hi Girlie, thanks for the replies, Daraprim was 50mg 1 a day for 5 straight days, on the 5th day is when the herx and pain really kicked in. That was also the 5th straight day of septra and 3rd day of rifabutin. I did have a couple low GFR's before when not on the daraprim or rifabutin just said low not an actual number. And some back pain just not on this level and for this long. Looking back through my notes I had some back pain about 10 months ago when I did a few weeks of rifampin.

Thanks Walkingbyfaith, I'm going to look into that Bucco and some other supplements in that thread.

Thanks Saraeli, I got some astragulus on order for tomorrow but what is that ladum? Is it a paste you rub on or some kind of pill form? I did just find some online in pellet form you dissolve under your tongue is that it?
Posted 6/15/2019 11:38 PM (GMT 0)
Ledum palustre is homeopathic, and used for any sort of bite or sting or puncture. It's easiest to find in the tiny pellets you dissolve under your tongue. (They are made with lactose, so if you are sensitive to lactose or vegan, then the brand Ollois offers it without lactose.)
Posted 6/16/2019 12:17 AM (GMT 0)

trekkar said...
Hi Girlie, thanks for the replies, Daraprim was 50mg 1 a day for 5 straight days, on the 5th day is when the herx and pain really kicked in. That was also the 5th straight day of septra and 3rd day of rifabutin. I did have a couple low GFR's before when not on the daraprim or rifabutin just said low not an actual number. And some back pain just not on this level and for this long. Looking back through my notes I had some back pain about 10 months ago when I did a few weeks of rifampin.


Oh, right you're on a similar protocol that I was on.....Can't remember - you taking the Dapsone, too? (Sorry I'm having trouble keeping track of everyone's protocols - there's a few of us on Dapsone...or Daraprim...or both)

Mine was on Day 5 too. (the herx from he//) I thought it was the D and D...but it turned out to be the Rifabutin in my case.
I'm on Rifabutin now for maintenance without the D and D and I am still herxing - not as bad tho on Day 5.

Oh...Septra and Rifabutin....that would be killer along with the D and D.
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