Relapse? Hot Head Pain, morbid dreams, etc

LymeDontKillMandysVibe said...
I appreciate any and all suggestions or tips.

I have had lyme for 8 yrs and just over a month ago finished treatment, which I did for 4 years. I have had Igenex positive lyme, babesia, and chlamydia pneumoniae

After a blissful month of feeling much better but still following my strict AIP diet, I have begun symptoms I would like help knowing if anyone else has these

1. morbid, gory nightmares (not night sweats) that wake me up crying, screaming and/or hyperventilating

2. sharp, insanely hot pain inside my brain that makes me feel like a vice in squeezing my brain. hot to touch on scalp, only ice helps. will make me so tired I sleep for about 10-12 hrs

3. very yellow fingers and face and under arms. I have previously had liver issues and so taking NAC, milk thistle, sarsaparilla, and Pekanas drainage. Also castor oil packs

4. with overstimulation I get depersonalization and ice pick headaches and agitation

5. bone deep fatigue that sleep doesn’t help

6. low grade joint pain pretty much everywhere

7. sore throats upon waking

I truly have deep fear that I am relapsing.

does this sound like babesia? I haven’t treated babesia yet.
thank you so much

I also have screwed up scary dreams I wouldn't call them nightmares more like they seem very lucid and strange and they feel real. My dreams jump from like dream to dream they're pretty scary and random too. I've had seizures actually when falling asleep and during waking up which started 2 yrs ago out of nowhere along with the bad dreams. One herb I've tried is known to.make this worse like Hawthorne it would tend to make the seizures come out a little more

With me I can only explain it as starting off like I would lay down to go to sleep lights off and feel extremely paranoid as if something or someone was in the room with me I'm not schizophrenic or anything of the sort and definitely not scares of the dark just an over whelming paranoid feeling to fall asleep and the terrible random lucid dreams

I've been having these wierd random tingling in my knee omg and u can really feel.it it's like tingly and numb has anyone else experienced this I got it in the face and cheeks a lot I'm positive it's the lyme

I get numbness in the face a lot. I connect the facial numbness with mold for the most part.

Sometimes I get numbness in my lower legs. Also my right hip and thigh area where I had shingles before. Hands and feet sometimes, especially in the night or when I first get up. I’m feeling numbness right now, but I had a lot of mold exposure today. Chemical exposure can do it, too.

MedicalNerd said...
I came out positive for Lyme antibodies bt not for Lyme IGG on western blot so.doc gv me.some bs that most ppl have left antibodies after years of treatment which I've been bitten by ticks bt HV NEVER been treated for Lyme so how can that be lol my babesia was negative bt if the antibodies r hiding in your red blood cells.its almost negative test every time. And as for bartonella the idiot docs almost always tell me they never heard of bartonella or they dnt know the code to test for it smfh so I self diagnosed and self medicated I had no choice or else I feel like I'd die if I didn't help.myself cuz the docs DNT care. I've been bitten up by fleas cuz r neighbors were gross and had tons of cats and dogs they didn't take care of and ticks can transmit bartonella and I've had several tick bites

I was raised on a farm so I know we have been exposed to bartonella!

ugh it’s so frustrating going to “normal world” doctors. I would look up codes FOR them. 🙄 stupidity and ignorance at its finest

I totally had to diagnose myself too! they said I had CFS, fibro, IBS, arthritis, hypoglycemia, pre diabetes, partial seizures, glaucoma, recurring pneumonia, depression, anxiety, etc etc etc etc etc etc

thankfully I finally got a LLMD but I already knew I had lyme before the test proved it

MedicalNerd said...
I've also notice little itchy hive like bumps appear on my hands fingers arms more. It's like 4 or 5 at a time sometimes just 1?? Very itchy and the sun seems to.make it worse and it's def not heat rash or contact dermatitis it's like a die off or something? Yes I've heard neem does this as well like a die off symptom.

I am so creeped out that U posted this lol. cuz I got these today! i’ve had them before but not for a while!

kind of like hives but more raised and sometimes has a tiny bit of clear liquid. very very itchy. just a few at a time.

WalkingbyFaith said...
I have had wild, scary intrusive thoughts on a number of occasions. Was one of my first symptoms among a host of others and recurred briefly at other times.

Mine were not nightmares, as I wasn’t asleep. They would happen as soon as I turned the lights off, went to bed, and closed my eyes. I also had some very vivid images like ultra HD or something where I could see minute details of a person’s face or leaves on a tree or something. Every time, it was completely random and inexplicable, unrelated to anything I may have been reading, watching on tv, or thinking about. Super freaky. Thankfully, mine have only been a few random occurrences over the years.

I also have had that happen!! usually when i’m toxic or herxing that happens as well as a very detached feeling like i’m floating or. being sucked in by invisible force. Also I often jerk awake feeling like I am either way smaller or else like one part of my body is really huge or growing. so strange!
sometimes I also see bright colors zooming in like i’m in a portal. i totally also legit hallucinate - think someone or a mouse or snake or bug is moving and scream and jump and nothing it there!!! but it looks real as life! sigh. you’d think I was coming off of street drugs!

WalkingbyFaith said...
I get numbness in the face a lot. I connect the facial numbness with mold for the most part.

Sometimes I get numbness in my lower legs. Also my right hip and thigh area where I had shingles before. Hands and feet sometimes, especially in the night or when I first get up. I’m feeling numbness right now, but I had a lot of mold exposure today. Chemical exposure can do it, too.

this is like a huge revelation for me.
my parents house was very moldy (high test results, not just self diagnosed) and when i lived at home with them that’s when my legs would go numb and I couldn’t walk.
my mom has facial numbness in her whole head sometimes and hands! I bet it’s the mold!!!

but totally I agree chemical exposures can set it off! if i am around strong cologne or cleaners my hands and feet and face start tingling!!

thank you so much to this forum for connecting so many dots for me

LymeDontKillMandysVibe said...

WalkingbyFaith said...
I get numbness in the face a lot. I connect the facial numbness with mold for the most part.

Sometimes I get numbness in my lower legs. Also my right hip and thigh area where I had shingles before. Hands and feet sometimes, especially in the night or when I first get up. I’m feeling numbness right now, but I had a lot of mold exposure today. Chemical exposure can do it, too.

this is like a huge revelation for me.
my parents house was very moldy (high test results, not just self diagnosed) and when i lived at home with them that’s when my legs would go numb and I couldn’t walk.
my mom has facial numbness in her whole head sometimes and hands! I bet it’s the mold!!!

but totally I agree chemical exposures can set it off! if i am around strong cologne or cleaners my hands and feet and face start tingling!!

thank you so much to this forum for connecting so many dots for me

It must be a little bit of both Lyme and mold then I remember growing up and my parents house and u know how mold grows around the shower cuz of the humidity it sucks it's like it keeps coming back . I found that bleach doesn't kill it all the way bt vinegar does it's acidity wnt let mold grow. Anyway I remember as a child when I first got sick it was def Lyme now that I look back. Started off with nausea and vomiting gastroparesis is a Lyme hallmark . Headaches and weight loss and my cheeks were so numb the doc says it was all anxiety and back then we didn't know what Lyme was nobody would have ever guessed😓 anyway I remember walking to school in 2nd grade we live 3 blocks away I'd get these stabbing pains in my ribs and just drop to the floor when u take a deep breath it was worse. Then in class my legs would both GT completely numb out of nowhere and I remember just falling down and my legs giving out so my teacher ran over and was like omg r u ok Wt happened. Me being 7 yrs old I was like idk I must have gotten dizzy or weak and my legs just gv out I couldn't explain it at that time I was just a kid. All growing up In HS thought I was having anxiety panic attacks heart palpitations and air hunger. I would leave class immeeiatley and walk around feeling so paranoid and anxious not being able to sit in class I developed this fear of eating in front of ppl even walking past ppl thinking everyone was starting at me and was told I have an eating disorder un ****ingbeleivable 😓 and as for colors seeing colors and spots been seeing them since I was younger an this all started red green blue yellow dots and zig zags zooming around I'd catch them in my hands and tons of eye floaters to this day. Now I take the natural herbs eye floaters have increased

MedicalNerd said...
I've had Lyme since childhood now I'm 26 and just realizing it was Lyme all these years after many tick bites. I may HV had bells palsy I remember sitting in a taxi at 19 yrs. Old thinking it had to with having 2 babies 11 months apart. Boy was I rong.... I remember sweating so bad facial numbness spacing out and when I went to talk just a jumble of words that didnt make sense came out and they're like omg r u alright what's rong. Literally thought I was having a stroke or something

yes... oh my word... yes to everything... and the eating disorder part is so frustrating!!!! I had many doctors tell me I had anorexia because I was 88 lbs and would sit at the table crying for dinner every night and couldn’t eat. but really, looking back, everything made me sick I had all these food allergies I didn’t know about and my body was screaming inside not to eat but everyone around me was like “she just wants to be thinner” and yeah it was a vicious cycle because when I did eat it made me so nauseous I threw up or had liquid diarrhea and so just got sicker because I was eating all these foods I was allergic to! when I found out my allergies- magically I gained weight and began not throwing up or having liquid stool! it was such a horrific anxiety ridden time of life because as a 17 year old I was beginning to question my own sanity and wondering if I had mental illnesses like all the dr said. when I began having neuro symptoms I knew for sure I wS not making this up and began researching and every time lyme came up. it freaked me out I didn’t want to have this disease but the more I researched the more I was like, dude no way..... this is like my whole life story...

MedicalNerd said...
Funny **** I was always able to eat raw fruits and veggies as a toddler .once I was 3 yrs old that's when I had first tick bite was stuck rite in my arm and guess what. Shortly after tick by became highly allergic to every single raw fruit and veggie I crap u not . Then came every single type of nuts imaginable along with soy wheat and rice?? Wth mind u these r things I've always been able to eat. Then became allergic to dogs cats all types of crap although cats up I'm still highly allergic to this day I have anaphylaxis especially for fruits and veggies I need an epipen I wont dare touch them only fruit that came back negative in test were grapes??! Since I've been doing herbal protocol allergies have decrease I can eat half cooked half crunchy veggies and I became lactose intolerant at 1 time as well. I now suffer from sibo I believe from so many different antibiotics they've given me over the years sadly. My skin was so dry and flaky that went away within 3 weeks of herbal treatment... I still cannot gain wait only in stomach that's y I'm thinking sibo cuz I'm 5'7 113 pounds. Stomach docs all docs for this matter have balls to tell me "well if u just come in here and b honest about how much your eating"

dude yes! that’s so so so sad! and so totally freaky too. I am so disalusioned by the medical regime and how they are so by the book and don’t pay attention to the patients body as a whole and actually connect simple dots that even neurologically ill patients can connect! I love my LLND so much and his team of drs who treat me mind body emotions and understand my whole life history so they can treat me more adaquately as a whole.

i’m so sorry about your weight issues I totally understand I am 5’5” and currently 99 (almost 100!!!!!!) which is the highest I have been in years!

I've been diagnosed with marfan syndrome and ehlors-danlos syndrome at 27 yrs old only because I've lost so much weight and doc says I'm tall and skinny and have some of the characteristics??!!now you'd be like no way I think the rheumatologist is being so egoistic and will diagnose me with anything cuz of my extreme weight loss and Lyme like symptoms . I'm questioning if I'm going insane and really don't have Lyme it's so irritating with million diagnoses from tons of idiot docs who insist it's impossible to have late stage Lyme or Lyme it's sickening and I can't believe it. He said it himself those 2 genetics things would not cause 90% of the Lyme symptoms I have so where the heck does he get off telling me there's no possible way I have late stage Lyme cuz it's so complex. Yeah complex enough not to recognize it obviously....how the heck does he know how I feel and struggle every single day he says I looked to healthy to have Lyme smh

Post Edited (MedicalNerd) : 7/8/2019 7:22:15 PM (GMT-6)

So I came out positive for bands 39, 41 and 42 if not mistaken for igm bt only one or none for the igg . So docs in denial I have Lyme yet all the symptoms .I've heard your immune system can be sooooo suppressed that it won't even let u produce antibodies. I've wasnt treated Lyme prior to any testing ever yet doc claims I may have had it in the past and and am cured just have antibodies. How u freaking morons if I've never been treated for Lyme anyone read me lol