HealingWell
Search Close Search
☰

Help all hell broke loose

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 8/15/2019 2:08 AM (GMT 0)
Hello there I am in bad shape been on lymogen for 26 days at full dose because I think I have
Bart, well the eye and head pressures got so bad, I have detoxed with a sauna ir, and baths etc. the bugs after I put stevia in my coffee the organic 100 percent leaf from amazon in brown envelope wife got for me cause of thrush issues and no sugar. They are running wild my heart is crazy racing and the bugs are attacking bad. I feel like I have low sugar but it test normal, I can not get up for long heart races too much, and feel so week. I am almost ready to give up. Never had pain with my lyme but now it come and goes everywhere. My gut felt like it was turning inside out when I ate a salad tonight for dinner and it has not let up. Shoulders and chest pain and my whole body feels super tense is how I describe it. I stopped the lymogen two days ago and the cns/pns too. I take coq10 and curcumin and vit d,c,bcomplex magnesium and fish oil, lumbrokinase 3 days a week for excess fibrin which is normal but have to take weekly. This is the worse I felt while treating, lymogen is potent but maybe the stevia caused this because when I drank the coffee with 1/32 of a teaspoon my world get really messed up that eve. Help please I can not take much more of this, been sick since 4/11 but treating for 14 months now and antibiotics was too much to handle. So I switched to lymogen etc. I have an llmd and I have not called but he would say stop for a few days then try again probably, I did stop has anyone had this issue, and another question is when you get to major killing how long before Bart starts letting up some in brain and Neuro bad. Thanks I pray for healing for you all and blessings
Posted 8/15/2019 2:37 AM (GMT 0)
I have been experiencing some of the same symptoms. I recently added ashwagandha and Andrographis in with IHA,CSA, and Jk plus tinctures. The last two weeks have been a neuro and inflammation mess. I did feel pretty good and then alike always two good to bet true. The inflammation feels like a bee sting in my head. Maybe I just herx really hard every so often? Maybe Babesia is getting hit by the andrographs and curcumin Im taking? IDK at this point im at lost. Depressing how I went to an intelligent driven person to a crazy person in two years. would love to have my life back. Take binders and rember it will pass.
Posted 8/15/2019 2:47 AM (GMT 0)
Wow ty and I was doing great so I thought. Then bam. My email is listed if you ever want to talk I can share number and email or text etc I would love a person to vent to sometimes. Just an offer do not feel obligated though.
Posted 8/15/2019 3:15 AM (GMT 0)
I’m so sorry, you sound so miserable ugh. I don’t have any experience with Lymogen so I can’t offer much insight but isn’t it suppose to hit lyme and all co-infections? Maybe that is why you experienced such a strong herx. It’s so hard getting through these times. It does sound like you experienced a strong herx reaction. This started with the Lymogen? When the bacterial load is still high symptoms themselves are awful and then the herx can just make things feel just impossible. I hope you get some relief from taking a break. Increase detox as you probably already know and maybe focus on inflammation. A lot of people find relief from burbur/pinella drops, Alka seltzer gold in lemon water, binders, and epsom salt baths.
14 months feels like an eternity when you’re treating and experiencing the misery but don’t give up hope. My daughter was incredibly ill and at times wanted to die. She is so much better now. She is not in remission , has many symptom daily, still undergoing treatment but is much happier and much more functional in life. She was once bedridden and even spent some time in a wheelchair. She walks almost every day now for exercise and loves just getting out of the house. Stay with it. You can get through it.

Post Edited (Upatnite) : 8/14/2019 9:28:13 PM (GMT-6)

Posted 8/15/2019 6:13 AM (GMT 0)
I am sorry you aren't feeling bad. Have you tried stopping everything and fasting (with water)?

Basically I got so sick I couldn't get out of bed -- and just gave up on everything, including eating. I couldn't sit/stand/laydown, heart was racing, couldn't sleep. Just sat in my recliner (which I could adjust) for several days. When I gained enough strength to eat again I got sick again -- and the only thing I was doing was eating and taking medications. So I just stopped everything, again. No eating or medication, for 10 days. That was my first discovery of fasting and taking a break.

Just amoxicillin was always my fall back also.

You can always start up again, obviously you want to cut your protocol dosage 1/4 or even 1/10!
Posted 8/15/2019 3:03 PM (GMT 0)
Oregonhay,
I will have to try the fast. How long for first time?
Posted 8/15/2019 5:32 PM (GMT 0)
Donjr,

Try just a day or so, or 36 48 hours. See if you notice anything. Then try it again longer if it helps. It was a back and forth thing. It is so much easier to fast if you are already keto adapted (absolute zero carbs for 2-10+ days/life) because you don't get that insulin hunger response.
Posted 8/16/2019 3:57 AM (GMT 0)
It doesn't take absolutely zero carbs to be fat-adapted...or keto-adapted.
Posted 8/17/2019 8:37 PM (GMT 0)
Sorry to hear about what you are going through. One other thing to note about the CoQ10 and turmeric is that forms that are water-soluble absorb better.
Posted 8/18/2019 12:16 AM (GMT 0)
If I remember correctly, the Jernigan folks recommend taking molybdenum along with Lymogen to "mop up" the ammonia that the dying pathogens produce. When I targeted bartonella with homeopathy I felt how you describe, and I know how awful it is. Another thought is that coffee can contain a great deal of mold that people react to, so unless you buy explicitly mold-free coffee, that's another option to consider when you have neuro symptoms that flare hard after drinking coffee. I hope you get to a more comfortable place very soon!
Posted 8/19/2019 4:46 AM (GMT 0)
Hi Donjr, how are you doing?
Posted 8/20/2019 2:56 AM (GMT 0)
Update: wow what a few days I had, call Sara Jernigan and yes she said stop the lymogen till I get back to a good place again, I did it took 5 days, she said that the stevia is known to kill a lot of borrelia and yes with lymogen it was too much for the cns/pnsand molybdenum to overcome, recommend ir sauna which I do, and she said ginger or curcumin 1500mg a day will help clear faster. I take curcumin too at 1500 a day. She was very supportive and said wait till the lymogen kills the bacteria further and borrelogen then start slow on the stevia. She said she now has formulas with stevia in them and they work. Thanks everyone I am now buck on lymogen after 5 days rest and detox. She also said I am heavy with bacteria so only do 2 times of 20 drops and it will kill fine.
✚ New Topic ✚ Reply