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MCAS and its possible relationship to "big herxers" (my theory)

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Posted 8/30/2019 1:49 AM (GMT 0)
Girlie - yeah I've been on quercetin twice a day for a while now, was on turmeric for the longest time to no avail. Haven't done Zantac yet.

sebreg - no I haven't done too many antihistamines. My doc was suggesting we try DAO next.

This also occurred to me...I wonder if MCAS affects lymph? I assume the inflammation would cause some lymph back-up, right?
Posted 8/30/2019 2:28 AM (GMT 0)

jb1994 said...
Girlie - yeah I've been on quercetin twice a day for a while now, was on turmeric for the longest time to no avail. Haven't done Zantac yet.

sebreg - no I haven't done too many antihistamines. My doc was suggesting we try DAO next.

This also occurred to me...I wonder if MCAS affects lymph? I assume the inflammation would cause some lymph back-up, right?

What about Curcumin - instead of tumeric?

I just had pain-free hours. I'm trying to suss out if it's my mast cell remedies. I took 1 Zantac, 1 quercetin and 2 curcumin.

Now the pain is coming back...so going to take a 2nd dose of them all...see if it works.


Do you have any swollen lymph nodes?

Have you tried the lymph massage. There's one lady on Utube who demonstrates how to do one...that I found quite helpful.

I'll try and find it...and post a link.

edit: Here it is - I've done this massage many times.

https://www.youtube.com/watch?v=qa-wi0d7-ro
Posted 8/31/2019 1:48 AM (GMT 0)
Sorry - meant curcumin. Took that with the berberine in it and everything. I don't have swollen lymph nodes but yes I've done that vid before, also was getting lymph drainage massages for a while. She said my lymph was pretty backed up. No idea why other than cough bartonella cough. I don't know what to do to improve it. I got a dry brush and did that today but that seems so...weak
Posted 8/31/2019 4:33 PM (GMT 0)
listen to this from 29:00

https://bit.ly/2zrhhdd
Posted 9/1/2019 1:53 AM (GMT 0)
It's not letting me fast forward and I can't sit for a half hour...can you just summarize it?
Posted 9/1/2019 3:13 AM (GMT 0)
I can’t get any audio at all.
Posted 9/1/2019 5:12 AM (GMT 0)

jb1994 said...
It's not letting me fast forward and I can't sit for a half hour...can you just summarize it?

u just need to drag that orange dot on bottom.

anyway here it is the same recording on apple podcasts
https://apple.co/2zknbwm

hope it works from there
Posted 9/1/2019 5:44 AM (GMT 0)
btw isatis and houttuyna herbs both have MAST cell inhibiting properties

http://www.ncbi.nlm.nih.gov/pubmed/16204936
http://www.sciencedirect.com/science/article/pii/s0278691509001732
http://www.ncbi.nlm.nih.gov/pubmed/20347971

interesting or what ? smile
Posted 9/2/2019 1:29 AM (GMT 0)
Oh I couldn't see that, there was a pop up about cookies hiding it. Well that's good, I'm starting houttuynia from Woodland Essence so hope it helps. I think mast cell disorder is more my issue than "histamine intolerance" though I'm not quite sure the difference. I've never heard of isatis though.

Post Edited (jb1994) : 9/1/2019 7:37:49 PM (GMT-6)

Posted 9/2/2019 1:37 AM (GMT 0)
The podcast says it happens immediately like an allergic reaction but mine are delayed, hours later I have a reaction or even overnight. When all the food is being digested. Not right after I ingest it. Which makes me think there is something else going on related to food intolerances. I'm not too familiar with the limbic system, I guess I should try to learn more about that.

I don't know why I can tolerate some things that are traditionally thought to be high histamine. Like I can eat a whole avocado in a day, and I can tolerate peanuts, raw spinach, frozen fish and (some) meat. But stuff like fermented or bone broth I can't. So is it different for everyone? The food intolerances? Or is something else going on.
Posted 9/2/2019 12:48 PM (GMT 0)
I thought either Dr Afrin or Dr. Theoharides said it can be immediate or for some delayed. The above two docs specialize in mcas.

My reactions can be immediate, some delayed.

https://www.betterhealthguy.com/episode58

Or Dr. Afrin’s book.
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