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Posted 11/19/2019 5:08 PM (GMT 0)
I posted a week ago because I had went weeks without a good day and go been a week since I posted that and still no good day.

Idk if I’m herxing but I just wake up and feel like death. All day longgggg. Feel like I’m on a hangover or something g. Somebody recommended on here I go down on the doses for a bit and I did that but still nothing.

When I was around halfway to the max of dosage I had a extremely good week. I mean I hadn’t felt that good in years. Which is why I’m so discouraged. I was hoping I finally found the correct treatment for me, & maybe I still have I just need to make adjustments. But with nobody to talk to about this I come here for your opinions. I stopped seeing my Llmd because I just felt like things wasn’t working out.

Should I restart the protocol and maybe go slower? Or is this apart of the process & just detox as much as possible. If this rough 3 & a half weeks means Good days are coming, then I’m fine with that. what the heck should I do here.

Post Edited (Tarheels8) : 11/19/2019 10:18:20 AM (GMT-7)

Posted 11/19/2019 9:35 PM (GMT 0)
I think a lot of us could have written your post at one point or another. Lyme can be so complicated, and its treatment can be so complicated, and it's not unusual to feel terrible for much of it. Some people herx briefly, some not at all, and others constantly. Some people don't detox as well as others - and I mean both that some people don't take steps to encourage detoxification, and also some people don't detox well no matter what they do because of genetics, metabolic variations, or other types of toxicity (like heavy metal toxicity or mold exposure). Some people feel good on treatment, but those of us with long-term infections sometimes feel much worse on treatment. I certainly always do. Always always always. I felt like I had a hangover for about two years. (I never got hangovers back when I drank alcohol, and I joked that now I was getting what I deserved for my fun early twenties!)

Did you end up doing the ozone treatment that you mentioned? Anything else that might be overloading your system?

Are you finding any relief from any of the things you are doing to encourage detoxification?

Have you looked into MCAS at all? Some people who feel bad while treating feel bad because of reactions to herbs, alcohol in tinctures, high-histamine foods and probiotics, etc. Perhaps this is a part of the puzzle for you.

It so often is a puzzle. Keep trying. Keep posting. It's a slog, but this too shall pass.
Posted 11/19/2019 9:41 PM (GMT 0)
I think I would go back down to even a lower dose - maybe half way between the dose you were feeling good on and your current dose.

See if that works - stay on it awhile before increasing again.
Posted 11/21/2019 2:41 AM (GMT 0)
I agree with Girlie. And if you're herxing you may just have to do a washout for a week or until things calm down, then start over and go much more slowly.
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