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Voluntary Muscle Twitching??

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Posted 12/10/2019 11:51 PM (GMT 0)
I am confused. I can't pinpoint the term of my problem, but it is really bugging me.

I have had lyme for 6 years, I was in remission for a good amount of that time. I have had roughly the same minor symptoms regularly, but recently I have fallen back a bit.

Regular muscle twitches have reappeared, I know everyone is fully aware of what those are, but I can't figure out what my new issue is -

I am basically pursposefully twitching my muscles myself. It usually starts to happen later in the day. I have an uneasy, sort of heavy feeling in my chest, kind of like I am nervous, but I am not. Like when I am actually nervous, my heart palpitates, I get sweaty, my stomach is queasy....this is just an unsettling feeling. And then it leads me to kind of making very small jerk like movements on my own. For example, I will tense up my rib muscles, sometimes lift my cheek up, move my bottom jaw back and forth, make my ears move. It is so weird. Now that I think about it, I used to do this as a kid. I have not remembered feeling this way in such a long time. Nobody really notices it though bc I do it when I am alone. Could this be a form of anxiety? anyone have a clue as to what I am even talking about? Or now you are all going to think I am nuts LOL.
Posted 12/11/2019 12:42 AM (GMT 0)
I have had similar feelings, not the purposeful muscle twitching, but the rest of it. Have you tried burbur/pinella? When I was feeling anxious, this seemed to help.
Posted 12/11/2019 3:09 AM (GMT 0)
This seems like adrenal problems. If the adrenals are not producing enough cortisol, the pituitary response can lead to elevated levels of endorphins. This can cause opioid tolerance and withdrawal symptoms, including muscle twitching.

Have you tried taking hydrocortisone or low dose naltrexone?
Posted 12/11/2019 3:24 AM (GMT 0)
No. I haven't tried any of those. Guess I am just trying to figure out what this is first!! Thanks for the input. Why would it be adrenal? I thought underactive adrenal is accompanied by weight loss and poor appetite - it is the opposite for me! lol
Posted 12/11/2019 3:26 AM (GMT 0)
Actually one note, it does seem to be worse on days I eat more sugary foods.....
Posted 12/11/2019 2:51 PM (GMT 0)
Sounds like anxiety to me, due to the voluntary aspect. Working in mental health for years, and just having several friends with anxiety, this seems like a relatively common manifestation. I wonder if some cognitive behavioral therapy (CBT) or mindfulness exercises could be replacement behaviors for you? Of course, we know that anxiety and Lyme can go together, so I'm not saying it's unrelated, but it might be worth approaching it from a psych angle and working on it behaviorally, since that has no risk of side effects and could help a lot.
Posted 12/11/2019 7:10 PM (GMT 0)
OK, so it is a common manifestation then? Good to know. Is there a term for it? Probably not. My first approach is going to be to clean up my diet. I have not had any sugar today, and so far so good. It usually starts in the afternoon.
Posted 12/11/2019 11:59 PM (GMT 0)
I think I know the feeling you are trying to describe., or something similar. Your not nutssmile
Its a horrible feeling, uneasiness,unsettling, kinda like having restless leg syndrome in the chest area. I haven't had it in a while thankfully.
I thought it was adrenals at first , but not sure.

For me its like gloom and doom in my upper body.

I didn't have the twitching with it, but I have had twitching before.

I don't think it was anxiety, that came after the feeling ,because I hate the darn feeling and the feeling worried me. Like you said it was unsettling.

Hope you get rid of this soon and back to remission.
Posted 12/12/2019 12:28 AM (GMT 0)
You worded it so well goshawk!! It definitely was a bit better today. Gonna stick with my plan and see how it goes! So glad you can relate! Makes me feel a bit better! So glad it has passed for u!
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