Help with bart "herxes"

My heart goes out to you. I am so glad that you are having some periods of feeling okay. Isn't is disturbing how much something like the flu can derail our progress? I caught a cold last fall that depleted my adrenal system, flared Bartonella and EBV, and had me in bed for five months. You have tried so many things, and I know it is so exhausting to find that they not only don't help but sometimes cause damage! Demoralizing, disheartening, etc. Been there. Big hugs to you.

How about CBD or other forms of cannabis? Those can help nerve pain enormously, in addition to many other benefits, and they don't have any mechanisms of action that would cause flares of MCAS or Bartonella. Definitely get more shiatsu as well! I'm a fan of all types of body work, especially craniosacral therapy, and acupuncture. I make an essential oils blend that I use topically for nerve pain, although I think what I deal with is milder than yours sounds.

I had a ridiculous herx from the DesBio Bartonella series kit (a type of homeopathy), so I don't recommend it in the sense that it was a horrible experience, but I do recommend it in the sense that it works if you can push through. Ditto for rife - very strong but can cause a serious herx. At least with homeopathy and rife, you know that your reaction is a herx and not a reaction to the treatment itself (allergy, MCAS, side effect, etc.). Transfer factor for Bartonella is another effective option, but it's known to cause fevers as it kicks your immune system into gear, so personally I've never been up for putting myself through that.

I hope someone chimes in with something that changes the game for you. Good luck!

Quinn havent you ever tried tinidazole?

I never hear you mention it. Its all like disulfiram in terms of worm parasite bacteria and Borrelia killer, its even antabuse like dsf. There must be a key on both tin and dsf to kill those

isitlyme said...
Quinn havent you ever tried tinidazole?

I never hear you mention it. Its all like disulfiram in terms of worm parasite bacteria and Borrelia killer, its even antabuse like dsf. There must be a key on both tin and dsf to kill those

I took metronidazole and got very sick from it, so I didn't try tinidazole. Not sure if it was the ALDH or what.

My nerve pain is trigeminal and occipital neuralgia.
In my arms and legs, it is triggered by movement, for example packaging the chrismas gifts is a torture. Vibrations in car, walking etc...the same. It is a sort of burning inside my body.
I saw 3 neurologists, they said I hadn t nothing and the last put me in psych ward...
The nerve pain is more right sided, with my back muscles all spasmed. Nothing works on these sapsms too.

ElizKA - I read that charcoal is okay with mercury amalgams.
In fact it’s recommended to make a slurry and coat your tongue and throat with it during amalgam removal.

What do you think?