Trying to figure it out my Lyme symptoms

I am feeling so sick and can't even describe it. And I'm posting this to help me sort thru it. I am such a bummer. I don't know what to do anymore or what to take.

It's prob time to go to a top dr. I watch here hoping for your successes and eventually it all blurs together and I'm In That treatment paralyzed place.

My natro says mold on top of Lyme plus whatever else... due to the mycotoxin test. I agree with that but am thinking it's more likely also a coinfection. Or hoping as the mold treatment seems bleak if you can't move.

But nobody lives with me day to day and can determine what is going on. It's just now indescribable so that's why I'm here. To try to describe.

I've been waking up burping nauseous off and on for a couple months and everyday last four days. Feel over all generally I'll. Hold head in hands and sigh a lot. Try todo my things. Kids Xmas the whole deal.
Well today a bit of burping and just feel awful and well that's it. Feel sick. Can't deal with problems cry etc.

I also have anxiety in mornings also. It's terrible.

I stopped my herbs and everything because I was not feeling good and they weren't really helping anyway. At least not with the anxiety and nausea. I shuffle around and walk on the sides of me feet. It's like a prociprioception thing. Kind of whole body nauseous

I'm thinking of starting herbs and charcoal today.
And take my saliva cortisol test. I seem to feel a bit better in the late afternoon evenings.

I wish I could just fade away but my children would suffer so much. It's so strange because I had some good days not long ago. It's so unpredictable and wearysome. Not to mention extreme stress with other areas. It's all overwhelming.

It's like I'm starting over from the beginning because I feel clueless. I'm in a stuck place.

I guess I would tell myself to start taking lyme herbs again. Take the binders. Take adrenal test then start adaptogens.

Try a Bart challenge when I return to home after holiday travel. If don't improve go see dr in Ct.

Sorry to take up your time if your reading. I'm writting this as a means of therapy and possibility of a shred of help. I used to be more capable but have lost all mojo and momentum.

I wake up everyday and cry with my kids and walk around burping and nauseous and sick, oh gone are the days of never ending twitching as my main prob. All of this sucks. I can't imagine trying to take care of my kids if they were sick. I feel like I need a place togo to get better . But I know that doesn't exist.

I might do a list of symptoms from behind g to end to try and figure out.

So sorry you are having such an aweful time, and with kids too.
When I first got sick I could hardly get out of bed, I could barely eat and the only doctors I did manage to get to see told me it was all in my head. I was a single parent with kids 9 and 11 I will never forget how angry and soul sucking the whole experience was. It took me nearly 2 decades to get a diagnosis because there is no recognition of lyme even being in Australia. It's better now for lyme sufferers.
Initially because I was so hypersensitive to everything after being untreated for so long I did better with non-invasive treatments like rifing - I have a Spooky2. I had to do it on my own the naturopaths treating lyme were using Byron White formulas which are great if you can take them.
I had to change my diet. I found there were foods and supplments triggering nausea, anxiety, diarrhea. stomach pain, and even liver pain and it helped to keep a food diary. I experiment and found I did better on a paleo diet which helped with inflammation. I went back to a very simple, very known friendly foods diet and tried to figure out what I could and couldn't take by introducing new foods and supplements one at a time.
Some bioresonance practitioners have the right knowledge and machines to help you figure out what herbs, supplements and foods you can take. There are kinesiologists that can do the same with muscle testing. It helped a bit but most of the work I did was on my own.
There are a few general bug killers that hit a wide range of infections: lyme, viruses, moulds, etc that I didn't react to and these helped a lot to get me to a better place - examples are oregano oil, garlic oil, monolauren and ACS 200 Extra Strength nano silver. I made these the foundation for my treatment and alongside the rifing I got better. I couldn't take any of the herbs, the Cowden and Buhner ones were all giving me horrible side effects.
I am so sorry for what you are dealing with. I do understand why you feel overhwhelmed who wouldn't. I did too when I was going through similar experiences. But I do believe things will get better. That's the most important ingredient the faith that you can change things. I know you must believe that because you are looking for a way to get things on track, that is why you posted. Hold on to that. Taking care of your spirit in whatever way works for you. Hugs

Lightlife - Can relate to all you mention. It really hit home when you mentioned "I had some good days not too long ago" and "it's so unpredictable and so wearysome." Totally get that as went through same good days about a month ago and then back to this.

While I understand and relate to the "fade away" part, you are right about impact on kids. I get the same feelings, cry for no reason and wonder what is next. Then I pray and pray something good is next. That gets harder to do the more symptoms pop up. But we also have to realize our thoughts are being influenced by the situation and Lyme itself.

Venting to those on this site can provide a little relief. It's better than venting to family, kids or others who can't possibly realize what this is like. There are days I am sure this will improve and days of hopelessness. Take a look at the post today about someone who conquered Lyme. It might help.

Thankyou all very much .
No LLMD. Not yet. Was self treating / not treating with occasional LL Natropath visits.