Neurological pains/SFN?

Hi all,

my previous post is here:

https://www.healingwell.com/community/default.aspx?f=30&m=4178785&g=4178819#m4178819

I've had neuro lyme for 13 years. I have to ask in regards of pains. In many people, incl. myself, the most severe pains occurs during nighttime. When I wake up and get out of the shower, the pains are not gone but much better. Anyone knows why this is?

As of now I have severe neurological pains in my legs and upper body. I think my leg symptoms are mentioned in the link above. Upper body pains have become much more severe the last 3 days. Stabbing rib pain on one specific point on my left side and also shooting pains down all my left side. Feels like someone is stabbing me all the time. I cannot lie down, and sit for longer periods because it gets worse. Also my left collarbone and left side og my chest feels really tight. I cannot draw breath properly and also i have to stifle my yawns because it hurts to much, gets really tight.

It seems one sided, im just not sure if its related to the bacteria itself or not? I have never had such severe pains. Upperbody - shooting, stabbing, burning, electrical shocks, pressure pains etc..

I am currently on no medications for my infections. Any advice on what to do?

I hear that some do well with LDN and herbs or abx. I am scheduled to see my neurologist in 2 months to test for SFN. If i do LDN until then, will this have any negative effect on any of the test I will be doing? For example ANA test?

Thanks!

saraeli said...
Sounds to me like it could be related to mold exposure. Have you had your body and home tested for mold and mycotoxins? They can cause serious neurological problems, and electrical, stabbing, shooting pains are a hallmark of mold. Those happen with Bartonella and other infections as well, of course, but it's worth ruling out mold. Remember most mold is hidden. Perhaps in your case something in your bedroom or mattress? That would explain why it is worse at night.

Hope you get all of this figured out. I know how tough these symptoms are.

I haven't had my home tested, but will look into it. Thanks. My house is from 2007, and i have lived there since 2018.