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Girlie - A question for you.

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Posted 5/29/2020 2:55 PM (GMT 0)
I saw a post from you a long time ago, that your RDW was high. Did you ever find out why? How is it now? Thanks!
Posted 5/29/2020 5:44 PM (GMT 0)
I believe it was high on just the one lab test. Or was it a few?
No I didn’t find out why.

What date was the post? I’m thinking it was when I was on Babesia protocol.

I read it could be an Iron deficiency -Babesia apparently resides in the rbc - so maybe that had something to do with it?

Found this;

“RDW can be high due to: B12 and Pernicious anemia; folic acid anemia; iron deficiency anemia; hemolytic anemia; transfusions; sideroblastic anemia; or alcohol abuse. A low RDW can indicate any of the following: iron deficiency anemia due to parasites, blood loss, or poor iron absorption; vitamin B6 anemia; or rheumatoid arthritis (RA).“

Edit: I actually had the high RDW for several months.
Posted 5/29/2020 5:59 PM (GMT 0)
Okay thanks. It was a post in November 2017. When you were on Mepron. Just curious. Thanks for replying.
Posted 5/29/2020 6:03 PM (GMT 0)
I’m thinking of finding my lab work and see if my rdw was high before I stopped Babs treatment - I have wondered if I may have stopped too soon.
I treated Babesia with Mepron for 5 months
Maybe that’s why I can’t lose the last few symptoms... sigh
Posted 5/30/2020 5:20 PM (GMT 0)

Canfossi said...
Okay thanks. It was a post in November 2017. When you were on Mepron. Just curious. Thanks for replying.

Just saw this now.

In November, 2017 - I was in between Lyme docs. I had treated with the LLND here in BC, but he couldn't prescribe mepron.
I was 'gifted' a few bottles and treated myself. I can't remember the exact dates...I'd have to rummage through a stack of papers....lol.

Then when I went to the J clinic...in Feb, 2018, I was treated for Babesia again...for 5 months.
Posted 5/30/2020 7:58 PM (GMT 0)
So your babesia symptoms are not fully resolved? Have you been prescribed Dysulfiram? It is supposed to help with babesia as well. Your in BC? My mom has just started it a few days ago, every 3 days, increases the dose in about 2 weeks. Also, some other antibiotics. Even after a week, she is starting to feel better. Her LLMD wants to to be finally rid of the chronic Lyme and co-infections. Hopefully it all works.
Posted 5/30/2020 8:52 PM (GMT 0)

Canfossi said...
So your babesia symptoms are not fully resolved? Have you been prescribed Dysulfiram? It is supposed to help with babesia as well. Your in BC? My mom has just started it a few days ago, every 3 days, increases the dose in about 2 weeks. Also, some other antibiotics. Even after a week, she is starting to feel better. Her LLMD wants to to be finally rid of the chronic Lyme and co-infections. Hopefully it all works.

I’m not treating Babesia anymore - hopefully it’s gone - I’m always questioning if maybe I still have Babs.
I do wake up with mild sweating - but that could be dysautonomia from POTS - I go ‘round and ‘round about it.
No I haven’t tried disulfuram - I wouid have to self treat as Dr J doesn’t use it. I think you may be able to request it from him but last time I talked to him he said the jury was still out and he didn’t think (at that time) it was going to be a game changer.
His opinion may be different now though.

Yes I’m in BC.
You back east?
Posted 5/31/2020 5:15 PM (GMT 0)
Yes, in southern Ontario.
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