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Disulfarim Discussion

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Posted 6/13/2020 5:58 PM (GMT 0)
I know there’s a page for it but no ones responded. I’m Herxing till kingdom come. I have 24 days left and can barely get out of bed.

Those who are finished and/or on it, how are you doing?

I had started to feel better initially while on it but I think that’s just how it goes. 375 now for almost 40 days, was doing the gradual increase two months before that.

Thanks so much. I’m also on doxy, azithro and taking cholestyramine for the Mold.
Posted 6/13/2020 7:04 PM (GMT 0)
Sorry you’re herxing so bad!!

Maybe take a few days off the treatment?

I’m not hearing/reading much about the Disulfuram anymore - I’d like to know if some members are doing well now after the treatment.
Posted 6/13/2020 7:29 PM (GMT 0)
Hi steelogreen,

I'm so sorry that I didn't see your post in the thread until now.

I'm about 1 month into my treatment, however, this is approximately my fifth attempt.

It's going well but I'm going really slow this time.

I started with 62.5 for 15 days, 125 for 15 days, and today I did 250 for the first time (HERX!!! haha).

I think that going slow really is the key to successful disulfiram treatment.

Girlie has a great point, I think it would help you to back off a few days.

The half life is extremely long so I wouldn't worry about Lyme growing back in the days off.

Let me know if there's anything I can do to help!
Posted 6/13/2020 7:32 PM (GMT 0)
No worries my lovely friends.

I’m going to keep going. 24 days left!

I can do this.

This is normal though right.

Although I’m confident there is that semblance of maybe it won’t work lol. 2 years of ups and downs always has you braced for anything.

I will say enteric vs non enteric was a game changer.

I think non enteric can be dangerous for you.
Posted 6/13/2020 8:44 PM (GMT 0)
I took it for 3.5 months I got up to 180mg a day. I went downhill the entire time gradually. It took about 3 weeks after I stopped until the exhaustion subsided. I'm not convinced I ever had an active Lyme infection. I think most my symptoms are from a cancerous tumor they found about a month ago in me that I had removed and my symptoms have been improving more then they ever had.
Posted 6/13/2020 9:22 PM (GMT 0)

skinny_joe said...
I took it for 3.5 months I got up to 180mg a day. I went downhill the entire time gradually. It took about 3 weeks after I stopped until the exhaustion subsided. I'm not convinced I ever had an active Lyme infection. I think most my symptoms are from a cancerous tumor they found about a month ago in me that I had removed and my symptoms have been improving more then they ever had.

So DSF, Lyme or no Lyme, is literal hell.

Almost there. Almost there lol.

Thanks Skinny.

I’m glad you’re feeling better.

Where was the tumour if I may ask.
Posted 6/13/2020 11:14 PM (GMT 0)

steelogreens said...

Thanks Skinny.

I’m glad you’re feeling better.

Where was the tumour if I may ask.

Appendix found after a appendectomy. Its pretty unheard of. I have another surgery to remove the right side of my colon in three weeks they are hopeful that will essentially be the cure and I will be done with it. I don't feel normal but compared to how I was before I got it out and the last couple years its night and day.
Posted 6/14/2020 12:57 AM (GMT 0)
Skinny - did you test positive for lyme? So glad you are feeling better!
Posted 6/14/2020 1:55 AM (GMT 0)

k07 said...
Skinny - did you test positive for lyme? So glad you are feeling better!

I tested 7 bands igg when I tested. The one tick bite I know i had I was treated 14 days as soon as the tick was removed. Maybe it was enough. My symptoms have always been inflammation in my torso low back region like I had a cast on. As well as digestive issues that would come and go along with abdominal pain. Nothing neurological.
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