Posted 10/26/2020 9:50 PM (GMT 0)
Hi, Hellmansbiz.
I have not tried any of the treatments you are asking about, but people do post about them - disulfiram very often, occasionally SOT, and rarely phage treatments. From my perspective, they all have mixed results. This forum contains many members who have seen good results with disulfiram, fairly quickly, and inexpensively; many others unfortunately cannot tolerate it, usually due to terrible herxes, and have to stop. There are many posts about it that you could search and explore.
SOT and phage treatments sound cool to me in theory, but to my knowledge (someone correct me if I am wrong!) there have not been posts from folks who completed these treatments and saw significant improvement.
It's important to note that once people are feeling better, they usually do not spend much time on chronic illness forums anymore, so perhaps there are some success stories to which we just aren't privy.
Are you interested in other types of treatment? What have you tried so far?
One of the most frustrating things about this illness is that a treatment that puts one person into remission might have no effect on another person (or even set them back). I still feel discouraged sometimes when I hear about someone feeling much better after doing things I have tried, or when I try something new that has made a huge difference for someone else but leaves me feeling worse. It's so hard (impossible?) to predict what will be the best treatment for an individual. It's so hard especially when treatments cost so much!
Good luck!