What are some distinctions between Lyme and Parkinson's or MS, ALS?

I realize this question is probably been asked dozens of times on this forum and that because these diseases are such lucrative profit machines will never really have an answer on the open web but I figured I'd ask for those who have had any interesting diagnostics done.
I'm curious if there are any specific markers that make the distinctions between these diseases or if some of them are intertwined?

I want to mention that even if it is ALS or MS.... etc - it could be caused from lyme

Dr J said that if he gets ALS patients early on - he has a chance to cure them - especially if they are still able to swallow and not on a feeding tube.

Also, if you have “atypical” ms, als or parkinsons it can be a red flag that it’s lyme.

How long have you had symptoms?

It’s hard to know - it could be just more healing time.

I recently “lost” a symptom and I’ve been at this for 6 years.
My POTS has resolved.
I think when it’s nervous system (CNS, PNS, ANS ) it can take longer to resolve...

Sometimes seeing another llmd can help - new “set of eyes”

MS is a symptom of something else, i think that's relatively easy to understand. Yes your body is attacking your own cells, but why does it decide to do that? Treating it seems very complicated though. Similarly LOTS of people believe lyme can lead to Parkinsons. Especially early onset Parkinsons.

ALS is a different and special kind of awful. I was TERRIFIED i had it for a long time, with constant twitching and muscle weakness i thought i had non-typical ALS. But there are a couple of facts that you need to know about ALS.

- It is progressive, which means things do not get "better" temporarily. No struggling to talk to one person and then not as much struggling with another
- It follows a patterns, in other words in almost all cases if either starts in your arms or your mouth and spreads from there
- Twitching is when muscle dies, so once you start twitching in a certain area you lose strength and will not regain it there. So if you twitch for a bit, then it goes away and then it comes back again you do NOT have ALS.
- ALS moves fast, from diagnosis you tend to deteriorate very quickly.
- Non-typical ALS does exist, but if you think you have non-typical there is a much bigger chance that it is something else masquerading as ALS.

I'm writing this in the hope that if you don't have ALS(much much more likely) that you will actually believe it and look into other things and free your mind of the fear that comes with that thought.

Here are the symptoms i had
- Twitching (including tongue)
- Weakness
- Issues swallowing
- Muscle wasting

I went for two EMGs, both negative. Eventually i started working out, since then i've gotten stronger, some of my muscle wasting has been reversed. Weakness has completely gone away. All that remains is twitching, which is still as constant as ever. I hope this helps a bit, i wish you all the best

Garion: "Here are the symptoms i had
- Twitching (including tongue)
- Weakness
- Issues swallowing
- Muscle wasting

I went for two EMGs, both negative. Eventually i started working out, since then i've gotten stronger, some of my muscle wasting has been reversed. Weakness has completely gone away. All that remains is twitching, which is still as constant as ever. I hope this helps a bit, i wish you all the best"

I had twitching, weakness, swallowing issues, muscle wasting, and tremors.

I went to a Neurologist - sitting in the office waiting to be called in I said to myself "I hope it's MS - not Parkinson's or ALS" I was hoping for the relapsing/remitting MS.

Then he pretty much ruled out all three with a physical and a few tests.
He sent me to a Physiatrist (hadn't heard of that DR.) for an EMG and NCS. Ruled them out.

Horrific times..... How do we get over the trauma? I'm still very 'touchy' and still get upset about all that has happened for the past 6 years.
I thought that once most/all symptoms subsided, I would be happy as a clam....guess it's PTSD?

i also was misdiagnosed from a gerbil or two that called themselves neurologists...

i mean western medicine is great at describing what's happening in a latin name or naming a disorder after the guy who noticed it . however i believe if the pathogens pick an area then it gets catogorized to stop people from searching and accepting enevitable and horrific death. i didn't believe them when they said i'd be on a cpap in wheelchair by now . today i skipped in the park . if its the thyroid they say its hashimotos , if it attacks the digestive chrohns , spine/ms , als / nerves , if it picks the joints it's rheumatoid arthritis, if it's systemic the call it lupus and blame the immune system for attacking itself ... well its not autoimmune if the wbc are going after a pathogen thats gone intercellular...all of which are the 3 b's borrelia, bartonella and babesia . i said in the other thread even if its mycoplasma like gulf war syndrome or really some mutated retrovirus then MSids treatment has your bases covered... i was told my treatment would be abx , antifungals and antivirals for life . i may agree but choose other modalities...

and fwiw the parkinsons like twitches and facilitations subsided with loads of iv and topical magnesium ... and treatment...

if the ms people in the 80s found bvt to be resorative , then eva sapi figured out why in her venom vs borrelia biofilm data...wish the collective medical would catchup but 35k a pop for some mild chemo or biologix and pain meds for life sounds more profitable though...

There are studies on taking Minocycline with MS. Youd have to use Dr google to learn more.

There was a website - The Road Back - or something like that with pages and pages of testimonies - people taking minocycline for MS (and maybe other “autoimmune “ diseases and getting better.

The website doesn’t come up anymore - unfortunately

orbitingaround said...
It's amazing how I post about my personal experience and I get attacked.... What a wonderful forum this is.

Have I missed something?
Who attacked you?

orbitingaround said...
It's amazing how I post about my personal experience and I get attacked.... What a wonderful forum this is.

Whoa!! I just read through this whole thread and thought what a great thread this until I got to this. I didn’t read anything that sounded like a personal attack on you or anyone else.

I have never suspected any of those illnesses, so I started not to open this one. I am glad I did, though, as I found everyone’s posts to be enlightening and quite sobering. So much suffering in this world.

So is Oligoclonal banding still possible in Lyme. I've heard some neurologists using that as a distinguishing marker between lyme and Ms.

The thought that tick infections are responsible for these "labeled" diseases and autoimmune diseases is probably just one cause, but not with everyone. There are many things that can cause this stuff.

If you take this one step further, why are some people suffering from tick bites when there are so many others that get bit regularly and are never sick from it? Whats different from one person to another? Genes and your immune system. Not everyone is born with that 100% functioning correctly.

Yes there are even specific discovered genes related to most "labeled diseases" in this post. They aren't always "switched on" though ...what caused it? >...pathogens (ticks, gut issues other), the environment, food, food chemicals, industrial chemicals ect all can affect your genes and immune system. Its one big circle and pretty hard to guess where it started. And dont forget your gut is directly related to immune and the nervous system (some say its part of it).

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I knew two people with ALS, like others mentioned, they unfortunately went down hill fast. RIP. One was an avid hunter. I talked to his brother briefly about tick illness, it did not settle in well, so I dropped it.

MS > Dr McDonald and Thomas Grier (?...close?), teamed up at least a decade ago to look at upper mid-west diseased MS brains. What they found was nemotoid(?) debris that was thought to be related to lyme somehow. Better info goggling this.

I actually went to a MS support group 5 years ago, before my turning point when I hadn't completely ruled it out myself. None of them had a "functional medicine" thinking mind at all.......my thoughts were foreign to all but one there, and that guy threw many good questions at me as the group was eating cupcakes....yes. I didn't mention sugar is evil lol.

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In my deepest abyss, I took a physical brain skills test from a lyme symptoms knowledgeable Dr. I had slurred speech, major word recall issues, talked and thought real slow for about three years, my test results were very poor. It had been declining for quite some time though and was really hard to do what Id done for a living. Had to change to easier but related work a couple times and really like the lower stress. I could go backto my past but dont want to, the stress from top management is not worth it.

Post Edited (astroman) : 10/27/2020 10:01:45 AM (GMT-6)