Help....halting DesBios treatment due to LLMD switching NP

Long story short....the NP (nurse practioner) that worked for my LLMD has changed. I went to my LLMD today because I was finished with box 2 of 4 for the DesBios treatment for Bartonella. The new NP (who did not prescribe DesBios) suggested that I could continue with DesBios OR switch to IV treatments of argentyn 23 (colloidal silver). She recommended that I switch to the IV treatments. She cautioned that it cost more...but she insisted it would be most effective. She seemed very knowledgeable and could not speak on the person who she replaced. She also did not talk bad about the person she replaced. The irony is the person that worked there already had me do 6 IV treatment sessions....but in low dosages (according to the new NP). The new NP wants me to do them twice a week with higher dosages for 8 weeks. She said she wanted to see my Lyme c6 peptide reduced to zero....it was .89 prior to DesBios. The ordered new labs today, so not sure what it is yet. Anybody stop DesBios midstream? Anyone else do the colloaidal silver treatments?

Garzie said...
cant advise on colloidal silver or course of action -

but one think stuck out to me - to my knowledge there is v little evidence to support the diagnostic utility of "reducing C6 peptide to zero" unless it can be supported in some way that would be a red flag to me.

if it can be supported i think many people here would be interested to hear - as at this point in time there are few if any serological tests that can indicate treatment progression in lyme disease.

thanks for the response. I admittedly do not know what C6 peptide is, but I know mine used to be lower than .89 PRIOR to actually treating the lyme. They told me the fact that it went up is typical because the treatment was "stirring things up". It is interesting that you said what you said, because I know someone with Lyme who echoed a similar sentiment...basically saying it's like HIV, you can get it to go into remission and become symptom free...but you can never TOTALLY get rid of it.

Having said that, I have read other testimonials from people who said they ARE Lyme free. Honestly, I don't know what to believe. Is there really a difference in being symptom free and Lyme free?

its simple - unless there has been a revelation in the last few weeks that i have somehow missed despite reading research on lyme on a daily basis - there is currently no test that can tell a person if a borrelia infection is cleared / cured.
there are very few that can even indicate treatment progress

as Girlie says - only that there are no longer symptoms

if anyone states differently - why not just ask them to point you towards the evidence for that view

then you can read it and judge for yourself - after all you are paying for the treatment - i think that gives you every right to ask what its based on.

if they feel they have something new and its just not published - i and i am sure many others here would be interested to learn about it