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Mycoplasma/chlamydia

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Posted 11/14/2021 12:33 PM (GMT 0)
New here.

I have been treating since 2011. IV and orals. At this point the big issue we cant seem to resolve is cognitive. I was on maintenance (1 week on 5or6or7 off - depending on how I felt). I decline cognitively as time goes on during my off weeks. Then I get a big boost when I take them.

We tried reduced protocol by reducing my abx during my on week to give my body a break. While my body was loving the break, this didn't work at all for cognitive issues.

Now LLMD is considering mycoplasma/chlamydia in the brain. I searched for info on these 2 terms and didn't come up with much.

Has anyone had this? Successfully treated it?
Posted 11/14/2021 12:58 PM (GMT 0)
Rosi,

Hi and welcome! I have high IgE titers for myco and high IgE and IgM titers for chlamydia pneumonia. I don’t believe I have much symptoms from either. Most recently my doc Rx a lower dose of doxy to take 3 days a week to cut down the bacterial load, but I haven’t done it yet. I am wrapping up a month of antiparasitics.

So, you do well on abx, but during your off weeks, your cognitive declines.

Have you ever used Cholestyramine? You could be getting inflammation buildup from toxins. See if you could get a small amount of pure CSM from a compounding pharmacy and take it during your off weeks one month. It’s definitely worth a trial run.

P.S. - Ask your doctor to test your ammonia levels twice - during a time your cognitive is good and again when it is much worse.
Posted 11/14/2021 7:33 PM (GMT 0)
No I have never used Cholestyramine. The toxins would be from whatever is growing in there? And then the abx reduce the inflammation caused by the toxins?

He has said that the brain detoxes when you sleep and I dont sleep.

Unfortunately I just saw my doctor and I doubt I could get an ammonia test without a discussion with him. I do see a new pcp this week and I will ask her.

You are on doxy for the chlamydia? If so are you on anything else for the chlamydia?

Post Edited (Rosi) : 11/14/2021 8:05:59 PM (GMT-7)

Posted 11/14/2021 8:37 PM (GMT 0)
Chlamydia is a very unusual and complex organism.

It has the largest genome of any bacteria so far sequenced
Apart from borrelia burgdorfori

As a result it has a complex lifecycle. And different abx are needed for each part.

I read about it some time ago and will try to find a link with more info.
Posted 11/14/2021 9:04 PM (GMT 0)
https://www.davidwheldon.co.uk/ms-treatment.html
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