Bart muscle twitching and meningitis

My neck is stiff and then snaps back and forth, muscle spasms all over my arm, thumb, legs and causing me to walk sometimes like I got MS. It’s the nervous system inducing this. Has anyone found any successful treatments to treat this?

Magnesium doesn’t work because it’s not magnesium related. I mentioned it’s Neurological related .

Yah like u said its prob inflam in your nervous system and small vessels from bart. Besides treating the infection, which may flare those symptoms too, I am not sure how much there is to do. I just tested positive on the cunningham panel for autoimmune encephalitis caused by bartonella so I started IVIG, which could help. Plasmapheresis is the next step.

There are tons of supplements than can make a small difference with neuroinflammation (liposomal curcumin, PEA, the active ingredient delsium is believed to supress microglia and reduce neuro inflam, sulphurophane/brocolli seed extract). Some people benefit from magnesium and IV glutathione, which can lower the glutamate excitotoxicty effects from the neuro inflam.

Some people do steroid pulses while still on antibiotics to keep brain inflam from being too extreme. In my experience benzodiazepans like ativan help a lot. Some people are against taking them frequently bc of the addictive potential, but I use them bc neuro-bart hell is just too unbearable. People with mast cell disorders also take them bc they stabilize mast cells, which are def contributing to neuro inflam in bart. Tramadol also takes the edge off.

Unfortunately, for many with bad brain bart infection and inflammation this disease is an extreme daily hell.

Many people here throughout the years I’ve had a super stiff neck, myself included.

Meningitis however; even if we may use that term , is a conventional medically recognized condition which they can test for. Good luck finding a doctor that knows about it or will actually perform a test for it. So do you actually have real meningitis?

As far as fixing my tight neck it took me years to do it. I tried that before treating tick infections and was unsuccessful. My guess is it was a combination of the tick infections hindering healing from impact injuries acquired from sports. My body kept on tightening up more and more, and yes I thought it was MS too. Neck was gradually crunchy, would tighten up l, give me a neck and headache and it would affect the nerves in my arms down to my hands which also had carpal tunnel “tingling and lightning bolts”.

When you’re body is stiff and twisted for many years that becomes the new you. Like a 50 year old garden hose left out in the cold it takes a long time to straighten back out. Even after the infection is gone sometimes which was my case.

I pretty much had to rebuild 75% of my muscles in my whole body. I had to loosen them up first, then rebuild. I’m towards the end of what I need to do and NUCCA realigned my atlas bone which seems to help.

I wish I learned about loosening up the shoulder and upper back muscles with a lacrosse ball years ago because that certainly helped as well. The neck in the back are obviously connected and affect each other tremendously. Bottom line is if your nerves will not tell your muscles to relax you have to force them to relax Which is what I did. Often.

Lyme Guy,

I ran cunningham bc antibiotics (especially when I did 11 months of clarithromycin & rifampin) were flaring my neuro symptoms (anger, myoclonus, convulsive type movements, severe cognitive impairment, extreme fatigue) and even causing them to remain worse when I stopped antibiotics. I figured there may be more to it than bartonella in the brain. Though I have had bart symptoms since very early childhood and am 33 so I thought it could just be related to huge bart load in brain with tons of biofilm.

My neuro symptoms did not come on over night like they are purported to do in typical PANS cases. But I stumbled across a lecture by Dr Frid on youtube who treats PANS - she calls it 'infections induced autoimmune encephalitis" being clear that the infection is still there and needs to be treated along with the anti-neuronal antibodies. It was my decision to test for it. My LLMD's never thought to test for it and two talked me out of it.

Then when I found I was positive (very high for anti-dopamine receptor-1 antibodies, very high for anti-tubulin antibodies, and borderline for all others). I networked among local lyme patients in Cincinnati,where I live, and luckily found a bart/pans patient who had been treated by this local neurologist. She is not lyme literature and doesn't specialize in PANS. She is basic MS neuro but she is young and open minded and smart - so she prescribed the IVIG under the diagnosis 'autoimmune encephalitis.' never use the term PANS or PANDAS - insurance companies often instantly reject it. Luckily, it went thru and insurance covered it. Haven't noticed anything yet but its only been 4 days.