Feeling like I'm dropping through the floor / POTS

This may sound a bit odd, but I'll try my best to explain it.

Has anyone ever experienced the feeling where you're standing still but it feels like you're in an elevator that just dropped a floor or like the ground is swaying or bouncing beneath your feet even though you know its not?

I'm not talking vertigo, balance issues or anything of that sort, but over the past few weeks as I've stabilized on my bicillin shots after having a Vaso-vagal setback 5 weeks ago (and I've been feeling really good the last 2 weeks even while waiting to talk to Dr. K to get back on IVIG), I've noticed I've had a few of these episodes and it's brand new to me. They only last a few seconds usually, and it's only happened a few times until yesterday. I've also been standing totally still when they occur, no positional changes or anything of the sort.

Yesterday it went to another level because it happened several times in one day and it even kept occurring while laying down (and while laying down it lasted for at least a few minutes or longer) - it can be extremely disconcerting because it feels like the ground is moving beneath your feet. Google search says it's likely a product of anxiety which would make sense since I've had some mild anxiety issues for much of my life and crippling anxiety was also close to my worst symptom during my lyme/bart battle... but why now? I've never really added a new symptom over the last 1.5 years that I've been stable except for a few setbacks while experimenting with different supplements. I also noted that my HR was over 100 when I experienced it while laying down, and my HR has never done that while laying.. so it fits the anxiety profile. I still have dysautonomia and some POTS (mostly just a high heart rate when standing up) so I'm wondering if perhaps it could also be an exacerbation of the POTS.

As I've stated in multiple threads before, I'm at the point where I'm pretty certain that it's an autoimmune/autoinflammatory condition caused by persisters (since bicillin works so well) and that IVIG is needed to really shut down that response (i can survive on bicillin alone if needed but I'm trying to get to 100%). However, a small portion of me wonder if while taking of the Ross protocol for persistors (I took Liposomal oregano oil/cinnamon/clove combo for a month, and added JK, SA, and Hout for about 2 weeks before the Vaso Vagal attack hit me) that maybe I released something. It's way more likely that my autoimmune response is still super pissed off from the episode 5 weeks ago and caused this, but again, In my 4 years of being sick and the last 1.5 years of being pretty stable most of the time, I've never really added a new symptom. I was also away from home this weekend which worsened my anxiety considerably, but usually it's just anxiety... and not feeling like the floor I'm standing on is about to drop.

holy basil for the looming anxiety really helped in the meantime. also chewing raw licorice is close to aldosterone and help me function a bit if i had to go in public . hong kong makes a inhaled synthetic aldosterone but idk if one could obtain it anymore...

the hpa axis and nitric oxide production "inflates " our proverbial balloon so work on healing those aspects.when the pressure drops the heart has to work double time to get blood to extremities which explains sudden tachycardia. fwiw i remember l planterium probiotic in large doses helped my fingers from flattening ...

Post Edited (bluelyme) : 2/21/2022 9:49:00 AM (GMT-7)

I used to have that kind of sensation. Alternatively felt like my legs were floating while lying down—very annoying. I’m not sure which infection it was but treatment helped with both of those issues.

woodhead said...
I get the elevator drops every night. They tend to come on when I'm generally sleep deprived, particularly when I'm exhausted around dawn after a long night of wired-but-tired insomnia. They often come on as my body is finally desperately drifting into sleep due to complete exhaustion. I'll get an elevator drop that jerks me right back into wakefulness. It's pretty horrible and sometimes happens 30-40 times before I make it past the threshold and into sleep.

Hi woodhead
Welcome to the forum.
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