This is an interesting topic for sure. I think Lyme people have to be careful. Of course, being chronically ill is emotionally traumatizing. I don't see any way around that. There are methods out there, includingh psychedelics, for better long-term coping with chronic illness. There is definitely value in that. In fact, I think it was a Johns Hopkins video I watched a little while back where they were enrolling terminal cancer patients into a study where the patients took a dose of some sort of psychedelic in a safe controlled environment. The result was, even some time after the experience, most patients were not afraid to die anymore. That's freaking cool man. I mean...wow! However, and this is important, their cancer didn't magically disappear.
However, I fear those who are legit physically chronically ill could be gaslit into believing their illness is all in their head. This is dangerous in multiple ways. The person could then conclude their illness is their own fault and if they could just mentally change everything will be fine. They could stop seeking help when a treatment could help their physical condition. There is lots of bullcrap pseudopsychology out that teaches if you can just envision it then it can come to reality or if you only just thought positive thoughts then all your problems would disappear. I admit I fell for this line of thinking a few years into my illness. I told myself I was going to stop treatment, simply live healthy and get on my with life. Whatever happened I would simply handle it in my mind. This didn't work, of course, because I was I had/have a chronic physical illness. It can't be wished away.
As far as not responding to treatment, this is common. Either progress is painfully slow, creating the illusion that nothing good is happening, or treatment has plateaued and another approach is warranted. This happened to me a few years ago when I felt stuck with antibiotics. I switched to Disulfiram, and while initially herxing badly, made some good progress after a few months.
I don't know your particular situation so I can't say whether you are actively physically sick or not. I would claim that if you take a survey, such as Dr. Horowitz's MSIDS questionnaire, and you score highly then you are probably still sick.
Just wanted to add that even illnesses that have been traditionally defined as "mental", "emotionally", "psychiatric", "hysteria", etc. are now becoming seen more as psychical illnesses.....particularity around immune issues and consistent cytokine storms.
Post Edited (Lymie24) : 3/15/2022 11:53:26 AM (GMT-6)