Is It Likely That I Might Have Other Conditions?

Hi everyone,

So, I have been thinking and wondering to myself, why is it that I feel so bad all of the time. I never get even the slightest moment of peace. So, could it be that I have other stuff going on?

Here are the notes I wrote today. I am just going to copy and paste them. I'd like to know what you think. I am leaving some of my symptoms out purposely, that way it doesn't become too much for the provider(s) that I see.

"Health - Ear Infection/Tooth Infection? - 2022-04-06 at 11.00 PM

Wake up with ear pain, gum pain, facial pain, tinnitus, dizziness, vertigo (and general equilibrium problems), anxiety and fear. My left side is the side that seems to be the problem as far as my ear. The mouth pain comes from the top.

Within the day, my vision feels off. I can’t explain it, but it’s scary. It generally feels like there’s a rock inside of my head, and there’s often pain there all of the time. I’ve considered BPPV, but for the type of vertigo I have, I feel that seems unlikely, unless it’s a contributing diagnosis.

I’m sensitive to many foods. Eating a mostly low histamine diet has helped me, however it’s hard to gain weight, so I have to juggle. I’m worried about my weight loss. It seems my body can’t keep fat on.

Many of these symptoms will stay throughout the day. Sometimes they leave randomly and come back without warning, regardless of what I do, eat, etc.

Have you considered that I might have more than one illness, hence the large amount of symptoms?

I’ve done lots of various testing. I have high compliment c3a and even higher C4a (within the thousands). High hydrogen in SIBO testing. Doctor’s Data GI 360 Gut testing says I have high clostridium as well as salmonella present. Some things constantly change, such as my Vitamin B12 or D levels, as they seem to go up and down often. This was also the case with my phosphorus at one point when this craziness all started.

In 2018 when I had similar symptoms and pneumonia on top of it, I took Doxycycline for a only week or two and everything seems to go away as some time went on."

What do you all think? Can I have something going on that has spread? Can I heal from this. Definitely in a flare-like situation right now. The ups and downs throughout the day are maddening. I am afraid of treating my issues due to my sensitive and reactions as well, so I feel really stuck.

I hope you are all feeling better today!

Forest said...
Hi everyone,

So, I have been thinking and wondering to myself, why is it that I feel so bad all of the time. I never get even the slightest moment of peace. So, could it be that I have other stuff going on?

Here are the notes I wrote today. I am just going to copy and paste them. I'd like to know what you think. I am leaving some of my symptoms out purposely, that way it doesn't become too much for the provider(s) that I see.

"Health - Ear Infection/Tooth Infection? - 2022-04-06 at 11.00 PM

Wake up with ear pain, gum pain, facial pain, tinnitus, dizziness, vertigo (and general equilibrium problems), anxiety and fear. My left side is the side that seems to be the problem as far as my ear. The mouth pain comes from the top.

Within the day, my vision feels off. I can’t explain it, but it’s scary. It generally feels like there’s a rock inside of my head, and there’s often pain there all of the time. I’ve considered BPPV, but for the type of vertigo I have, I feel that seems unlikely, unless it’s a contributing diagnosis.

I’m sensitive to many foods. Eating a mostly low histamine diet has helped me, however it’s hard to gain weight, so I have to juggle. I’m worried about my weight loss. It seems my body can’t keep fat on.

Many of these symptoms will stay throughout the day. Sometimes they leave randomly and come back without warning, regardless of what I do, eat, etc.

Have you considered that I might have more than one illness, hence the large amount of symptoms?

I’ve done lots of various testing. I have high compliment c3a and even higher C4a (within the thousands). High hydrogen in SIBO testing. Doctor’s Data GI 360 Gut testing says I have high clostridium as well as salmonella present. Some things constantly change, such as my Vitamin B12 or D levels, as they seem to go up and down often. This was also the case with my phosphorus at one point when this craziness all started.

In 2018 when I had similar symptoms and pneumonia on top of it, I took Doxycycline for a only week or two and everything seems to go away as some time went on."

What do you all think? Can I have something going on that has spread? Can I heal from this. Definitely in a flare-like situation right now. The ups and downs throughout the day are maddening. I am afraid of treating my issues due to my sensitive and reactions as well, so I feel really stuck.

I hope you are all feeling better today!

“ So, I have been thinking and wondering to myself, why is it that I feel so bad all of the time. I never get even the slightest moment of peace. So, could it be that I have other stuff going on?”

Other stuff? I can tell you that Lyme and coinfections is enough stuff going on.
I was in horrible condition - before I knew what it was.
So much pain, poor brain function, so many symptoms from head to toe.
Cried every single day for months.

But here I am now - back to work and planning a family vacation.
And the bonus? My marriage wasn’t ruined. (Thank God!)

It’s a very long haul - hang in there!!!!

The tooth and jaw pain is definitely borrelia. I got this when herxing and it eventually went away with prolonged antibiotic use.

Is there other stuff going on? Probably yes. There has been a lot of discussion on this forum of adrenal insufficiency and abnormalities of vitamin D metabolism. I suspect many of us have these pre-existing conditions, and the infections aggravate it.

The vitamin B12 (and homocysteine) thing is often a sign of adrenal stress.

I wrote this right after the other yesterday but I forgot to finish it. Wow lol. Here it is...

My next step is to do another ERMI after I fog the place with BioBalance and then afterwards I will clean again, then I am going to fog again to be extra safe. Once I am in the clear, things will be good and I can be upstairs again. From what my mold inspector said, there isn't too much mold here, but based on the ERMI, she said it would be wise to clean what is here up and get the air clean, that way I can progress in my healing. Then after I can start using binders and such (which I am not on and also have never used before). My plan was to start on something like Perilla, which is one of the very best things you can use for MCAS, being that it is pat of the mint family. I would start with something like 1/30th of a a pill, as my doctor recommended. I would then layer a bunch of other things as well, then Would start a binder such as charcoal being that my main issue was/is trichothecenes. My mold mostly came from my old air conditioner though. Sleeping next to that likely did me a lot of damage. As time goes, I will likely need antifungals, antibiotics, etc. or at least I think I would. I guess we'll have to try things as they come. I am just hoping I don't hurt much worse than I already do.

Forest said...
I wrote this right after the other yesterday but I forgot to finish it. Wow lol. Here it is...

My next step is to do another ERMI after I fog the place with BioBalance and then afterwards I will clean again, then I am going to fog again to be extra safe. Once I am in the clear, things will be good and I can be upstairs again. From what my mold inspector said, there isn't too much mold here, but based on the ERMI, she said it would be wise to clean what is here up and get the air clean, that way I can progress in my healing. Then after I can start using binders and such (which I am not on and also have never used before). My plan was to start on something like Perilla, which is one of the very best things you can use for MCAS, being that it is pat of the mint family. I would start with something like 1/30th of a a pill, as my doctor recommended. I would then layer a bunch of other things as well, then Would start a binder such as charcoal being that my main issue was/is trichothecenes. My mold mostly came from my old air conditioner though. Sleeping next to that likely did me a lot of damage. As time goes, I will likely need antifungals, antibiotics, etc. or at least I think I would. I guess we'll have to try things as they come. I am just hoping I don't hurt much worse than I already do.

Thats a good plan - clean up the mold and treat the mold.
Then you can focus on the Lyme and coinfections.