loratadine and valproate

wladek83 said...

It feels like it comes and goes. Perhaps it takes years of antibiotics and a maintenance protocol afterwards (just like Girlie does it) to achieve a lasting remission?

The antibiotics (atovaquone, azithromycin, minocycline) got rid of the bart symptoms pretty quickly. I'm just frustrated that it relapsed at all. I'm going to have to do another round of valproate to try to drive out any remaining bartonella so I can kill it. Or I will just have to do a maintenance protocol where I take more antibiotics from time to time.

I'm also noticing the thing where the antibiotics are effective only when combined with mepron. Somehow atovaquone overcomes the antibiotic resistance.

I am still getting some muscle aches (borrelia herx) from the abx, so I haven't fully eliminated that either, but the herx is a lot less than it was a few months ago.

Girlie: I see you've been treating since 2013 with herbs and some abx here and there. I guess the real progress kicked in when you started treating with Jemsek and introduced Rifa+Dapsone+Xylitol?

wladek83 said...
JMF84: what's your protocol?

I've done a variety including some of Dr. J's protocols, but I seem to have this problem of two competing significant infections. Seems like I have to keep rotating to improve. Current protocol is a bit complicated, but I'll try to outline it here:

Rifampin 300mg 1 or 2x every day
Minocycline 100mg 2x day m/w/f two weeks on/one week off
Septra DS 1x day every 3-4 days two weeks on/one week off (this dosage may increase depending on progress)
Cryptolepis up to 1 tsp. 3x day m/w/f every week
Houttuynia up to 1/2 tsp. 3x day m/w/f/ every week
Artemisinin up to 300mg or so 2x day m/w/f two weeks on/one week off
I may take Tinidazole and Diflucan pulsed at end of one of those weeks.

What seems to happen though when I do the protocol like above is that it will help me but then the "herx" will build until I feel like I need a break. So I take a break and then start back on only Rifampin and Tinidazole, and Tinidazole gives me this big herx. I only tolerate lower doses but it helps me build out of the "herx" and eventually I feel better after the Tinidazole herxes, and I can go back to above protocol.

It's a bit strange I guess. I still don't know exactly what Tinidazole is hitting. Even wondering if it's hitting Babs, some other parasite, or Lyme cysts.

I started loratadine+valproate again, this time taking claritin (loratadine) every other day to give my immune system time to recover.

I am getting some herxing, but much less than before. Mostly the depakote (valproate) is making me sleepy.

I'm getting muscle aches (herx) and funny smelling urine. It doesn't smell like bartonella. The smell is a weird mix of ketones and vinegar, like apple cider gone bad. Sometimes the urine is opaque or cloudy.

Quin said...
Less muscle aches now, but still a lot of detox. Woke up last night sweaty and dehydrated.

Sounds like a typical BB/BLO Herx. I've had that the first time I took Clarithro. It wasn't just sweaty - it was a new definition of sweaty!

After being off the meds for 2 weeks, I am still herxing, but it has lessened. Still some muscle aches in certain spots where the bacteria were.

Somehow I got covid again, so now I'm taking mepron.

After 6 weeks, the herx is finally going away. Still some muscle aches, but otherwise I feel okay.

I'm going to take a few more weeks to recover before I do another round.