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Mycotoxins Higher after Antifungal Treatment / Lumbrokinase

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Posted 10/5/2022 2:38 PM (GMT 0)
Hello all,

I have high levels of mycotoxins per the Realtime test. I've done three tests, one in August 21, another in February 22, then another a couple weeks ago. My levels were quite high across the board for every one on the first test I took in August of 2021, reduced by about 50% with a couple going below the positive threshold in my February 2022 test, after taking binders for several months, then much higher on my most recent, higher than even the first round. Since February my doc put me on antifungals and I was tolerating them pretty well, including a full strength script for fluconazole, nasal sprays, etc. I've been on a full dose of ultrabinder for several months and had been tolerating it without issues. The test results surprised me, as I'd been on a more aggressive antifungal regimen and had tolerated it, and we both had kind of crossed mold off the list as a treatment priority.

I am confused as to why my levels might be higher now. I did the mold tests in my home and found nothing, and the fact that my levels declined initially led my doc to say there was no chance I was still being exposed. I spent the summer outside mostly and can't think of any new indoor environmental risks. I'm wondering if it could be either the summer weather, when apparently mold is more common, or maybe related to taking lumbrokinase for bartonella, or maybe upping my glutathione (I had doubled my dose for the few months prior to this test), or possibly related somehow to the babesia treatment I started a couple months ago (mepron, clarithromycin, plaquenil), which has been helping a lot with my overall energy levels. My best guess is that the lumbrokinase caused some sort of extra release of toxins into my blood stream. I had to stop taking it a month ago because it was making my MCAS/nighttime pain flare so badly and my doc wanted to focus on the babesia for the time being.

Just wondering if anyone else has had a similar experience. I'm finding my doc's treatment plan to be a little bit all over the place with the amount of ailments I have, and it's been complicated considerably by lack of information (didn't know about mold until six months in, didn't know about babesia until over a year into treatment, etc.) I have to admit I've never been able to isolate the mold symptoms from bart/MCAS which has added to the confusion, and I know that opinions vary on mold and its significance, and I must admit I've had some skepticism on its significance myself. Until I got this test I thought I had more clarity on the situation, and that my main long-term challenge was bartonella/MCAS due to multiple positive bart tests, but now things seem more foggy (not the first time, haha).

Thanks!
Posted 10/5/2022 4:52 PM (GMT 0)
“I did the mold tests in my home and found nothing,”

What mold test did you use? What did the results say?

Do you work outside the home or spend significant time in buildings other than home?

What is your car like? Any leaks or stains or smells? Have you examined the trunk/cargo area/spare tire well/underneath mats lately?

Glutathione could cause you to excrete more toxins.

Post Edited (WalkingbyFaith) : 10/5/2022 9:55:43 AM (GMT-7)

Posted 10/6/2022 1:16 AM (GMT 0)
Thanks for the reply. The weird thing is that literally nothing is different than it was when I took my second test and my levels had dropped - same car, same house, same job, etc. The only thing that's different the summer season. I think it's most likely related to the glutathione or something else with the treatment. Seems like the goalposts are constantly moving with this stuff... thanks again.
Posted 10/6/2022 1:54 AM (GMT 0)
Do you feel worse now than you did when you tested lower?

I went back and looked at your previous posts after I posted here. I saw you mentioned testing with mold plates. The mold doctors go by the ERMI test. I would not assume your house is clear based on mold plates. There are some good inspectors in the NE area. There’s also a mold dog in FL and in NJ.

If you have any mold related questions, don’t hesitate to ask. I and several others here have been through it and can share what we’ve learned.
Posted 10/6/2022 2:19 AM (GMT 0)
do you drink coffee , consume peanuts or cashews ? if not in environment may be in food . also could be biofilms releasing some levels maybe
Posted 10/6/2022 4:17 PM (GMT 0)
Thanks a lot for the replies -

Overall I've been feeling much better in the last couple months, which is the strange thing. I think my improvement is mostly because I went on babesia meds about two months ago. I've had more energy, less brain fog, overall just felt better, particularly because I had some acute babs symptoms that knocked me out for most of the summer - fevers, night sweats, cough, sleeping all day, chills, etc. I have been getting this sort of whole body histamine thing happening more lately, like my whole body itches, which I think is related to the mold. I was on lumbrokinase for a few months because my PEI-1 test showed me to have a biofilm problem and my doc took me off it because it was flaring the histamine issues ( I get bad histamine pain at night that prevents me from sleeping, all over lower body pain that registers the most as urinary pain and keeps me up). We thought it was the bartonella flaring but after seeing these mold numbers I think it was probably mold or maybe both.

I do drink coffee, not that much though, and haven't changed the amount since my levels were much lower. I try to limit the peanuts but have them occasionally.

I did do a full mold test in my house and it was clean, I had an expert come in with measurement tools. We spent the whole summer with the windows open, mostly outside, so I'm having a hard time finding an environmental culprit unless it's outside mold spores, which I've never blamed for mycotoxins, though maybe it's possible? I've also been wearing a full respirator when I have to do anything relating to old/potentially moldy things (my work sometimes involves handling old documents - but that's been a constant as well, and I'd improved the numbers with this approach so I don't think it's the cause).

Overall the general shape of my illness has been a longterm mold/bart/mcas illness (10+ years) with an added acute tickborne infection beginning in 2020. Diagnosing the babs helped a lot with clarifying this, as I'm coming back to my 2020 baseline energy levels on the babs treatment, and now nearly certain the babs arrived in 2020. I'm not sure when I got borrelia or bartonella, it could have been any time during this period or even before, as I had cats and cat scratches as a kid. I had a lot of exposure to mold about ten years ago - a ton of it, working in a moldy record store, when my pain started, but I was also bitten by several ticks during that period. It's all just so murky - I can't tell the difference symptom-wise between mold and bart, and have positive tests for both.

Thanks everyone - this forum has been so helpful for me!
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