Girlie and others please give your input....

Hi everyone, good afternoon, hoping for a bit of advice...

I have been sick since July 2021. I have been mostly focusing my treatment on Bart and Lyme. I did a 3 month stint of babesia treatment from July to October 2022, but my bart flared so badly I had to abandon that and switch back to bactrim/rifampin. I have been on bactrim/rifampin/mb and liposomal cinnamon clove and oregano oils since end of October. I have made some progress but then added Lumbrokinase and really slid backwards about 6 weeks ago. The lumbrokinase intensified both my bart symptoms - leading my dr to increase my rifampin dosage from 600 mg a day to 900 mg a day, but also new symptoms (or maybe they were there before but not as noticeable/worrisome).
These "new" symptoms include occasional POTS, increased HR again not ALL the time, but a good bit of the time - as an example, if I carry a basket of laundry up one flight of stairs, my HR is over 140. I am 41 and a normal weight, and prior to the tick bite very fit. So this feeling of shortness of breath and zero endurance is a bit scary to me. I also cannot exercise. If I do try to ride the peleton I feel fatigued after for about an hour and it takes time for my heart rate to calm down. I think what i am wondering is does this sound like babesia needs another hit now that I've focused on Bart only for about 6 months? I don't get a lot of night sweats type really obvious babesia symptoms to be totally honest....

“These "new" symptoms include occasional POTS, increased HR again not ALL the time, but a good bit of the time.”

- This could be MCAS as a result of the lumbro plus the increased Rifampin dosage. Dr. M, the bart guru, focuses a lot on MCAS before and during treatment, as bartonella seems to really trigger it. Are you doing anything for MCAS?

“So this feeling of shortness of breath and zero endurance is a bit scary to me. I also cannot exercise.”

- While air hunger is often connected with babesia, it’s different than SOB, in my experience. During the period that I had “air hunger.” it was not triggered by physical activity. During my early life, it was random and felt like I couldn’t get a deep enough breath and would trigger yawning trying to get that deep satisfying breath. After getting full blown Lyme/co symptoms following a illness with bronchitis in 2015, I developed significant air hunger that was constant and scary.

On the other hand, I have experienced shortness of breath in conjunction with zero endurance and exercise intolerance. That, I believe, is cellular hypoxia and capillary hypoperfusion. It can occur from too many toxins as a result of active treatment, herxes, mold exposure, excessive detoxing, post-virus, etc.

For example - I recall times when I was vacuuming or cutting the grass. I started feeling all the energy drain out and my muscles couldn’t move anymore. I collapsed on the floor or in the yard, gasping for air. I recovered pretty quickly, though, while others have ended up bedridden for days from such an event.

Post Edited (WalkingbyFaith) : 4/12/2023 4:11:50 AM (GMT-8)