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Vestibular Migraine - dizziness, confusion

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Posted 6/21/2009 11:34 AM (GMT 0)
I have suffered with dizzy spells all my life, ever since I can remember. It last anywhere from 30 minutes to an hour. I know when I am getting one because my legs feal weak. I have loss of coordination, full ears, slurrred speach. Sometimes if it is not too bad I don't get all the symptoms. I have been diagnosed with migrain varient. I asked my doctor how she came up with that diagnoses and she said it was process of elimation. I have tried numourous drugs. I have been on Topamax for many years now. At first I thought it was helping me but now I am not so sure. When I get a lot of activity such as arobic excerise it seems to trigger theese spells. I also do not get a headache with theese spells. I do not recall anyone in my family having spells like theese. Now my grandson has them. He is 8 and he started having them when he was just crawling. I came up with vistibular through research. It is very frustating. I am 54 now. When my grandson was diagnosed, the doc said children usually outgrow this. Well I never did so I am not sure if that is even what I have.
Posted 7/4/2009 7:25 AM (GMT 0)
Wow am I glad I stumbled upon this website. I have suffered from migraine for years now. At first they were pretty sever with numbness down my whole left side, vomiting and alot of pain. As I got older They seemed to drop off in frequency. Lately, oh I say in the past 5 years, they have been mild. I do get the aura then pain in back on my head usually in left side.

Yesterday I had an aura, got prepared and went to bed. As I laid there I noticed I seemed to be having heart palpation's and it seemed like I had to concentrate on breathing or I would stop. These are new symptoms to me. I drifted off to sleep only to be awaken hearing people talking and not recognizing what they were saying. I knew the words but they didn't make sense. I called my mom on the phone and told her I couldn't understand the words in my head. Of course she thought i was cracked and needed a trip to the er. I felt very confused. Then I was hit with a feeling of emotional overload. I laid and cried not knowing why. I was scared at this point. Never had this happened to me before. Then I rolled over and the room started spinning.

There was still no pain in my head. I thought maybe i needed to get out of bed and distract myself. I rode along in the can for a short ride. I have never in my life been car sick but...this time I couldn't go very far and i needed him to pull over. I still only had mild pain in the back on my head on the left side. The following day I didn't seem to have the same tel-tale sign of day after migraine headache but i was real tired and thirsty.

Does anyone this sound familiar to anyone? Is this all related to some type of headache?
Posted 7/11/2009 6:17 PM (GMT 0)
It's helpful to read all the responses here.  My episodes are a bit different as I also get severe shaking that I can not control.  I have almost no warning when this occurs.  Sometimes I feel slightly off and other times I have no warning.

 

I had severe classic migraines for several years that were excruciating.  Aura flashes, worst headache of your life...you name it.  Did a modest lifestyle change and it really eliminated them.  Went to no preservatives in food, LOTS of water and broke up my daily exercising into am and pm hours instead of all in the morning.

 

Then BAM!  Three years later I'm at work and start feeling an inability to concentrate.  A little coffee and lots of water do nothing until I'm shaking so bad I can barely walk, my temperature drops to 95.5, I'm dizzy as anything, somehwat nauseous but no headache.  In the few weeks since then it's happened numerous times w/out any discernible triggers.  My labs are taken each time. I work in a large clinic as an administrator so I just walk down the hall to be seen.  There are a smattering of random mild abnormals that also have no discernible patterns. 

 

Like anyplace else; the good docs have long waits for an appt but you can get to see the bad ones easily.  I just changed docs since the first one jumped right to me having an extremely rare form of the rarest form of migraines w/out further testing.  The jerk also told me there was no medication he would give me unless this really happened "a lot". 

 

What kinds of work ups have the rest of you gone through?  I really appreciate hearing about your experiences!

 

 
Posted 9/1/2009 7:18 PM (GMT 0)
Wow, I've been experiencing a lot of the same symptoms! I get common migraines (awful pain on one side, feeling foggy and dizzy) once a month around my period, but I've also had some really scary episodes in the past few months that I think is a type of migraine without pain. Sometimes there's a telltale twinge in the back of my head beforehand. It usually hits me suddenly with a heavy-headed feeling, dizziness, confusion, extreme sensitivity to light (sometimes looking at a particularly bright light can set it off, or going from dark to light like from a theater), sweating, and shaking uncontrollably like I'm cold. It's terrifying, and I think I'm dying every time!

I've been to the ER once, everything came back normal. Numerous visits have resulted in every blood test imaginable, all normal, clear CT scans of head and sinuses, negative allergy tests...it's so frustrating! I almost WANT them to find a negative result so at least I know for sure what it is and how to treat it. However, the more I read posts like these, the more I think it's a variation of my migraines. They always seem to get worse when I'm tired or when the weather changes. Now there's a ton of wildfires all around us here in CA, so I'm afraid a migraine is probably coming this week, ugh.

It's good to read that I'm not alone, I'm not crazy, and no one else's doctor seems to be able to find a cause! Although I really hope that one does eventually...
Posted 9/3/2009 8:57 PM (GMT 0)
Hi I am new so sorry if this is not right. It has been 17 years now that I have suffered with vertigo, migraines, painless migraines, confusion, nauseous, blurred vision, so on and so on. The vertigo could last days or weeks. Could not get out of bed  or lift my head with out throwing up.

I got vertigo first in 1992 than in 1994 I had stoke like symptoms found out it was painless migraines.    I have been to many doctors, taken many test and try many different things, Chiropractor, Accuputure, tilting of the head every morning and night for 3 months, tried many meds nothing really worked  except the meclizine. I was dizzy or drowsy. It come in episodes and can last weeks or even a month the breaks are about the same week or month between. The vertigo never goes away just lightens.

My Migraines are with and with out pain not sure why.  However I have found that if I have at least a 1/2 cup of coffee, within the first hour I am up in the morning I am able to have a pretty good day. If the migraine starts in the middle of the day I can go to starbucks and get a double shot and that will help. I hate coffee but I have found that it will open the vascular and relieves my migraine to the point I can handle my day.  My family know if I don't have my coffee within the first hour we are pretty much taking care of mom for the day. It is worth a try but the first hour is the trick I try to have it first thing.

Now my left leg is in pain all the time. The muscle feels indented and I have RLS really bad, it  make a long night.

I have never gotten a straight answer from the doctors I have seen. I got past to doctor to doctor just to get frustrated and I would take a break for 6 months before I was so sick and would try the doctors again. Depression was so bad, I was on many anti depressant for over 10 years. It just made me gain weight every time they changed my medicines. I changed my diet, watched everything I ate, I feel like I have tried everything.

Last January I took my self off all medicines and I take vitamins, my coffee and meclizine on my really bad days. I feel better now than I did for years. I think I have learned to live with it. Believe me I know it is not easy but mind over matter really helps and God helping hand. I never stand alone

IT IS REALLY SAD THAT WE ALL NEED TO GO ON LINE TO FIND OUT WHAT IS WRONG WITH US!! THE DOCTORS WILL MAKE YOU FEEL CRAZY AND LIKE WE ARE MAKING MORE OF IT. THIS IS REAL  THIS MAY NOT BE LIFE THREATING BUT IT IS LIFE ALTERING.  sorry about the spelling I use to be much smarter and able to think more clearly. HANG IN THERE TO ALL

Posted 9/13/2009 1:41 AM (GMT 0)
New Member:  I had my first migraine when I was 8 yrs old and have been through all the variations.  From 8 to 21, I had classic migraines- auras, emotional rush of dying, temp blindness in one half of visual fields, numbness in tongue (unable to verbalize) numbness down arm- all these things came in order and lasted about 20 min.  Nausea- then headache. 

OK

then at 21, I started getting dizzy- would have to hold onto the bed to keep from spinning off into space. No headache, though.  Doctors gave me anti-vert and checked for diabetes.  Nobody associated this with migraines.  It's kind of like sea sickness or after effects of being drunk.  The one common effect with all of this is the groggy, dopey, stupid- unable to think clearly- state that I experience frequently.  I was reading along and discovered Janet Jackson has a "mystery illness" called "Floating Woman's Syndrome"- I checked it out and lo and behold- it's called a vestibular migraine!  My migraines didn't stop like I thought- they just morphed into a different set of symptoms.  Surprise!!

Now- at 62-  I am also having ocular migraines- again, no headache- just a delighful light show.  Lots of zig zaggy patterns with rectangles and triangles- some of the little boxes are filled in with the whitest white and blackest black you ever saw. I also get colors- blue, yellow and red. I get neon lights in undulating patterns.  I just sit back and enjoy.

When I mentioned Floating Woman's Syndrome to my doctor, he didn't know what I was talking about- so they are still not teaching this stuff in med school.

I happened across a Rx for Elavil (for fibromyalgia- which sometimes feels like a migraine in my whole body) and discovered that it  also works to clear up the dizziness.  Elavil is an on/off switch, however. If I am dizzy, 10 mgs will clear it right up.  If I am NOT dizzy, Elavil will bring it on.  So I have to monitor it.

Just be happy we have the internet- I think with the coming scary changes in health care delivery, we will all have to diagnose ourselves and then hope we can get to a prescriber.

Posted 9/13/2009 1:49 PM (GMT 0)
Thank you for your responds, You are right this has taught me more reading and talking to people than any doctor so far.  I wonder after 17 years if I will ever get better but the problems seems to add on.  I have learned to live with it and I am blessed to have a husband that take care of me. My God bless each of you that don't have this support I have. Some day someone will get it right and help us all. I just worry that my children will develop this and I won't be able to help them either. Is there anyone that their children suffer from the same thing you do? Is it passed down? I would like to hear if anyone has experienced this with there children?  Just to know what we are up against. THANKS--- Michelle
Posted 9/19/2009 2:21 AM (GMT 0)

Wow, so many of us and so little is known about our condition.  Physicians are hopeless.  I am now convinced they only know what they read on pamphlets handed to them by pharmaceutical companies' sales reps.  After my second bout of incapcitating vestibular migraine started almost two weeks ago, here I am today yet again seeking a solution to my problems on my own.  I was diagnosed with VM 4 years ago by a qualified neurologist after consulting with numerous specialists and charlatans for months.  I was on Topamax for 2 years until I took myself off of the meds.  I led a normal, migraine-free life until two weeks ago. 

The dizziness, blurred vision, lethargy, nausea, loss of appetite, irritability, slurred speech, being unable to understand anything at all, make sense of anything or think logically, and the throbbing headaches led me to see an ophtamalogist today to rule out yet another possible reason for feeling like crap.  Of course, all is well with my eyes.  I will be headed back to the GP for another Topamax prescription which helped a great deal the first time around.  I concur the Dopamax feelings, however, which I am not looking forward too.

So little is known of the brain, there is probably no greater remedy than to listen to our bodies, eliminate any migraine triggers from our diets/lifestyles, and pray our employers will be understanding of our conditions most only understand as a "headache".

I just came back from a 3 wk vacation, having spent the last week in agony.  Tonight is better but I fear waking up tomorrow as I did this morning.  Going to work on Monday and dealing with everything that has been waiting for me these past weeks will most likely be excrutiating if I don't feel better before then.

I read organic Apple Cider Vinegar with the mother can often help with migraines so I've been at it.  Anything else natural anyone can recommend that has been tried and true?

Thanks for all the feedback.  Reading I am not just going crazy and my symptoms aren't just a figment of my imagination is comforting.


Post Edited (KillTheMigraine) : 9/19/2009 12:23:07 PM (GMT-6)

Posted 12/14/2009 6:39 PM (GMT 0)

I was finally diagnosed with Vestibular migraines in February of this year.  It was a long road to get there though!  I spent a year and a half going to doctors and having every test known to man done to me.  It was expensive, to say the least, and I ended up no better off than I was in the first place.  My symptoms were/are of nausea, dizziness, lethargy, blurred vision, slurred speech, irritability.  I felt like I was really car sick all the time...even when I wasn't in a car!  I ended up gaining about 40 lbs because food was the only thing that pushed the nausea down long enough for me to feel human.  But, it was only a small window of relief and the symptoms would come back with a vengeance! 

I had pretty much given up on ever feeling good again when I was going to what I decided was my last doctor appointment.  I was tired of the doctors acting like I was some sort of hypocondriac and that I should feel fine because there was nothing medically wrong with me.  So, this was it for me.  I went to a neurologist.  He almost immediately gave me the diagnosis of vestibular migraines.  He put me on Lamictal the first time around.  It didn't work.  I went back and he put me on Gabapentin.  I started out taking 100mg per day.  Once he realize that was working we eventually got up to 300 mg per day to get rid of most of the symptoms.  I have to say, I've felt almost normal for the first time in a couple of years.  Of course, he told me to eat right and exercise daily which also help.  And I don't feel 100% all the time, but I'd say I'm at about an 80% average.  I can certainly live with that after everything I've gone through.  He did tell me my results were above average.  So, I just wanted to share what worked for me.  I hope someone else can get some relief from VM because I know what a nightmare it is.

Posted 3/23/2010 12:18 AM (GMT 0)
I have these exact symptoms. Did you ever get to the bottom of the problem. I realise this is an old post but thought I would ask.
Posted 3/23/2010 12:49 PM (GMT 0)
I was diagnosed with Vestibular migraines.  Taking Gabapentin (generic Neurontin) 3 times a day and staying away from caffeine and sugar as much as possible has helped.  I still have some bad episodes occasionally but my quality of life has improved significantly. 

Posted 11/11/2010 4:35 PM (GMT 0)
Hi, is anybodyout there? No posts for a long time. I'm new and I desperatelyneed you guys. My husband has these migraines although his stupid meurologist says it's purely psychological and has dropped the ball. Please keep going on treatments you're trying!
Posted 3/15/2011 4:08 AM (GMT 0)

For those looking for medication that will help with vertigo ask your doctor for valium.  It really has made a difference in my  life for my serious bouts of vertigo.

Posted 3/15/2011 5:55 PM (GMT 0)
And this doesn't knock you out?  Incidentally, my husband's psychiatrist said these types of migraines are so rare that he also ruled it out.  Thinking now it might be diabetes causing the dizzyness.

Posted 4/17/2011 9:36 PM (GMT 0)
I have been suffering from dizziness for almost 4 years now. It originally started out as just feeling off balance when I sat for long periods of time but then I started feeling it when I would stand and then when I would work out. For awhile, I stopped driving altogether and now I only drive for short distances. I am in college so it is so hard to keep up with everyone else. The most frustrating thing is that no one else knows that I feel this dizziness constantly, every day. It is a hidden condition. I take valium and glycoporate. I have gotten two MRIs that have both been clear. I have done vestibular rehab for 2 months but there was no difference. I just finished a month of Topomax, but I found no difference with that either. If anyone has any ideas of steps to take next, please let me know. I've seen every neurologist for the ear, eyes, brain, etc.
Posted 4/18/2011 11:26 PM (GMT 0)
BethStew-

I get something similar to your symptoms, except that mine begin just a few hours after an ocular migraine and continue constantly for up to two weeks. There is no headache but I begin to feel dopey, spacey, fatigued, a drugged feeling, or sort of like feeling like I'm slightly brain damaged. It reminds me of how I felt after waking up after being given anesthetic and can still feel the anesthetic. It's very debilitating. I feel like a zombie. Waking up is very hard because my eyes feel very heavy and the symptoms are the worst upon wakening. I can't really drive, I don't return phone calls, I can't work. And it feels like I'm never going to improve. Recovery once it sets in takes a few days. Feels more like recovering from a lengthy illness or the flu. The first time I had it I saw a doctor and got some blood tests and a cat scan but they found nothing wrong. Since you first experienced this have you gotten any further answers? I hope you've found some help since your original post was years ago.
Posted 4/19/2011 1:00 AM (GMT 0)
Thanks.
Yeah, there really have been no answers. Now, they are just saying it is vestibular migraines. In fact, i went to the doctor this morning. And this particular doctor said there was no new medicine to try, no lifestyle changes to be made, and no diet changes to make. He wasn't the most optimistic. I just worry about my future abilities with work, having children. I don't want to be so dependent on people.
I have also found that one of the hardest things is explaining it to people. It is awkward and confusing and hard because even I have no idea what is going on...
Posted 4/19/2011 1:35 AM (GMT 0)
Green- You said you have seen every neurologist for the entire spectrum of the body, but have you been tested for meniere's disease? I'm sure they have already suggested that possibility but never hurts to ask. Have you used recreational drugs in the past to any extent? Particularly acid, ecstasy or amyl nitrate? what about tests for thyroid disorders? Diabetes?
Posted 4/21/2011 4:41 PM (GMT 0)
Hi all,

For many years i have had dizziness, vision, balance problems also thinking, cordination etc.. in recent years it had gotten more severe also not to mention i developed a social anxiety and withdrew from friends and life. Dr's seemed to just think i was stressed and recommended seeing a therapist and i finally got an appointment yesterday with a neurologist and they mentioned vestibular dysfunction - i failed to mention the severe anxiety as i just wanted to focus on the physical but only learnd that it is linked.

She recommended an MRI which is in 6 months to rule out anything more sinister - as 6 years ago MS was a concern, also a physiotherapist to help with this and some blood tests to check B12 etc.. I havent been prescribed anything and do intend on calling her on tuesday (bank holiday weekend in Ireland) to give her more details of my symptoms as when your sitting there and try to remember what little things affect you your bound to leave some things out..

My symptoms are: dizziness, poor depth perception, when walking and crossing a road for example i have to turn whole body to look not just my head as it nearly makes me fall over, motion sickness even when i'm not in a car or moving, i need to hold onto things when standing as i'm swaying, i have tinnitus, the breeze and wind affects me, my thinking and talking has been affected and understanding when people are explaining something etc.

I also have sinus problems, pressure in the head, ears and face, i have withdrawn so much and hope i'm on the right track now and find some sort of refief so i can live a half decent life and get out there and have fun again, even just see my friends as i have lost all confidence.. between this and the anxiety its the most debilitating thing ever. I'm 26 and have missed out on some pretty great years.

Looking forward to replies and advice..

Do you think the neourologist could be on the right track by the sounds of it?

Thanks

Chantelle
Posted 4/22/2011 1:06 AM (GMT 0)
ch1984-

My god, your symptoms are indeed truly horrible. And I can relate if anyone can. I'm so sorry to hear this is happening to you. it's bizzare. And the truth is there are thousands of rare diseases and illnesses out there and even more common ones that could cause your symptoms. everything from menieres disease to thyroid problems, to hypoglycemia, to diabetes, to brian chemical embalances, inner ear infections, other vertigo problems, even an allergy to something like some food or black mold in your home. It might be easy for them to figure this out, then it might take years and many tests. My geuss is they will probably do a lot of blood tests, ct scans, MRI's, and if they find nothing they will diagnose you with either anxiety and depression and send you to a shrink, or they will tell you that you have some kind of inner ear problem or vertigo complicated by anxiety. This is not a brain tumor for certain, it's very unlikely from what you describe.

I have suffered nearly my entire life off and on with severe symptoms that have often been just as bad. At your age especially it seems truly unfair. But your not alone. From the ages 15-18 I was a heavy marijuana user. By the time I was 18 I began feeling kind of like I was not all there and like I would forget where I was sometimes. I decided to stop smoking weed but it was too late. I woke up in the middle of the night not long after and felt like I had never felt before. It was like I was out of my mind. I felt like my brain was damaged. I felt so weird and it was terrifying. I changed my entire life. Began taking all these vitamins, eating right, joined a gym and started doing Aroebics, suana, jacuzzi and steam. I also took up lap swimming and jogging. All f this helped some but I still felt like I had some moderate permanent brain damage.

Possible a chemical embalance of the brain. It was constant and I learned to live in a nightmare world of mental torture. One day some 6 years after this began I met a guy who had the same symptoms as I did. He said a doctor put him on xanax and it changed his life. So I started seeing a shrink and finally convinced her to let me try it. Just hours after the first dose I began to feel like a human being again. I mean I literally felt the brain damage feeling begin to leave. Within 5 days I felt like a totally normal person again. I have no explination as to how someone could feel wacked out 24 hours a day 7 days a week for 6 years despiite exercise, vitamins, etc. then within hours of being on xanax could suddenly feel normal again. It was like a miracle. it's strange the things that can happen in the brain and how simply they can be fixed. I was perfectly fine for a long time after that, nearly 7 years, then I started smoking pot again for a short period of time. Big mistake. How stupid could I be? The symptoms returned and lasted 2 weeks then I recovered. And then they returned again and again over years lasting 2 weeks or longer.

Sometimes the symptoms were worse than they were in my teens, way worse. Since those days I feel fine, totally normal for as long as 3 to 9 months then I get sick again for reasons that are unknown. I haven't used any drugs for more than 17 years either. Still on all kinds of vitamins, tai-chi, yoga, kung fu, aroebics, none of which helps me much when I am ill. Over the years I have had dozens of CT scans, MRI's, blood tests for everything under the sun, had my heart tested, etc. Always the results show a clean bill of health. tested even when I was so sick I had to be in the hospital. when I couldn't even walk I was so weak, still all tests negative! Then two weeks later I feel totally normal like nothing ever happened.

My latest theory is candida overgrowth and that has offered some real hope. Since cleansing and changing my diet I had felt fantastic for more than 9 months, then I recently fell ill again. I keep pushing on, and you must too. I have been to hell and back. Your still young, and I hope and pray you get some real answers and I am rooting for you!!!
Posted 5/20/2011 8:40 AM (GMT 0)

Hi Beth,

I am sorry to hear that others have this terrible disorder. I have been having them since I was 10 years old and my symtoms consited of: blurred vision, lose control of walking and can't articulate my words (slered speach), double vision, cold sweats, and fealing nautious. I have been having them several times a month for about 13 years now. The most resent migrain was the last straw, so I decided to do a little reseach and I found some interesting information. Here is the article:

Vestibular Migraine

Migraine, a disorder usually associated with headache, can cause several vestibular syndromes. Migraine is extremely common. Studies suggest that more than 20 million people in the United States suffer from migraine and that about 25 percent of these experience dizziness during attacks. Sometimes this is referred to as migraine-associated vertigo or MAV.

The International Headache Society classifies migraine disorders into several types. Migraine without aura consists of periodic headaches that are usually throbbing and one-sided, made worse by activity, and associated with nausea and increased sensitivity to light and noise. Vertigo can occur before, during, or separately from the episodes of migrainous headache. Migraine with aura, or classic migraine, is associated with short-lived symptoms (noises, flashes of light, tingling, numbness, vertigo, and others) known as the aura. These symptoms usually precede the headache and usually last 5 to 20 minutes. In a variation called migraine with prolonged aura, these symptoms may last a week. Migraine patients may experience migraine with aura on some occasions and migraine without aura on other occasions. Symptoms of basilar migraine include vertigo, tinnitus, decreased hearing, and ataxia (loss of coordination).

Several vestibular syndromes are caused by migraine. Benign recurrent vertigo of adults (not to be confused with BPPV, or benign paroxysmal positional vertigo) consists of spells of vertigo, occasionally with tinnitus but without hearing loss. Doctors must rule out other possible causes before making a diagnosis of migraine-induced vertigo. Paroxysmal vertigo of childhood (not to be confused with BPPV) consists of spells of imbalance and vertigo without hearing loss or tinnitus (ringing in the ears). The majority of cases occur between the ages of 1 and 4 but may occur up to age 10. Migrainous infarction or complicated migraine is a migraine with aura associated with a stroke (blood-flow problem resulting in cell death); one of the symptoms may be vertigo.

In addition to the syndromes caused by migraine, several vestibular disorders have been associated with migraine. Studies indicate that people with migraine are much more likely than other people to experience severe motion sickness and may be more likely to suffer from Meniere's disease or BPPV.

Stress, anxiety, hypoglycemia, fluctuating estrogen, certain foods, smoking, and other factors can trigger migraine. Vertigo and imbalance secondary to migraine usually respond to the same treatment used for migraine headaches. Treatment of migraine includes eliminating from the diet substances known to trigger migraine attacks, such as chocolate, nuts, cheese, red wine, and other foods. Medications may also be prescribed.

vestibular.org."Vestibular Migrain".www.Vestibular.org.October 8, 2010. May 20, 2011. http://www.vestibular.org/vestibular-disorders/specific-disorders/vestibular-migraine.php

 The main thing that I found that stood out from the rest was that combination of vidigo that some symptom, where if one turns their head the migrains get worse. I hope you figure out what is wrong and I hope this helps as well.

Posted 8/5/2011 3:51 AM (GMT 0)
hi i suffer from vestibular migranes and have done for over 8 years now. i was only diagnosed with it last year though as they did every other test possible and nothign showed anything. i am on sandimigran tablets now and have been for 1 year now and it does help a little. before the medication i was lucky to get out of bed each day . i woudl feel constantly nausea, off balance and whenever i tried to anything more than just stand or sit still i would get the horrible sense of feeling ill and off balance. now with the medication i can go about my daily duties and onyl get it on occasions when i do alot of bending up and down things adn the odd occasion for no reason at all. my neuro has tried me on all the medications he think he can and has told me now he doesnt want to see me anymore because there is no more he can do for me as we have tried everything so now i have to live it. i have been to two neuros and now i just get on with it. still suffer with the problem but not to the degree i had in first place. but i can no longer drink alcohol cause that sets me off and cant do strenuous exercise and that too sets me off. i cannot travel in a plane,train or bus at all and vigourous movement makes me so ill.
Posted 8/22/2011 12:45 AM (GMT 0)
Hello Beth.

I suffer from meniere's disease and recently ( past 2 years ) been experiencing headaches and dizzy spells ( quick swwishes ) accommadating with nausea and blurred vision, sinus pressure and balance like walking into walls and tables. I recently seen a NEUROTOLOGIST. I would recommend to you to see one of these doctors. They work only in the vestibular and ear areas. I hope this helps a little. If you are close to Las Vegas NV, his name is Dr. Sean Palacios!

Good Luck,


Gosnella
Posted 8/22/2011 9:30 PM (GMT 0)
@Bethstew...I have been desperately searching the internet for ANYONE with the same symptoms I have been experiencing for the last 8 months. What you explained is exactly what I am experiencing. It shows that you haven't been on in awhile and I'm hoping that because you found a solution to your attacks and symptoms. If you have, what worked? I am desperate for a solution! I have been seeing a neurologist that told me what I am experiencing are migraines but the Topomax and Atenelol helped a small amount but not completely.
Posted 9/19/2011 11:28 PM (GMT 0)
My illness started with severe vertigo in May 2011.  I couldn't get out of bed without feeling like the house was spinning around.  After a few days I couldnt sit or lie down without being dizzy too.  This lasted 2 1/2 weeks and I began feeling a little better.  Vertigo stayed for about 6  weeks then disappeared for 1 week then came back for another 6 weeks and disappeared for about 10 days.  It came back a few weeks ago and has been really bad since last Wednesday(6 days now).  I had my appt for vestibular testing today and could not go through with all of it because I felt so sick.  I am so mad at myself that after waiting nearly 3 months for an appointment I couldnt do all of the testing.  Anyway luckily my neurologist had a cancellation this afternoon and talked with me about my results.  He is leaning toward a diagnosis of migraines even though today is the first day I've had a headache associated with the vertigo episodes.  He prescribed me verapamil er 240 mg to be taken at bedtime.  I am hoping this helps.  I missed work today due to my 3 hr doctor's appt and hope to go in tomorrow, but need to wait and see how the medicine makes me feel.  I would love to chat with you about your experiences (cambrozi or others).

~~Debbey

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