Anyone have this? head pressure, swooshing in ears,pain behind ear, stabbing pains?

We are currently looking for answers to my 14 year old son's headaches.  He is going on 3 weeks with severe head pressure, stabbing pains every 2-3 min. behind right ear, left frontal lobe and back of head, general headache in all areas of the head and loud swooshing sound in ears that sounds like blood pumping?  Sometimes the ear noise becomes so loud he cannot hear anything over it.  He also has bouts of severe nausea.  This has been constant for 3 weeks.  His pediatrician is at a loss and has suggested nueralgia or atypical migraine.  His MRI was normal and there is no evidence of an ear or sinus infection.  I asked about pseudotumor cerebri and his pediatrician is staying clear of that one for reasons I don't know.  Our pediatrician is trying to get us an emergency appt. with a pediatric neurologist tomorrow.  Ibprophen, tylenol, etc... do not help him at all.  He tried Imitrex which did nothing for him.  Now we are trying Midrin which temporarily helps with the stabbing pains but nothing else.  At this point, my son can hardly function.  Anyone have any ideas or does this sound familiar?  Any thoughts or experiences would help.

Also, my son has crohn's disease, secondary adrenal insufficiency from long term steroid use, osteoporosis from steroid use, and gastroparesis.  He has also had several other secondary crohn's complications.  The meds he is currently on include:  Reglan, Nexium, Oxanderlone, Prednisone, Bentyl, Humira, Amitriptylin, Vitamin D, Multi-vit. with iron, and calcium.

Joan 

Post Edited (Joan123) : 9/25/2007 12:53:38 AM (GMT-6)

Hi Joan123,

I can only endorse what baseballmomof3 has said and get an appoinment at a Headache Clinic preferably to see a Headache Specialist.


baseballmomof3,

It could well be that your friends daughter has Clusterheadache - it certainly sounds like it from your description. If this is the case the O2 will help each attack, but with Clusterheadache a sufferer can have many attacks per day, thankfully with O2 you can have it many times per day!!!

How long do the attacks last? I know the typical stereotype is that Clusterheadache is for middleaged men but I do know of one 6year old with it and a teenager, both are male but I also know of many young women with it too!!!!

There is a skill to using the O2 correctly to abort attacks, if you want any further information please email me and I can give you some tips as how to get the best out of the O2! I use O2 as it can be helpful in other headaches too!!

take care

Ann

Hello Joan, I hope you get this message,  I have a child with many similarities and wanting to discuss,  What was the treatment for your son?  Has it helped?

Please- if you have any information, I would love to know.  My daughter has adrenal insufficiency and recurrent pancreatitis and gall bladder removal and much more.  She is in terrible pain regularly.

My daughter is suffering terribly and we are not getting any answers.

Thanks

Pamela

Joan123 I was wanting to know how your son is doing and if they found anything.
Pamela 123 I seen your message. Have they checked for MycoPlasma? My post to joan 123 is above this one. Maybe this can help. It is a bacterial infection and has many symptoms.
My son has GERD, headaches,Migraines, anemia, pseudo tumor possible and as of last week we are showing eye problem on a field vision test.
I would like to hear from you and joan 123. My heart is with both of your families.

Have you guys ever looked into the possibility of a csf leak. Wooshing sound is very suspicious. If you have headaches constantly see if there is a positional aspect. Is it better when you lie down or stand up or no difference?

Hi there,

I definitely had the whooshing noise in my ear, which I self-diagnosed as tinnitus (http://www.dizziness-and-balance.com/disorders/hearing/tinnitus.htm)

Although I did not have any of the causes listed on the site, I was severely anemic. When I upped my iron intake, the pulsing, fatigue, and jaundiced appearance of my skin disappeared. Best of luck.

Hi everyone,
I have had a constant head pressure and tight throat and chest since I could remember... at least 4 to 5 years. I am 23 now. It's there everyday along with the chest pressure and shallow breathing. My symptoms don't ever go away, but they never get any better or worse. They feel the same intensity all day everyday, but I still feel like I am going crazy all the time. Having no insurance and being in debt due to school has made getting help a daunting task. I don't know what to do for help. My head pressure and chest/throat tightness has an effect on my mind. I walk around all the time with a cringe on my face because it effects my mood and makes me miserable. I fight it when I am around the public but fighting it doesn't ever make it any better. I am hoping someone else has something like what I am describing and has had positive results with treatment. If anyone else does, please please help. Thank you.

i know you posted this in 07' (which is when i was diagnosed with intracranial hypertension) but i thought i still post about my experience because a lot of people go undiagnosed.

very much like your son i kept getting the run around saying it was just a migraine. i was 17 and it was the day after christmas when i fell ill. i suffered from migraines since i was 10 but that day after christmas things just fell apart. i woke up vomiting and it felt like an elephant was sitting on my brain. to top it off it also felt like someone was ripping veins out of my brain one by one. i was vomiting and shaking, it was ridiculous. i thought it was the flu and so did my parents. but after 3 days and only becoming worse we went to urgent care. they said i didnt have signs of mengitis, gave me a shot for pain relief put me on some migraine meds and sent me on my way. the shot nor the pills worked, not to mention the pills sped up my heart rate. two days after that (still puking and maybe an hour of sleep a day if i was luck) i woke up and my was seeing DOUBLE. when i looked in the mirror my left eye and turned inward. i woke up my parents who freaked out and rushed me to the emergency. they gave me a vision test (so stupid, of course if i cover one eye the other sees fine) they gave me an other shot, handed me some more meds and said it was just a terrible migraine.

now youre probably wondering "why didnt your parents take you to your pediatriction?" she was out of town until jan. 2nd. i dont know how but i held on and saw her. she was freaked out and upset the emergency room doctors didnt have a neurologist look at me. she sent me to her sons neurologist same day and he figured it out right away. he checked my eyes, ordered an mri and some blood tested and the next day i was in the hospital for a spinal tap. the relief i felt from that tap was awesome. it was instant relief and it helped that my neurologist is the nicest most gentle man in the world. when they measured my spinal fluid they said it shot out of the tube so it was hire than 60. i could have lost my vision and probably worse but thank god i had a doctor who knew his stuff.

since being diagnosed ive had 32 spinal taps and i'm now 21. the swooshing sound in my ears seems to never go away and it drives me nuts. today i called my neurologist and was like hey doc do you think you can see me friday for a spinal tap (we've become quite close after 32 taps) and now im awaiting my authorization call from the insurance. i haven't hadf a spinal tap in almost a year which is a vast improvement from every week or two. its tough and i could have gotten a shunt but that only causes more problems.

if you or your kid suffers from these symptoms dont listen to your doctors when they say its bad migraines. so many people go undiagnosed with IH and its not fair. ask to see a neurologist and get a second opinion. your brain and eyes will thank you later.

check out hyperacusis.net for info on sound senstivity

New here.  Just spent 11 days in the hospital after getting a severe headache that felt like my head would burst open any moment along with vomitting and severe light sensitivity.  No relief from exedrine or any other meds I had at home that usually work.  I was shaking and had no idea what was going on around me.  I was taken immedietly to the closest ER and when they asked do you get headaches I said yes, everybody does.  So from that point they made an assumption it was just a bad migraine, but I am 26 and truly haven't had a headache like this ever.  The docs barely examined me and didn't even check neurologic function.  They did a quick CT which was fine. They pushed dilaudid and toradol which had minimal relief.  They wanted to send me home when I couldn't even stand.  I am a nurse and demanded a Spinal Tap.  Thank god I did!! (To everyone out there, you have a right to fight for your care.  Docs sometimes get so focused on one lil thing so they try to fix it and get you home so they can work on the other patient next door. Always fight and ask questions!)  Anyway, my LP pressure was so high it shot out of the tube and wouldn't measure.  I felt some instant relief at this point and they admitted me.  By the time I got to my room, my back had leaked a lot more CSF and blood onto my gown and sheets (the pressure was that high, that fluid was finding any way out).  They also told me I had increased WBCs but it was nothing significant, but as a nurse I know better.  They refused to listen to me, told me the pseudotumor cerebri was from being overweight, and once I lost weight I'd be fine.  I called my doc for a transfer and finally I got someplace that cared (have a good relationship with your primary doc in case you are in a situation where you know something isn't right and the ER or admitting physicians aren't properly taking care of you.  I also suggest finding a primary doc who has admitting privelages to a more specialized hospital in your area.  When I called my doctor and told her everything she got me out of there in 2 hours time)

I had a viral meningitis (hence the increased WBCs) with many antibodies and had a fever.  The neurologist also thinks I have undiagnosed underlying pseudotumor cerebri.  My second tap at this hospital with a neurologist doing it properly showed I still had increased pressure of 40.  They followed up with an MRI and cerebral angiogram of which the angiogram was normal and my MRI had some spots that looked like Lupus.  My blood work was negative for lupus now, but chances are it is highly probable that I will have this as well. I also have within the last 6 months been diagnosed with hypothyroidism and started on synthroid and severe rheumatoid arthiritis in which I was on a lot of immunosuppressing drugs due to disease I have I cant,  this could maybe stop in 6 months or a year or never, and I can lose my eyesight.  I am on diamox which seems to help somewhat but makes the ringing in the ears worse and sometimes I can't hear at all and Fioricet for the headaches (wonderful drug)

I had been getting moderate headaches for a little over a year. They were much worse when bending over or coughing but exedrine did the trick.  Never had vomitting or light sensitivity with them.  I've had lots of episodes of being dizzy and one time of passing out in the year.  Had multiple episodes of my visual field getting very dark.  I had a horrible ringing and heartbeat swoosh in my ears with occasional temporary hearing loss.  I had just seen my PMD because my eyes and my ears were hurting me so bad (and now I get why).  I have severe papilledema of my eyes of which are already messed up from the RA I have.  It's frustrating to me because my specialists can't really change my meds or my weight to make this go away nor can I due to these other diseases. But I am getting better, I just felt like sharing my story because I've been there and I understand. 

For the original poster of this thread, everything you described sounds like pseudotumor cerebri caused by the steroids (which is what they think triggered mine).  Of course you and I know they can't be stopped while trying to keep other diseases in control.  I truly hope they have figured out a plan for your son so that he never has to suffer the kind of pain I am all to familiar with now.  Good luck to you.

i have a pain in the right top side of my head, my eye on the same side hurts alot and this may become more difficult when im exposed to the sun. i have a feeling in my ears like something is rushing through or in it . this has been a problem for a few weeks now and im only 17 yrs old. i am terrified and scared that i have a brain tumor. i think i have dry eyes an wonder if it is causing the pain in my head. plzzz plzz helppp ! im scared. and also i soemtimes experience shocking veins ( i think) in my hand or legs.

Hi and excuse my bad english!i have all these symptoms for many years ,at least six,(i am 30)and was trying to figure out what causes it.atm i'm experiencing a big pressure on my forehead,back of the head and behing ears and can hear my inside from my ears.especially my left ear.anyway..as i was saying i was trying to figure out what causes that and noticed one thing ,that this happens when i change my sleeping routine,meaning that if i usually wake up at 9 o'clock if i wake up at 12 ,it will happen and will last for 1-5 days..i also experience something else when i feel this pressure on my head also,when it's time to sleep and i almost half asleep i suddenty wake up feeling an extreme pressure on my head but can't move my body(this is somehow called,don't know it in english)and this only happens when i sleep supinely(i hope thats the right word)and i guess it has do do with the blood going even more back of the head(im not a doctor,just guessing!)..i'm sure it's not something serious but it's very annoying..have never gone to a doctor cause it comes and goes..i guess i'll live with it for the rest of my life!

paulyb said...
Hi pauly here,


I'm new to this at the moment.

I keep thinking i have a serious problem.



I get ringing in my ears all the time, and severe head pressure to the point where i think my head will explode or i get a brain hemorrhage.

I feel sick as well when it comes on, and i have it since i was 25, and I'm now just gone 29.

Ive had all the tests, heart monitors, mri scan, got several different doctors opinions but to no avail.

It has changed my life dramatically and i need to reassure myself that it is not a serious illness or something.

It comes on when i least expect it and i want to know why.

It is affecting my entire life and i would love if there was anyone else like me? My health was fine up to 25 years. Please help me to figure this out.



Worried