I have raised intracranial pressure (hydrocephalus) and also a large fronto-temporal arachnoid cyst on the right side of my brain.
I have a shunt in situ (a device which drains the pressure away from my brain and into my heart by a thin silicon tube under the skin)
Also since Dec 09, I had a subtemporal decompression done on the right side of head only, the left side was left alone. However since having this done I get these terrible pains in my right temple, when it happens, the artery is more prominent than normal and thumps under a finger, the only way to stop the pain is to keep a finger pressed firmly onto it, well atleast it was!
Over the past month or so, the pain is more frequent (even though it happened several times a day anyway!) but ever since I went several days with a terrible headache, and then another day with this temple pain consistently, I have had frequent pain behind/on top of my left eye.
The thing that confuses me is that, my arachnoid cyst couldn't be more to the right of my head, yet all my symptoms that ive been having is affecting the left side of my head- driving me crazy!
Another thing that happens with me recently is, when getting up onto my feet from either sitting or lying, I will get up my eyes will gradually black out over a period of about
10 seconds (this had happened for as far back as i remember tbh) but after this happens its then accompanied with this overwhelming terrible pain in my head, all over as if my head is going to burst. It last about
10 seconds, but is that time the pain is unbearable, i will have to squeeze my eyes shut, grit my head and try to breathe steadily, even though breathing hurts it more!
Its no fun having a dodgy mysterious head, thats for sure!