Hemiplegic for real

Hello all,

 

I was diagnosed with hemiplegic migraines in 2008 after i had a bad attack that kepted me in the hospital for over two months..I stayed at the hospital for a month and I stayed at the reabilitation hospital for a month.During the reabilitation stay i went into the hospital three time..

 

When it happen i passed out the first couple of days..I didnt think anything about it.I thought i just got light headed and it went away.

Then two days later I passed out again but this time i couldn't get up off the floor..my legs,and arms i couldn't move them.Then i was trying to talk my speech was slurd and i was very confused.They called 911 and on the way my face was shifted to the left side and i couldnt smile.

 

In the ER they told me I was haveing TIA's and they wanted to keep me over night.Then that night i started to have seizures and the paralysis still was preasent.All during this time i was haveing servere pain on the left side of my head..They did all types of test that we all know about CT scans MRI the works..They had to move me to ICU because the seizures would not stop and i still couldn't talk or eat..worst of all I coded..They had the crash cart and everything

 

After all of that I was told that it was my migraine,with a name called Hemiplegic..Well I was happy that it was not a stroke but I was not happy with the outcome of Hemiplegic..

 

From 2008 I have lived with daily pain,with a level 7-10 and thats because I tollerated the pain..I have attacks 3-4 times a week with the seizures ,left side weakness,and paralysis.I have lost over 60 pounds from vomitting I take nausea pills like candy,LOL

 

The worse part is i have applied for disablilty and they have denide me twice,so now i have a lawyer and I pray that they can help..

Im just lookin for feed back on experiences with hemiplegic migraine..

I have a family history on both sides of the family..My mom's father,and  mother and my dads side also..All of them had a different kind and i have all..hemiplegic,cluster,and another i for got the name.

I understand everyones pain so lets reach out to each other.

Please comment,ask question or just tell me about yours..

 

Do you see red floaters or any kind of light? Pain down one side of face? weakness in limbs? My daughter is having this and its taking the doctors forever to get her in. if this ish eart or stroke related march 31st could be to late!

Hey BonitaLuv,

I just wanted to post a little more to your thread. I've had hempleigc migraines since 2007 so it will be 4 years in July. I, like you, went through a whole battery of tests and had many potential diagnoses thrown my way before i finally had a definitive diagnosis last year. I've fallen down, sprained my ankle, and broken dishes because of sudden onsets of right-sided weakness. I've never completely passed out but I do have a reduced level of consciousness.

Hemplegic migraines affect my speech in two types of ways. 1. My speech becomes slurred because my brain isn't allowing my mouth to form or say the correct words even though I am thinking the right word or I can’t understand people properly. 2. My actual tongue and mouth organs become numb or paralyzed, which is very frightening, and I can't speech. This feels like I'm choking and can't breathe, which is not fun since I am also asthmatic.

I don't have a family history of hemiplegic migraines but there are neurological problems in my family. So it's just me with this all by myself. I wish there was an easier way for us with hemiplegic migraines to keep in touch. Migraines are very hard to deal with but this sometimes seems like a whole other ballpark.

I have tried some things. Lots of Medications! I am about to begin acupuncture. I will be seeing a therapist soon to learn biofeedback (a recommendation made by my neurologist) He thinks stress is causing some of these on-going headaches. I think they are a trigger, of course, but not what’s causing them currently. But right now I’m willing to try anything. It won’t hurt.

What you have been through sounds really rough I am glad you are here to share your story with all of us. So we can learn from each other.

Be Well

HemiL