Posted 2/18/2013 6:26 AM (GMT 0)
Hey there... I don't know if it helps, but I'm experiencing some of the same issues... and yes, it does feel like I'm going crazy sometimes.... I noticed about 2 yrs ago that I was saying that I had a headache every day and I decided to start looking for answers...
I should also say that I've had headaches since I was a little kid, but I was also severly allergic and a severe asthmatic... I was on a ton of different meds as a kid and who knows how those have effected my health as an adult....
To get back to the point, I started looking for answers... I went to an ENT who did a CT scan and decided that the openings in my nasal passages were almost non-existant... I had a procedure done, a baloon sinuplasty and I was really hoping that it would help with the headaches... I will say that it was a success as far as helping with chronic sinus infections, but it didn't do anything about my headaches....
My next step was going to a neurologist... the one I went to see put me on topamax... unfortunately, I pretty much had every severe side effect you can possibly have... it made my joints swell up to the point of excruciating pain and I really did think I was going crazy because one minute I'd be happy, the next mad, and the next sad... I took it for a week before I had to quit taking it if for no other reason that I had one shoulder that was totally locked in place from the swelling...
To try to shorten this down a bit, I've had 2 CT scans, 3 MRI's, a balloon sinuplasty, and a spinal tap.... I've been on Topamax, Effexor, Flexeril, Depakote, and another pain med and nothing has helped yet... I work 12 hr shifts, so I'm lucky enough to get a bunch of days off during the week, but I've still had to miss a lot of work because of these headaches... to top it all off, about 6 months ago I developed a new symptom... the right side of my face swells up when I'm having the really bad migraine days...
so yeah, you're not nuts... or if you are, than I am too.... at least you're not alone in it....