Hi Everyone..
New to site, I'm a Low CFS sufferer. Going on 8 years now! I get treated at The National Hospital for Neurology & Neurosurgery London, under "Dr Matharu"..... Think there's a few here that's getting treated there too and probably been & had as much med's & needles shoved in them as I have over the years!!! Probably as fed up, pushed around, knocked around & kept waiting around like lambs for the slaughter...
Had so much meds down them, that they feel like a Lab rat!!... Butt so glued to the sofa, waiting for an appointment, forgotten what your legs feel like.. Wondering if your own consultant even remembers your alive!! or if he just pulls your name out of a "Raffle Hat"!!....
Ok, so your thinking "He's got issue's"..... Sorry folks!
It's been a long long 8 years....... and today I just found out that a treatment I was told I was getting, that was made to sound like a "cure", has been taken away from me!! Get this.... I found out by post!!!!!!!!!
That's right, by post... I've been all excited waiting patiently for the last couple of months since I was told. Waiting for it to start... Then BOOM.. Postman delivers a copy of my notes, from my consultant to my GP etc..
Not only do I suffer from 24/7 bloody chronic Headaches/migraines, Also lost my Right Main Cerebral Artery & have Low CFS to boot.... (what fun) but my consultant decides to cancel my treatment by post, oh & writes follow up in 9 months??? WHAT???
Oh my treatment was Theophylline, which he said could "Re-pressure my head"!! It would take a long time, has its dangers but could sovle the Low CFS!!!!
Exciting news right!!!!!!!! A cure right!!!!!!! But to be told by post.... sucks right!!!!!!
Anyway, that's a bit of my story...
I'll check in again soon or e-mail me.. I spend well pretty much forever at home, unless at london National..
:-()
Take care Fello Headsplitters...
